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Old 11-20-2007, 07:41 AM   #1
weenan
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please help, Lung mets and scared

Hi there
Im writing to seek help for my mum.
She is 53 years old and has her2+ that has spread to her lungs.

She was dx in December 06 she had a masectomy and Chemo. She finished Chemo in May 07.

In September 07 she started having breathing troubles, she was told she had pnemonia and was treated for that with no luck.

She was hospitalized for breathing problems and was discovered that she has lung mets and pleural effusion.
She has been in the hospital for a month, she is currently in ICU and has been on a ventilator for 17 days.
She is getting Herceptin, Gemzar (sp) and another drug I can not remember she got all 3 drugs on 11/3 Gemzar on 11/10 and she is scheduled to get all 3 in a double dose on 11/24.

She was doing better was able to breathe on her own for a few hours until last night, when she got a fever, she has a yeast infection that has spread throught out her body.

The Dr's are not being postive at all, we and she are not ready to give up yet. We were told in the begining that we would need at least 4-6 weeks to see if this form of Chemo would help, it has not been that long.If not we were told we could try tyker (sp).
We are meeting with the Dr's tomorrow I spoke with the oncologist today and he said she is to weak to get chemo, that he now only gives her a 10% chance of survial. He will still give her chemo if that is what we want but feels that it will kill her.

We are not giving up, she does need to have the vent removed and she will get a trach, we are hoping and praying something will work. Has anyone been where we are??? Can anyone offer any advice???
Please help if you can we are DESPERATE!!!!

thanks so much
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Old 11-20-2007, 07:48 AM   #2
MJo
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I don't have advice -- other women here know more. But I want you to know I'm thinking about you and your mom. Maybe lowering the dosage of the chemo will make it tolerable -- but I'm not a doctor. Miracles happen.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 11-20-2007, 08:20 AM   #3
tousled1
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I too have lung mets and pneumonia

Weenan,

My heart goes out to you and your mother. I too have lung mets that were discovered shortly after I completed my treatment - 3 months to be exact. I'm on Taxol, Carboplatin weekly with 3 weeks on and one week off. In addition I'm getting Herceptin weekly. I was diagnosed with pneumonia just last Thursday and am now on antibiotics for that so I can't get my chemo. The most important thing right now is to get your mom's pneumonia under control and then address the issue of chemo treatment plan. Please keep us posted
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 11-21-2007, 09:14 PM   #4
jhandley
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thinking of you

tousled offers good advice. Hope things get better soon.
take care, hug for you both.
jackie (down under)
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Old 11-21-2007, 10:35 PM   #5
CLTann
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From what you described, your mother is weak and in ICU. Obviously, the first order of priority is to take care of her pneumonia problem. Breast cancer and its metastatic site are seldom medical emergencies. Treating her with chemo at this critical moment would only weaken her resistance to various germs. Try to help her with encouragement words. Best of luck to all of you.
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Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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