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01-24-2012, 02:47 PM
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#1
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Senior Member
Join Date: Oct 2008
Posts: 88
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Building a Freeway of Love for Courtney - TONIGHT!
Hi Ladies:
As Jay's latest post to Courtney's Caring Bridge indicates - Courtney is in need of our love and prayers. Her husband is asking that we all do this for her tonight, as the dr's make their decision tomorrow:
" . . . tomorrow AM the medical team will determine if we can tackle the underlying problems."
I live in the SF Bay Area, and feel quite lucky to have met this Earth Angel called Courtney. She has done an exceptional job of uniting bc women!
So, whatever your method is to embrace the light, please do so tonight for Courtney!
In hopes to create a thread that showers love, prayers, and hope on Courtney - feel free to post any verses, sayings, and/or images that speak to you in this time.
This has always been one of my favorite images of Courtney's - I was SO blown away when I saw it!
Thanks ;-)
http://www.kbsite.info/Courtney%20an...20Hamilton.jpg
Kim
__________________
------------------------------
Dx Stage 3C 2005, triple +, tons of lymph nodes as well. FEC, surgery, TCH, rads, herceptin 1 year. And, Aromasin.
2007 - recurrence to medistinal lymph node, Abraxene and Herceptin - took it down 50%
2008 - on Arimidex/Herceptin - stable lymph node.
2009 - stable on Arimidex/Herceptin
2010 - lymph node progression and liver mets.
2010 - went on Gemzar, Navelbine, Herceptin - Navelbine and Herceptin took liver mets down. lymph node slightly progressed.
2010 - did Xeloda & Tykerb - MAJOR progression in liver in only 6 weeks.
Dec 2010 - present - Ixempra/Avastin/Herceptin/Fasoldex - regressing
June 2012 - chemo break
Sept 19, 2012 - start t-dm1. Chose this over going back on Ixempra.
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01-24-2012, 03:08 PM
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#2
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Senior Member
Join Date: Mar 2009
Posts: 126
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Left my thoughts and prayers on her CB site. I hope they come up with the best plan for Courtney. She has always amazed me with her ability to take complete control over her care.
__________________
Diag. 12/24/08-
IDC 1.3 er-/pr- HER2+
Grade 3 0/2 lymph nodes
no angiolympathic invasion
Bi-Lat. Mast. 1/8/09
Exchange scheduled for 6/17/09
Lost implants due to unknown reason :(
Hip Flap 1/26/2010 in NOLA :) LOVE EM'
TCH x6 (6 done and I am hoping to never do it again )
Well so much for never...
Local recurrence May 25,2014 is left over breast tissue.
April 2 , 2014 lumpectomy
April 28, 2014- June 9, 2014 start AC x 4
Taxol x12
Perjeta x 6
Herceptin x 18
And 33 rads just for fun. NOT!!!
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01-24-2012, 03:19 PM
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#3
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Building a Freeway of Love for Courtney - TONIGHT!
This calls for the Big Guns, so to speak. I have posted this verse a couple of times here over the years, but it is time once again. For you our dear Courtney.
St. Patrick's Breastplate
I gird myself today with
the power of God:
God's strength to comfort me,
God's might to uphold me,
God's wisdom to guide me,
God's eye to look before me,
God's ear to hear me,
God's word to speak for me,
God's hand to lead me,
God's way to lie before me,
God's shield to protect me ...
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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01-24-2012, 04:30 PM
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#4
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Senior Member
Join Date: Aug 2010
Location: New York, New York
Posts: 1,580
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Kim
Have been thinking of you today, too...wondering what the group out there is doing...almost travelled to get vegan chocolate...your favorite lavender, to feel closer to you all out there...please let us know when YOU know what is happening. I have this overwhelming sense of activity. I loved that Courtney was doing laps with her walker...I wash the floor on my hands and knees when I'm playing Big Time Fighter Girl...
Warm love to you all, and especially Jay and the one and only Courtney,
Your NYC sister
Karen
__________________
World Trade Center Survivor (56th Floor/North Tower): 14 years and still just like yesterday.
Graves Disease, became Euthyroid via Radioactive Iodine, June 2001.
Thyroid Eye Disease. 2003. Decompression surgery in 2009; eyelid lowering surgery in 2010.
Diagnosed: June 2010, liver mets. ER-/PR+10%; HER2+++.
July 2010: Begin Taxol/Herceptin. Eliminate sugar from diet. No surgery or radiation.
January 2011: NED
April 2011: Progression in liver only. Other previous affected areas eradicated. Stop Taxol/Herceptin after 32 infusions.
May 2011: Brain MRI: clear.
May 2011: Begin Tykerb daily, Xeloda twice per day for one week on, one week off, and Herceptin.
November 2011: Progression in liver. All other tumors remain eradicated.
December 2011: BEGIN TRIAL #09-093 Taxol, MCC-DM1 (T-DM1), Perjeta.
Trial requires scans every six weeks, bloodwork and infusions weekly.
Brain MRI: clear.
January 2012: NED. Liver mets, good riddance!
March 2012: NED. Developed SMA (rare blood clot) in intestinal artery and loss of sight in right eye due to optical nerve neuropathy. Resolved when Taxol removed this month.
Continue Protocol of T-DM1 weekly and Perjeta every 3 weeks.
May 2012: NED.
June 2012: Brain MRI: clear.
June-December 2012: NED.
December 2012: TRIAL CONCLUDED; ENTER TRIAL EXTENSION #09-037. CT, Brain MRI, bone scan: clear. NED.
January-March 2013: NED.
June 2013: Brain MRI: clear. CEA upticking; CT shows new met on liver.
July 3, 2013: DISASTER STRIKES during liver ablation: sloppy surgeon cuts intercostal artery and I bleed out, lose 3.5 liters of blood, have major hemothorax, and collapsed lung requiring emergency resuscitative thoracotomy, lung surgery, rib rearrangement and cutting deep connective tissue, transfusion. Ablation incomplete. This life-saving procedure would end up causing me unforgiving pain with every movement I make, permanently, otherwise known as forever.
July 26, 2013: Try Navelbine/Herceptin. Body too weak after surgery and transfusion. Fever. CEA: Normal.
August 16, 2016: second dose Navelbine/Herceptin; CEA: Normal. Will skip doses. Watching and waiting.
September 2013: NED, Herceptin only. CEA: Normal. Started Arimidex.
October-November 2013: NED. Herceptin and Arimidex. CEA, CA125, 15-3: Normal.
December 2013: Something brewing. PET lights up on little spot on liver; CEA upward trend, just outside normal. PET and triphasic liver scan confirm Little Met. Restart Perjeta with Herceptin, stay on Arimidex. Genomic sequencing completed for future treatments, if necessary.
January 2014: Ablate Little Met on the 6th. Happy New Year.
March 2014: Brain MRI: clear. PET/CT reveal liver mets return; new lung mets. This is not funny.
March 2014: BEGIN TRIAL #10-005 A(11)-Temsirolimus plus Neratinib.
April 2014: Genomic testing indicated they could work, they did not. Very strange drug combo for me, felt weird.
April 2014: Started Navelbine and Herceptin. Needed something tried and true, but had significant progression.
June 2014: Doxil and Herceptin.
July 2014: Progression. Got nothing out of it. Brain: NED.
July 2014: Add integrative medical hematologist-oncologist to my team. Begin supplements. These are tumor-busting, immune system boosters. Add glutathione, lysine and taurine IV infusions every three weeks.
July 2014: Begin Gemzar, Herceptin & Perjeta. Happy.
August 2014: ECHO perfect.
January 2015: Begin weekly Vitamin D Analog infusions. 25 mcg. via port.
February 2015: CT: stable.
April 2015: Gem working, but not 100%. Looking into immunotherapy. Finally, treatments for the 21st century!
April 2015: Penn Medicine. Dendritic cell immunotherapy.
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01-24-2012, 04:33 PM
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#5
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Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
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Re: Building a Freeway of Love for Courtney - TONIGHT!
i just read jay's post now and burst into tears. courtney is such an amazing person and i hate what cancer is doing to her. i am not much for prayer, but i will do so for her tonight. i just lit candles to burn until i go to sleep, just for courtney. burning fervent prayers that she gets through this. she will be on my mind all night. valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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01-24-2012, 04:52 PM
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#6
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Senior Member
Join Date: May 2009
Posts: 510
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Re: Building a Freeway of Love for Courtney - TONIGHT!
This news just fresh from our local support group of young women in the Bay Area:
"Courtney's husband, Jay, is rallying all her troops to send their prayers, thoughts, and loving kindness to Courtney in a huge way at 6pm tonight.
If you can stop and take some moments to send your thoughts and prayers for Courtney at 6pm tonight, you will be uniting with many, many others who are sending Courtney the power of our love, all at the same time."
Let's all do a current of prayer and love for her.
Angels of God,
our guardian dear,
To whom God's love
commits us here,
Ever this day,
be at Courtney's and Jay's side,
To light and guard,
Rule and guide. Amen.
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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01-24-2012, 06:56 PM
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#7
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Senior Member
Join Date: Oct 2008
Posts: 88
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Thanks everyone - this is great!
- Kim
__________________
------------------------------
Dx Stage 3C 2005, triple +, tons of lymph nodes as well. FEC, surgery, TCH, rads, herceptin 1 year. And, Aromasin.
2007 - recurrence to medistinal lymph node, Abraxene and Herceptin - took it down 50%
2008 - on Arimidex/Herceptin - stable lymph node.
2009 - stable on Arimidex/Herceptin
2010 - lymph node progression and liver mets.
2010 - went on Gemzar, Navelbine, Herceptin - Navelbine and Herceptin took liver mets down. lymph node slightly progressed.
2010 - did Xeloda & Tykerb - MAJOR progression in liver in only 6 weeks.
Dec 2010 - present - Ixempra/Avastin/Herceptin/Fasoldex - regressing
June 2012 - chemo break
Sept 19, 2012 - start t-dm1. Chose this over going back on Ixempra.
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01-24-2012, 07:55 PM
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#8
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Senior Member
Join Date: Sep 2011
Location: Lovington, New Mexico
Posts: 100
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Power and energy and thoughts and prayers of hope and love and peace to Courtney....
__________________
7/25/2011 Diagnosed DCIS and IDC on left from biopsy.
8/9/2011 Bilateral mastectomy
7mm clear margins Stage 1b, grade 3, 0/4 SLN ER- PR+ Her-2/neu +
9/19/2011 Started TCH every 3 weeks, TC for six cycles, Herceptin for 1 year
May all of your dreams bloom like daisies in the sun....
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01-24-2012, 08:37 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Somehow, all that comes to my mind is Aretha Franklin...another powerful, full of life, unstoppable woman.
Wind against your back, Courtney and Jay..
Much much love
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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01-24-2012, 08:51 PM
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#10
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Consider it done. I will remember Courtney in my prayers tonight.
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01-24-2012, 09:56 PM
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#11
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Senior Member
Join Date: Apr 2010
Posts: 129
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Courtney has been such a support and inspiration to me. From my first contact with her through an email as I lay on the gurney before getting my port, to phone calls, information sharing, and she and Jay opening their home to my parents and me the eve of my mom's surgery at UCSF (while they were out of town). I last had lunch with her in August, and she was still so positive. I have not been able to stop thinking of her all day today. I am continuing to hope and pray that she will once again pull through this latest struggle. We love you, Courtney!!
__________________
March 2010: Diagnosed with Stage IIIC IDC with axillary, mammary and suplaclavicular node involvement. ER/PR -, HER2+++. 7cm tumor in right breast.
April 2010: Started neoadjuvent chemo. 4 DD A/C every 2 weeks, 4 DD Taxotere every 3 weeks with Herceptin weekly.
August 2010: Finished chemo!
August 20, 2010: PET/CT showed no cancer in any nodes, and only a little uptake to the breast.
September 9, 2010: Bilateral mastectomy with immediate reconstruction with implants and Alloderm.
September 16, 2010: Pathology report showed 18/51 positive axillary nodes, 3.2cm tumor. Granual sized cancer found in the fatty tissue between levels 1 and 2.
October 19, 2010: CT showed several spots on lungs and 1 spot on liver. Liver spot is 2mm, lung spots range from 2mm to 4mm. We don't know if they are cancer or not.
12/15/10: Brain MRI clear
1/7/11: PET/CT
1/13/11: Recurrence in lungs. Start Tykerb
5/13/11: Progression in lungs
6/3/11: Lung surgery to get tumors for chemosensitivity testing.
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01-24-2012, 11:55 PM
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#12
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Courtney, My prayers are for you and your family. Gods blessings to you Wonderful Sis.
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01-25-2012, 12:37 AM
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#13
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Senior Member
Join Date: May 2009
Posts: 510
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Jay just posted this update:
"
Progress
Not much news to report – we are waiting on some test results from Courtney’s cerebral spinal fluid. One working theory is that she has an infection in her spinal fluid which is causing the neurological issues.
Courtney is hanging on strong. She's winning the hearts of everyone in the ICU, and has the best medical team in the world.
I want to relate an anecdote of how Courtney is fighting back. She hasn’t been very verbally responsive – she doesn’t reply to many questions, although she gives you the occasional terse “yeah.”
And so, the nurse asks Courtney: "Courtney, did you swallow your pill?" No reply from Courtney. Not even acknowledgement that a person is in the room.
Again, the nurse asks much louder "COURTNEY, DID you SWALLOW your PILL?"
To whit, my wife yells back "WHY ARE YOU YELLING AT ME?!?!?” I cried laughing. The nurse just smiled.
Today was a special and moving day with immediate family. I’m just wrapping some special evening hours – I offered to read Courtney all of the emails and CaringBridge posts that have been pouring in. With her cute “yeah” of approval, and using Pandora on the iPhone to play some mellow piano jazz, I proceeded to read Courtney your messages… OK, I only made it through 30% of your messages… we paused a lot so I can confirm that she was enjoying the stories (which received several “yeahs”), but I pledge to continue reading them to her every evening.
Since we haven’t determined the exact cause of the problem, we take each day at a time."
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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01-25-2012, 01:36 AM
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#14
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Senior Member
Join Date: Aug 2010
Location: New York, New York
Posts: 1,580
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Let's hope the infection is under control shortly and we have our Courtney back straight away. Thanks, Jay, for keeping us all informed. We are on pins and needles, and hope that our wreath of spiritual love is wrapped tightly around you-
Karen
__________________
World Trade Center Survivor (56th Floor/North Tower): 14 years and still just like yesterday.
Graves Disease, became Euthyroid via Radioactive Iodine, June 2001.
Thyroid Eye Disease. 2003. Decompression surgery in 2009; eyelid lowering surgery in 2010.
Diagnosed: June 2010, liver mets. ER-/PR+10%; HER2+++.
July 2010: Begin Taxol/Herceptin. Eliminate sugar from diet. No surgery or radiation.
January 2011: NED
April 2011: Progression in liver only. Other previous affected areas eradicated. Stop Taxol/Herceptin after 32 infusions.
May 2011: Brain MRI: clear.
May 2011: Begin Tykerb daily, Xeloda twice per day for one week on, one week off, and Herceptin.
November 2011: Progression in liver. All other tumors remain eradicated.
December 2011: BEGIN TRIAL #09-093 Taxol, MCC-DM1 (T-DM1), Perjeta.
Trial requires scans every six weeks, bloodwork and infusions weekly.
Brain MRI: clear.
January 2012: NED. Liver mets, good riddance!
March 2012: NED. Developed SMA (rare blood clot) in intestinal artery and loss of sight in right eye due to optical nerve neuropathy. Resolved when Taxol removed this month.
Continue Protocol of T-DM1 weekly and Perjeta every 3 weeks.
May 2012: NED.
June 2012: Brain MRI: clear.
June-December 2012: NED.
December 2012: TRIAL CONCLUDED; ENTER TRIAL EXTENSION #09-037. CT, Brain MRI, bone scan: clear. NED.
January-March 2013: NED.
June 2013: Brain MRI: clear. CEA upticking; CT shows new met on liver.
July 3, 2013: DISASTER STRIKES during liver ablation: sloppy surgeon cuts intercostal artery and I bleed out, lose 3.5 liters of blood, have major hemothorax, and collapsed lung requiring emergency resuscitative thoracotomy, lung surgery, rib rearrangement and cutting deep connective tissue, transfusion. Ablation incomplete. This life-saving procedure would end up causing me unforgiving pain with every movement I make, permanently, otherwise known as forever.
July 26, 2013: Try Navelbine/Herceptin. Body too weak after surgery and transfusion. Fever. CEA: Normal.
August 16, 2016: second dose Navelbine/Herceptin; CEA: Normal. Will skip doses. Watching and waiting.
September 2013: NED, Herceptin only. CEA: Normal. Started Arimidex.
October-November 2013: NED. Herceptin and Arimidex. CEA, CA125, 15-3: Normal.
December 2013: Something brewing. PET lights up on little spot on liver; CEA upward trend, just outside normal. PET and triphasic liver scan confirm Little Met. Restart Perjeta with Herceptin, stay on Arimidex. Genomic sequencing completed for future treatments, if necessary.
January 2014: Ablate Little Met on the 6th. Happy New Year.
March 2014: Brain MRI: clear. PET/CT reveal liver mets return; new lung mets. This is not funny.
March 2014: BEGIN TRIAL #10-005 A(11)-Temsirolimus plus Neratinib.
April 2014: Genomic testing indicated they could work, they did not. Very strange drug combo for me, felt weird.
April 2014: Started Navelbine and Herceptin. Needed something tried and true, but had significant progression.
June 2014: Doxil and Herceptin.
July 2014: Progression. Got nothing out of it. Brain: NED.
July 2014: Add integrative medical hematologist-oncologist to my team. Begin supplements. These are tumor-busting, immune system boosters. Add glutathione, lysine and taurine IV infusions every three weeks.
July 2014: Begin Gemzar, Herceptin & Perjeta. Happy.
August 2014: ECHO perfect.
January 2015: Begin weekly Vitamin D Analog infusions. 25 mcg. via port.
February 2015: CT: stable.
April 2015: Gem working, but not 100%. Looking into immunotherapy. Finally, treatments for the 21st century!
April 2015: Penn Medicine. Dendritic cell immunotherapy.
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01-25-2012, 05:11 AM
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#15
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Senior Member
Join Date: Jul 2011
Posts: 954
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Re: Building a Freeway of Love for Courtney - TONIGHT!
My prayers are with Courtney and her family.
Paula
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01-25-2012, 05:40 AM
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#16
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Building a Freeway of Love for Courtney - TONIGHT!
I was not on Her2 Support last night so missed the 6pm time, but will be sending up prayers for our Courtney, Chelee, Sheila, Jessica, Brenda, Karen, and for everyone who is struggling with this horrid disease. For Courtney I pray her neurological symptoms will abate and cease whatever their etiology. God's got the day and I see Him holding Courtney in the palm of His hand. May we all feel His presence and comforting closeness this day.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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01-25-2012, 05:50 AM
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#17
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Senior Member
Join Date: Apr 2008
Posts: 1,477
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Re: Building a Freeway of Love for Courtney - TONIGHT!
My thoughts and prayers are with you Courtney and Jay.
Jay- thanks for your posts about Courtney in the hospital. I can just imagine the nurses's reaction to C's question about- why the screaming???
Steph- thanks for your beautiful prayer. It is one that needs printed off and read each day.
k
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01-25-2012, 08:06 AM
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#18
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Hang on in there Courtney.Not only are your sisters in America praying hard but here across the pond we are rooting for you also.
Jay- thank you for keeping us posted. Please let us know how things go.
Ellie
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01-28-2012, 01:02 AM
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#19
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Senior Member
Join Date: Aug 2008
Posts: 327
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Love and light to you Courtney, and to your family. I didn't know about this until late tonight but you'll be in my prayers!
Dianne
__________________
Three years and 5 months NED
Dx: Aug 2008 right breast IDC with 50% of tumor DCIS, Stage II or IIA, tumor size: 2.1 cm
Grade 3
8/9 Richardson/Bloom test
ER+ weakly positive
Alred Score: 4 (suggesting I would strongly benefit from hormone therapy)
PR-,
HER2 positive +++
No vascular invasion
No lymph nodes involved
Surgery: Sept. 9, 2008 -Modified radical mastectomy, right breast. I chose to have a simple mastectomy on the left. Began Taxotere/Carboplatin/Herceptin November, 2008. Finished T/C March 2009. Finished #16 Herceptin Sept. 09. AI's and Tamoxifen made me sick. Began natural Tamoxifen which is Quercetin, I3C and a combo of other supplements. I am also a DES Daughter. There is now a link between DES exposure in utero and breast cancer!
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01-28-2012, 01:26 AM
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#20
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Senior Member
Join Date: Oct 2008
Posts: 88
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Re: Building a Freeway of Love for Courtney - TONIGHT!
Hello Ladies:
Holy Cow - Courtney is OK!!! I am sooo relieved by this recent news on the Caring Bridge - we were all getting worried after not hearing from Jay after a couple of days:
----------------
Dear friends, it is Courtney this time. (Jay is typing and I'm dictating). And I'm so thrilled to be writing you from my bed. These past few days have been the most challenging of my life, I'm not goin lie. But I feel like I'm finally turning a corner. I had a surgery today to repair - of all things on my body - my index finger. I'm writing you to say that my spirits are still here and I need your prayers.
[a note from Jay: After nearly 5 days of not being lucid, Courtney just "woke up" this morning. She's been conversational, lucid, funny, sarcastic, insightful, joyous, tearful, and eagerly asking the nursing staff when we get to leave. It was such a rapid change - I left the UCSF at 11:45PM on Wed night and Courtney wouldn't respond to her name. And Friday morning, she seems to be back. The past 24 hours were some that I will certainly never forget. Courtney and I stayed up from 9pm until 11pm tonight catching up - she had all these questions about the past week, my job, if I've been sleeping, if I've been taking care of myself, if I've been eating, everything. We were transfered from the Intensive Care Unit to a private hospital room overlooking the Golden Gate Bridge and the Marin Headlands -- a perfect place for her to rehabilitate for the coming days. ]
For now, please assume if you don't hear from us over the weekend that , we're engaged in the hard work necessary to try to come back home - it's going to be a lot of physical therapy, sleep, and continued prayers from everyone - but we can do it. Also, because of Courtney and our families' continued challenges, and requests from our medical team, we still cannot accept new visitors at the hospital. Thank you for understanding.
I wish they had a way to express high fives on this site ;-)
HIP HIP HOORAY!
Kim
__________________
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Dx Stage 3C 2005, triple +, tons of lymph nodes as well. FEC, surgery, TCH, rads, herceptin 1 year. And, Aromasin.
2007 - recurrence to medistinal lymph node, Abraxene and Herceptin - took it down 50%
2008 - on Arimidex/Herceptin - stable lymph node.
2009 - stable on Arimidex/Herceptin
2010 - lymph node progression and liver mets.
2010 - went on Gemzar, Navelbine, Herceptin - Navelbine and Herceptin took liver mets down. lymph node slightly progressed.
2010 - did Xeloda & Tykerb - MAJOR progression in liver in only 6 weeks.
Dec 2010 - present - Ixempra/Avastin/Herceptin/Fasoldex - regressing
June 2012 - chemo break
Sept 19, 2012 - start t-dm1. Chose this over going back on Ixempra.
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