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Old 08-30-2011, 01:45 PM   #1
hezzy_9805
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Join Date: Oct 2010
Location: Paxton,IL
Posts: 11
I need help, idea, and opinion bout doin video

First, I am not spam. I am also hezzy idk password and no longer have the email I used for that account. Im sorry really sorry. Second, how can I upload pic so it shows?
Third, I'm so dam scared Im swelled in the feet,face, and stomach so big. Yet, my legs are strinking fast. I've gone back too needing everything handicap. I called a nursing home wondering if they could help me and one place recommended sending someone to my home for help. My legs are tiny and very weak...stairs are at the impossible Im terrified!
Meds have not changed so im wondering where this is coming from.
Im on tykerb, xeloda, herceptin, zometa, faslodex, lovenex,fluexentine(pain patch)diphen atrop(control bthrm)and dexamethosone. ...again though no medical change.
Any help? IDK how long I.ll be here their talking about deleting me they think Im spam Im far from spam Im living person fighting bone and brain mets. Im not online a lot I have a six yr.old and Im also thinking of starting video for her instead of notes...btw what you think of that.
hezzy -9805 .... heather
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Old 08-31-2011, 07:08 PM   #2
Trish
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Join Date: May 2010
Location: Melbourne, Australia
Posts: 434
Re: I need help, idea, and opinion bout doin video

Hi Heather
Sorry to hear about all the difficulties you are experiencing. I think making a video for your six year old is a wonderful idea. I hope you can get the help you need, thinking of you
Trish
__________________
5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004
6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006
oopherectomy, Arimedex
12/2006
liver mets largest 9cm
1/2007
Herceptin,
3/2007
Taxol + Herc
1/2008
Herc alone
4/2008
Multiple bone mets,Zometa
7/2008
Herc + Gemcitabine
8/2008
Herc+Navelbine/vinoralbine
10/2008
Herc+Carboplatin+Taxol
12/2008
Tykerb+Xeloda
2/2010
Herceptin + trial drug
5/2010
Herceptin+Tykerb
8/2010
Tykerb+Abraxane
9/2010
Abraxane
12/2010
Abraxane+Tyk+Herc
4/2011
Tyk+Herc+Femara
6/2011
Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011
Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011
Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 08-31-2011, 08:13 PM   #3
dchips1
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Location: Mesa, Az
Posts: 219
Re: I need help, idea, and opinion bout doin video

while on steroids, it made me diabetic, with cushing symptoms(fat face neck belly(I looked like I was 7 months pregnant)and waist down my thigh muscles got so bad I was falling couldn't get off toilet by myself. You should ask to have your blood sugar tested, if high get medications to lower it. Home physical therapy, pool therapy for pain and weightless exercise.
Video ideas, pick a time when you are at your best part of your day. start with favorite memories from pregnancy and move forward year by year. Include nick names, funny things, trips, visits with family, birthdays etc


Prayers for you Darita
__________________
dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain

1/29/14 HIHO HIHO its off to Neuro surgery I go





Life is Good when you wake up in the morning and take a breath and know that God has given me another day.


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