Well, poop,
After all that drama about getting the Perjeta (which is still to unfold as I have not gotten anything from my insurance yet!), it didn't work that well, even after adding the taxotere/herceptin. My scan after 2 cycles including Taxotere shows that although the larger lesions in my liver are unchanged, which is good, there are several smaller new baddies showing up.
Also, which has me very concerned, for the first time they are seeing some (small amount) of ascites in the abdomen and also some "thickening of the pleura" in my rt lung, which may be inflammation and not cancer related (or not). Having liver-only disease while not good, is much better than spread to other places. But we do not know for sure what is going on there yet. Hopefully nothing.
So my new horse is named Navelbine (all horses have the middle name Herceptin). I know that has good activity against liver and lung, at least at earlier intervention. Hopefully it will deliver a good punch for me now that the taxanes seem to have pooped out.
Dr. Rugo's first suggestion was Gemzar/Carbo (and Herceptin) but I asked about Navelbine which she has mentioned before. She said it wouldn't hurt to try for a cycle and see.
Naturally I am supremely bummed, and feel as so many others have, that I am just crossing treatments off the list too fast. I'm not yet out of options but I really need to have something work and regain control over this stupid cancer. I still have a lot to do in this lifetime.
The good news, I guess, is that there are presumably not so many different side effects (and related drugs to control them!) so maybe I can avoid future kittyhead moments of messing up on all the peripheral drugs. All I have to do is remember to show up every week instead of 3, except for week 3 is off so its 2 weeks on one week off....piece of cake, eh?
But they're all on my iphone calendar
Any encouraging words appreciated!
Perjeta failed, changing horses again
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