 |
11-12-2008, 05:00 PM
|
#1
|
|
Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
|
World News with Charlie Gibson
I just saw where a segment will run tomorrow about the progress (and new hope!) of the breast cancer vaccine on World News with Charlie Gibson (ABC). I quickly came to this site to tell all of you. I look forward to watching.
Seems appropriate as tomorrow is the one year anniversary of my surgery to remove the cancerous tumor from my right breast. It is also my youngest daughter's 16th birthday! I told her last year that having my surgery on her birthday was good luck and it was!
Many hugs
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
|
|
|
|
11-13-2008, 10:04 AM
|
#2
|
|
Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
|
Hi Dana,
Just wanted to send you huge congrats on your cancer-versary and also a very Happy Birthday to your daughter!
A vaccine would be a dream come true but maybe one of these days.....
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
|
|
|
|
|
11-13-2008, 02:56 PM
|
#3
|
|
Senior Member
Join Date: Jan 2008
Location: Carmel, Indiana
Posts: 98
|
Dana,
Happy anniversary!!!
Love,
Beth
__________________
DX 9-19-07 at age 40
DCIS, Inv. Duct. Car. 3 cm
Positive lymph node biopsy
Er+Pr+Her+++
Carboplatin/Taxotere/Herceptin
10-1-07 -- 1-16-08
Herceptin every 3 weeks until 9/24/08
Lump. and node dissection 2-12-08
BRCA1 and 2 negative
30 rads finished 4-23-08
oophorectomy 5-6-08
Femara started 5/25/08
Zometa for osteoporosis every 6 mo. started 9-24-08
Married 16 years!
3 kids - daughter (10), twin sons (7)
|
|
|
|
|
11-13-2008, 07:57 PM
|
#4
|
|
Guest
|
Dr. Nora Disis
Dr. Disis is an old friend of our group and I am pleased to say that we supplied many recruits for her vaccine study but also for others around the country.
Hopefully there will be additional announcements at SABCS on various vaccines under study.
Hugs
Chris and joe
|
|
|
|
|
11-14-2008, 01:51 AM
|
#5
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Dana, I'm a day late but HAPPY ONE YEAR CANCERVERSARY to you! Here's to at least another 50 plus some to come your way.
I watched the world news tonight on the vaccines. Always encouraging. Just wish they would have one for us tomorrow.  For anyone that might of missed it here is a link to the video and also a link if you just want to read it.
http://abcnews.go.com/video/playerIndex?id=6250473
http://abcnews.go.com/Health/CuttingEdge/story?id=6247113&page=1
(Looking forward to any & all info you get at the ASCO on the vaccines this year Joe.)
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
Last edited by Chelee; 11-14-2008 at 01:58 AM..
|
|
|
|
|
11-14-2008, 04:45 AM
|
#6
|
|
Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
|
MY blood ran cold when it was stated "when the drugs quit working and they always do..." something to that effect and I had a mini panic attack later. It's never-ending.
However, I am encouraged with all the advances that science continues to make.
Thank you for all the warm wishes regarding my cancerversary.
I am off to a Herceptin treatment this morning.
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
|
|
|
|
|
11-14-2008, 12:16 PM
|
#7
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
WHO said that about the drugs always quit working???
Let me at them! We have to set these people straight who are living in the STONE age of HER2 cancer care.
There are literally THOUSANDS of us now who are "Herceptin Babies" and some who are "Herceptin/Vaccine Babies" who are here BECAUSE the drugs did not STOP working. Maybe someday, but we have multitudes who are doing well at all stages of this disease.
So, Dana, keep the good news in the front of your mind, in spite of what you may hear. That is OLD news talking.
We are the enlightened ones.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
11-14-2008, 03:16 PM
|
#8
|
|
Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
|
Steph, I felt just like Dana when I heard that said. I think a few of us should email them about that comment. If you click on the video link I posted (above) you will hear then say that. I copied it and pasted it below.
>>>To stay cancer-free, she still takes the drug Herceptin. But she knows that eventually, in most women, the drug stops working and the cancer returns.<<<
I noticed at the end of this article, and the actual video they both give you an opportunity to write them. (See below)
If you would like to tell us more facts about this story, please click here to send the editors of ABC News a separate email with the information you have.
Maybe a few of us ought to straighten then out on a few things. For them to stress the point that in most women the drug stops working just is NOT right.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
|
|
|
|
|
11-16-2008, 06:21 PM
|
#9
|
|
Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
|
Chelee and StephN.,
Thanks for the information and inspiration! We ARE the enlightened ones!
I am lucky to have found this wonderful forum.
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 10:13 AM.
|
Linear Mode
