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08-13-2010, 03:31 PM
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#41
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Re: Joe passed on this evening
Oh no, I am shocked and very sad to read this news. I am sorry that this horrible disease took your dad from your family.
Please know that your precious mom and you and your sister are in my prayers. What a blessing he was for the time he was here to so many. He will be missed.
Hugs and Prayers,
Lexi
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08-13-2010, 03:48 PM
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#42
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Senior Member
Join Date: Oct 2005
Posts: 476
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Re: Joe passed on this evening
Dear Danielle,
My sincere condolence. Your father is a perfect gentleman and has devoted his energy in helping so many people here. He is for sure an angel who will continue to help many of us who need his direction.
Ann
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08-13-2010, 03:49 PM
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#43
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: Joe passed on this evening
Danielle, Christine & family,
I am so very sorry to read about the passing on of Joe. He gave so much to so many. This site means so much to me and I just felt that Joe was looking over all of the members on this site. My thoughts and prayers are with you all.
Kris.....
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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08-13-2010, 04:02 PM
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#44
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: Joe passed on this evening
Christine, Danielle, Deborah
And all of my Her2 sisters
I have no words, only tears. But also smiles - I can so envision Joe sticking out his tongue and mooning you!
Joe was so relentless in his advocacy - he was like a tsunami that nothing and nobody could stand against.
And always, always....so alive!!!
I feel like I know you, Danielle and Deborah having heard all his tales at San Antonio. And I'm smiling still at his stories of how he wooed Christine!
Wishing all of us, but especially you, love and comfort.
Joe is I'm sure taking up the cause with a higher power now.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-13-2010, 04:13 PM
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#45
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: Joe passed on this evening
I was so shocked and sorry to read this news. Please know that you and your family are in my heart. And as many have said, tears are being shed.
What a legacy your Dad has left. I've only been on the board for a year and I remember him personally responding to one of my questions.
Rest in peace, Joe. I know you will continue to watch out for us.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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08-13-2010, 04:17 PM
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#46
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: Joe passed on this evening
Danielle,
I am so sorry to hear about your father. As you know, he has touched countless lives on this website. His work will always be valued and deeply appreciated.
Asking God to wrap your family is peace and comfort at this time.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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08-13-2010, 05:00 PM
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#47
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Re: Joe passed on this evening
I was truly hoping that I had somehow read this wrong. I haven't checked in to our site for a while and this is my first day back. I just can't believe it. I am so sorry for your family, your dad was one in a million. He will be sorely missed. Hugs to you and your family.
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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08-13-2010, 05:26 PM
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#48
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Re: Joe passed on this evening
Like most of you, I'm stunned. And crying. Joe was The Man. My thoughts and prayers go out to the family. I haven't been able to visit the site as much as I'd like to, due to computer problems, and just yesterday I was thinking about a PM Joe sent to me awhile back about my avatar pic. He liked it and it reminded him of a pond in Jersey that he used to go to. From time to time I would make little joke postings on the site about Joe and I getting together for a few beers and a couple ribeyes off the grill, and I always hoped that one day we would. Even though most of us never met him, you could just feel that heart of gold shining through in every post he made. He was truly an amazing man and will be missed.
__________________
For Nicola
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08-13-2010, 05:51 PM
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#49
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: Joe passed on this evening
Danielle,
I'm sorry to hear this news. Your dad sounded very upbeat when I spoke with him in June even though he wasn't well.
Please tell your mom that my thoughts are with her and your family. I'm glad I stayed with you and her in Chicago, but was disappointed that your dad was not well enough to attend ASCO. I enjoyed meeting your parents for lunch a few years ago in New Jersey.
Your father did a tremendous amount of work for our cause. He will be missed. Besides Dr. Slamon, he's the other HER2 guy.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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08-13-2010, 05:56 PM
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#50
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Senior Member
Join Date: Aug 2008
Location: Virginia Beach, Virginia
Posts: 145
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Re: Joe passed on this evening
Another crack in my heavy heart in hearing this news. Joe was a giant among men and Christine a saint for sharing him with all of us. He and his meaningful work will be sorely missed.
Sending my love and prayers to Christine and all of the family.
Darlene
__________________
12/14/07 IDC ER- PR- HER2+++ LIVER METS AT DX CONFIRMED BY LIVER BIOPSY
01/14/08 2 AC TREATMENTS-NOT WORKING
02/04/08 13 TAXOL, CARBO, HERCEPTIN TREATMENT-EXCELLENT RESULTS!
05/12/08 HERCEPTIN EVERY 3 WKS
08/22/08 BRAIN METS! 8 <5MM
09/17/08 CYBERKNIFED BRAIN METS
10/20/08 BRAIN METS SHRINKING
12/29/08 BRAIN SCAN SHOWS 1 LESION GONE, 7 SHRINKING & STABLE, 1MM ? SPOT
01/16/09 LIVER REOCUR-XELODA/HERCEPTIN
03/02/09 BRAIN SCAN 2 LESIONS GONE, 5 STABLE, 1MM ? SPOT STILL A ?
3/27/09 REGRESSION OF 2 LIVER LESIONS XELODA & HERCEPTIN
06/08/09 STUPID BRAIN HAS 3 LESIONS
06/29/09 CYBERKNIFE
07/01/09 LIVER REGRESSION NO NEW METS
07/07/09 TYKERB XELODA HERCEPTIN
11/11/09 GEMZAR/HERCEPTIN FOR LIVER PROGRESSION
03/22/10 BRAIN MRI GOOD-3 SMALL NECROSIS LEFT FROM ORIG 11!!
03/26/10 CHANGE TO NAVELBINE/HERCEPTIN 3 LIVER LESIONS PROGRESSING IN SIZE
05/21/10 NAVELBINE/HERCEPTIN WORKING!
07/19/10 GOOD BRAIN MRI
08/20/10 LIVER PROGRESSION
09/08/10 TDM1 - NASHVILLE TN
01/10/11 LIVER RESPONDING TO TDM1
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08-13-2010, 06:18 PM
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#51
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: Joe passed on this evening
I'm so shocked and sad to hear this news. My memory of Joe is how very proud of his "girls" he was. Such love and pride of his 3 special ones. He has given so much and accomplished so much for each of us through his hard work and committment. It does seem so very unfair for this disease to take him. Love and prayers to you Christine and to the girls. Joe will be so very missed. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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08-13-2010, 06:27 PM
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#52
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Re: Joe passed on this evening
Standing with my her2 sisters and brothers, I, too, say THANK YOU to Joe and you his family for sharing yourselves the way you have. Joe and Christine gave of themselves so unselfishly and always with graciousness and love for others. God speaks of "not letting your left hand know what you are doing" (Matthew 6:3) reminding us that doing good deeds does not have to be announced....your Father in Heaven knows what you are doing. That was their style........it doesn't surprise me at all that Joe wouldn't want to "burden" (he would see it as a burden) others with His illness.....his way is to do for others and not want attention drawn to himself. That always came through loud and clear when reading his posts.
God's Peace and comfort to you Danielle and your precious family! May memories of the good man your father was be what brings you smiles.
Love and blessings,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-13-2010, 06:29 PM
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#53
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Senior Member
Join Date: Apr 2008
Location: NY
Posts: 240
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Re: Joe passed on this evening
Dear Danielle, Christine & family (that includes our Her2 family) - I'm shocked and saddened at this news - like so many others, I had no idea Joe was battling his own beast - he was an amazing person - he touched so many lives and will be truly missed, may he rest in peace. :-(
__________________
xxoo
Kathy
2/5/08 - dx age 53, post-menopausal;
IDC Stage 1, Grade 1
ER+ 90% /PR+ 90% /Her2++++, BRAC1 & 2 neg
3/5/08 - mast with muscle-sparing free tram;
0/7 nodes clear; Stage 1 lymphedema in right arm
3/11/08 - MRSA infection in abdomen causes large hernia
4/11/08 - Oncotype DX score 22 (intermediate)
4/12/08 - Muga score 67%
4/23/08 - Chemo, Navelbine and Herceptin every 2 weeks
8/20/08 - Last Navelbine infusion! Yay!
1/22/09 - First mammo since dx - unaffected breast CLEAR!
1/30/09 - Second Muga score 63%
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08-13-2010, 06:32 PM
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#54
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Senior Member
Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
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Re: Joe passed on this evening
My heart goes out to Joe's family.
I have been blessed by Joe's life, as he and Christine provided a family here on Her2 support.
The quality of life is always talked about for cancer patients and I just want to say Joe has given me something no chemo could give me.
My life is better and will always be better, because of Joe.
I will fight on.
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!
1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."
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08-13-2010, 06:41 PM
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#55
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: Joe passed on this evening
Wow.........reminds me of Sheila's profile signature line. You never know one's battles. Huge condolences to everyone who knew him well and loved him dearly. I suspect that's a large number.
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08-13-2010, 07:52 PM
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#56
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Guest
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Re: Joe passed on this evening
Danielle,
Mom called me this morning. I'm heartsick for the four of you. I wish I could be there to help.
Your Dad was so proud of your patience and love in caring for him. My love and prayers to you. I'll call on Saturday.
Frank Flanagan
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08-13-2010, 08:32 PM
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#57
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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Re: Joe passed on this evening
I too am completely shocked!! I am so thankful for this board and what your parents have done for all of us. Your father sounded like an amazing person and I am so lucky to have met him on here. My thoughs and prayers are with you and your family during this difficult time. Sending you big hugs!
Sarah
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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08-13-2010, 09:13 PM
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#58
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: Joe passed on this evening
Christine, Danielle and Deborah,
Even when I knew Joe was not doing too well, this news comes as a hard shock to me. Joe was definetly our leader not just for the Her2 group, he was a real motivator to work on the Latinas con Cancer de Seno group in which we are still working hard. Both you Christine and Joe have marked my life for ever, you made me see beyond breast cancer, you both show me a world of companionship, love and understanding with and for other 'sisters' with breast cancer. I am sad, very sad, but I am sure he will be watching over us. God bless you girls and I send you a hug with all my love from this part of the world.
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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08-13-2010, 10:38 PM
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#59
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Joe passed on this evening
I can not believe this - I'm totally in shock. At 3 am I was still on the computer writing an e-mail to a friend in Southern California. I was just now going to step into the shower when I glanced the title of this thread. Needless to say, my shower was postponed.
Joe has lived an amazing life giving selflessly even when he's waging his own battle against (lung) cancer. Life is indeed so, so 'not fair'...
My deepest condolence to the family (our family) of Joe. What an amazing person! What an amazing life!
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 08-15-2010 at 02:47 PM..
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08-13-2010, 10:41 PM
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#60
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Guest
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Re: Joe passed on this evening
The Druther family would like in liue of flowers to send donations:
http://her2support.org/about-us/contact-donate. Also service and funeral will be next Tuesday and Wednesday. Danielle will be posting further information. |
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