HonCode

Go Back   HER2 Support Group Forums > Herceptin / Tykerb
Register Gallery FAQ Members List Calendar Today's Posts

Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb

Reply
 
Thread Tools Display Modes
Old 06-05-2008, 09:35 AM   #1
sarah
Senior Member
 
Join Date: Sep 2005
Location: france
Posts: 1,648
need list of ixempra trials in France

Hello,
I have an odd one and would appreciate any help. I live in France, I'm an HER2 person but I have a friend who's HER2 and IBC and needs to get on an Ixempra (or whatever it might be called here) trial.
I don't think her onc is doing enough research on this and an onc friend in LA basically emailed me to say she needs Ixempra.
Could anyone ask Bristol Myers for a list of places doing trials in France and email it to me???? I've tried web searching but either I'm too blond (really grey now) or ?
My friend's in the hospital and my husband and I hope she'll find a way to improve enough and go home or ideally into a trial.
Breathing is the issue right now.
I was even thinking of the US but then she'd need a place to stay until she gets her land legs so to speak. We have some friends in LA and NY that might help with that, elsewhere no.
She needs something fast! You were all very helpful in getting me info on the Tykerb EAP thing - she tried that but...
hugs and love to all
sarah
sarah is offline   Reply With Quote
Old 06-05-2008, 09:45 PM   #2
hutchibk
Senior Member
 
hutchibk's Avatar
 
Join Date: Oct 2005
Posts: 3,519
If it helps with your research, Ixempra is ixabepilone.

I found this link to a large trial in France for Ixempra, but your friend does not fit the criteria. However, there is a lot of info on this page (scroll all the way to the end of the page, you will find all the hospitals that are hosting this particular trial) that you may be able to use to find who might be doing an Ixempra trial that she could qualify for...

http://clinicaltrials.gov/ct2/show/NCT00630032

Also, here is a link to the French National Cancer Research website. I can't read French, but I am guessing it could be a good resource...

http://www.fnclcc.fr/


Hope these help. I will try to keep looking.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 06-05-2008 at 09:50 PM..
hutchibk is offline   Reply With Quote
Old 06-05-2008, 11:24 PM   #3
Joe
Webmaster
 
Joe's Avatar
 
Join Date: Feb 2005
Location: Home of the "Flying Tomato" Carlsbad, CA
Posts: 2,036
Images: 5
Here's More:

http://www.clinicaltrials.gov/ct2/re...mpra%2C+france


Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.

Illegitimi non carborundum


My Album
Joe is offline   Reply With Quote
Old 06-06-2008, 11:42 AM   #4
sarah
Senior Member
 
Join Date: Sep 2005
Location: france
Posts: 1,648
Many thanks to both of you.
Checking them out right now.
Joe, this is an amazing site, couldn't live without it. You and Christine are heros to me.
hugs and love
sarah

Last edited by sarah; 06-06-2008 at 11:53 AM..
sarah is offline   Reply With Quote
Old 06-06-2008, 12:22 PM   #5
sarah
Senior Member
 
Join Date: Sep 2005
Location: france
Posts: 1,648
Checked them out. I will call some of the places in France on Monday. I was originally treated at the one in Nice (now at Mougins) and I can ask a few people I know work there about it.
thanks again.
I'm really worried about our friend.
hugs and love
sarah
sarah is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 05:17 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter