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Old 02-13-2010, 10:02 PM   #1
Chelee
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I heard from Vicki h & have an update.

I almost hate to pass this on with all the bad news we have had lately--but Vicki wrote me and also asked if I would please update you all as she is just not feeling up to it. She just got out of the hospital after being transfused with 3 units of blood. Her condition has rapidly gotten worse and her and Cap will be talking to Hospice next week. She apologizes for not posting but she has been in far too much pain. It's very difficult for her to sit up at the computer. She said Cap would have updated us but this goes without saying...he is deep in his own grief right now. (The rest below I copied and paste for you all.)

>>>Please don't worry about us,,,,,we love you all and pray for you everyday. I get teary eyed just thinking of all of you. I wish my news were better, I wish we had years ahead of us, but some of us don't and I have to accept that and hold tightly to my sisters and brother and God to carry me home
I love you all so very much,
Vickie<<<

I can't even express how sad this news is to me. It literally breaks my heart and I am in tears right now. I had so much hope that the TDM1 was going to do it for Vicki. She has fought long and hard and if anyone could do it I really believed she would get thru this. She has been such an inspriation to me and so many others here. Vicki said not to worry about them...I wish it was that easy. (Vicki if you see this, know I will continue to keep you both in my thoughts and prayers.) Sending you and Cap all my love.

Chelee

__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 02-13-2010, 10:17 PM   #2
flynny
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Re: I heard from Vicki h & have an update.

Thank you for the update and it makes me sad to hear this news. I'm sending out big hugs and prayers to everyone. I really hate this disease. It takes too many incredible people away from us!
__________________
-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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Old 02-13-2010, 10:32 PM   #3
Faith in Him
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Re: I heard from Vicki h & have an update.

This is so sad. It is through tears that I am typing this.

Vickie - You are such a precious lady. I have and will continue to pray for you. God is most definately with you and so are we.

Love,
Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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Old 02-14-2010, 05:15 AM   #4
Ellie F
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Re: I heard from Vicki h & have an update.

I am so saddened to hear this news. Vickie was so supportive to me and gave me such hope. I am gutted that T-DM1 has not bought her lots more time and angry that another sister is suffering from this disease and we don't have a cure.I cannot stop the tears.
Please may God hear our prayers for the cure.
Ellie
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Old 02-14-2010, 05:33 AM   #5
Pam P
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Re: I heard from Vicki h & have an update.

I am sorry to learn about Vickie. I can hardly stand to check in on this site right now there's been so much heartache to read about. I do read, but usually can't bring myself to post. Day to day I live in a denial bubble of sorts thinking I'm doing okay now and can stay at this rate. But the hard truth is this is a dreaded killer disease and it's systematically reaching us all one by one. I
ve been telling myself the t-dm1 will finally be available to me soon and it will be my weapon, but as with Vickie, there is no safety zone, no armor against this killer. I have scans pet/ct, echo, on Tues. 2/16 and am in a state of fear of what the report will say that this cancer is doing to me now. Vickie, Cap, all the people we have lost recently, and all of us who are still trying to stay strong and weighing heavily on my heart.
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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Old 02-14-2010, 06:54 AM   #6
greenacres
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Re: I heard from Vicki h & have an update.

I just joined last nite so I don't know Vicki, but it sounds like she has had a long hard road to this point. My thoughts and prayers are with all of you and her and her family. So very sad.
__________________
Sandra from WI
Stage 1, Tumor 1.4 cm, Grade 3, ER-/PR-/HER2+++
Poorly Differentiated IDC with comedo type necrosis with DCIS/ALH :(
Mammogram: 11/12/09
Call Back Mammo: 11/17/09
Biopsy: 11/25/09
Diagnosis Call: 12/2/09
Partial MX: 12/16/09. 3 LN clean.
6 Cycles Chemo (TCH) Jan-April/10; Herceptin all of 2010; 33 Rads complete 7/10. Herceptin done 12/10.
FOLLOW UPS:
Bil mammo, and Breast MRI 12/10 - CLEAN! (after a second lump was biopsied and BENIGN - showed giant cell reaction?).
Bil mammo 6/11 - CLEAN!
Left mammo 12/11 - CLEAN!
PET/CT scan 4/6/12 - CLEAN!
Bil mammo 8/12 - CLEAN!
November 2012 - Gallbladder Removed.
Bil MRI 2/13 - CLEAN!

http://www.caringbridge.org/visit/sandragreen
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Old 02-14-2010, 07:27 AM   #7
Yorkiegirl
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Re: I heard from Vicki h & have an update.

Chelee thanks for posting this.


Vicki & Cap please know that MANY, MANY TEXAS SIZE PRAYERS are going out for you.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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Old 02-14-2010, 07:34 AM   #8
Midwest Alice
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Re: I heard from Vicki h & have an update.

Vickie, Your love and guidence has been key to my fight thus far. I pray you feel God as he holds you ever closely. Those who follow us will benefit from our walk. You have been a true leader to us all. You may rest now in the blessings God has instore for you.

Your sister in Christ,
Alice
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 02-14-2010, 08:18 AM   #9
krisvell
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Re: I heard from Vicki h & have an update.

Vicki, Please know that I am praying for you and your family.
Love,
Kris......
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found


Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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Old 02-14-2010, 08:37 AM   #10
caya
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Re: I heard from Vicki h & have an update.

Sending prayers, love and hugs to Vickie and Cap.

all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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Old 02-14-2010, 12:23 PM   #11
ElaineM
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Wink Re: I heard from Vicki h & have an update.

I am so sorry. I don't know what to say or do, except I want to give Vickie and Cap big cyber hugs !!!!!!! I have my fingers crossed and will remember Vickie in my prayers.
Thanks for letting us know Chelee !!!!!!!
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 02-14-2010, 12:38 PM   #12
Shobha
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Re: I heard from Vicki h & have an update.

I have no words to express what I am feeling...just sad right now. My prayers will continue for Vickie and Cap.

hugs,
shobha
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DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 02-14-2010, 01:24 PM   #13
chrisy
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Re: I heard from Vicki h & have an update.

Chelee,
Thank you for passing this news on, as painful as it is. I too had really hoped Vickie would do better on TDM1. My heart goes out out to her and Cap and their family. Including her family here.

Much love, between the tears,
Chris
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 02-14-2010, 02:44 PM   #14
tricia keegan
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Re: I heard from Vicki h & have an update.

Such sad news Chelee, but thank you for posting it on.
I'll be keeping Vicki in my thoughts and prayer's, thinking also of Pam and hope the news is good on your scans. xx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-14-2010, 04:37 PM   #15
mmoons
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Re: I heard from Vicki h & have an update.

Chelee,
Thank you for the update.

I, too, am struggling for words but have no shortage of tears. I am sick to hear the news about Vicki. Pam, my heart is heavy to read your words also. Both Vicki and you, Pam, have been so kind and loving to me when I have reached out for help...you and so many others here. I hate it that there are so many of us here but grateful to have you all.

I wish I could do something. Truly I do. I hold you close in my heart, Vicki, Cap, Pam and all of you...my sisters. I hope Vicki feels all the love and prayers coming her way.

Maureen
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My loves

IDC & DCIS, HER2+++ Diagnosis: October 1, 2008
  • Tumor: 6.8 centimeters, never showed on mammograms
  • ER-/PR-
  • November 2008: Sentinal Lymph node surgery. 6 out of 9 lymph nodes with cancer
  • Stage IIIc
  • Lapatinib Clinical Trial start: November, 2008
  • Surgery: May 5, 2009
  • Started Herceptin: May 19, 2009
  • Started Radiation (33 rounds): June 10, 2009
  • September 2009: Moved to Michigan to be closer to family
  • 12/09 - still on Herceptin until May 2010
  • August 2010: Port out, port out, port out port out port port port out port ooooout...da da da dant! (to the music of the Pink Panther)
Blog: http://moonsfamily.blogspot.com
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Old 02-14-2010, 08:15 PM   #16
Bill
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Re: I heard from Vicki h & have an update.

Thanks, Chelee, for passing on Vickie's message. My thoughts and prayers are with Vickie, Cap, and all of you. Love, Bill
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Old 02-15-2010, 01:24 PM   #17
suzan w
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Re: I heard from Vicki h & have an update.

Thank you Chelee for this update. Sad. Cancer sucks. Prayers and love to Vickie and her people...xo Suzan
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 02-15-2010, 03:45 PM   #18
StephN
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Re: I heard from Vicki h & have an update.

I can't help but recall this poem Vicki dashed off one evening and posted. She has such a wonderful capacity with words. Her conversation with her cancer has gone on for some time as you can read below.
Thanks again, sweet sister, for the wise verses.


I didn't Want You
I didn’t want you
But one day you came anyway.

I hated you at my very core
You slept in my breast anyway.

I hugged myself and tried not to cry
My pillow case was soaked anyway.

I wanted to wash myself clean of you
I smiled when you left anyway.

I went about my life and willed you to go away
You haunted me anyway.

I never wanted to hear your voice again
You called me anyway.

I saw you again and tried to stay calm
I threw up anyway.

Herceptin lost 71 to 85 that game
Guess you thought you won anyway.

You were charmed by my innocence
You tried to take it anyway.

My confidence and strength inspired others
You crippled me anyway.

My smile stopped you dead in your tracks.
You overran me anyway.

I thought you were harmless
You hung to me anyway.

You tried to take my life away from me…scarred the deepest part of me
I am living everyday anyway.
I am loving life anyway.
__________________
Love and Hugs, Vickie
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 02-15-2010, 03:50 PM   #19
Ceesun
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Re: I heard from Vicki h & have an update.

I am sorry, really sorry about this news, and all of the recent losses. How much can our hearts endure?? Ceesun
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Old 02-15-2010, 04:31 PM   #20
DanaRT
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Location: Avilla, Indiana
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Re: I heard from Vicki h & have an update.

Thank you for posting the poem, StephN.

Vicki, you are an inspiration, float on the prayers and love.

Love,
Dana
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Diagnosed - Nov. 2, 2007 at 45
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