Survivor Survey - Page 2

mamacze · 04-24-2007, 06:31 PM

Hi Girls and Marie!
Stage 4 (mets to all 4 lobes of lungs) Diagnosed in April 2004
NED since October 2004
A list like this is just a big bucket full of hope!
Cheers
Kim from CT

karen raines hunt · 04-24-2007, 06:51 PM

HI,

I have also been NED since my mastectomies (Apr '05). My onc recently switched me from tamoxifen to aromasin.

vickie h · 04-24-2007, 07:57 PM

Hi,
I was diagnosed 2/04, stage 3b/4 inflammatory, was given a very poor prognosis (6-12 months) and here I am over 3 years later with last 2 PET scans very good. I have skin mets and am starting on Tykerb/Xeloda. Hope abounds through support, love and God. Love, Vickie

Diana1993 · 04-24-2007, 08:36 PM

I was first diagnosed in 1993. One of these days I will get a signature together, and be able to say, my signature says it all. I have had mets to the phleura, nodules on intestines, liver and stomach. Refused second round of chemo until a tumour was pressing on the ureters (2005) and finally agreed to taxotere and herceptin. I had very few side affects from the taxotere and only runny eyes and nose on occation from herceptin. Taxotere took care of tumours and herceptin keeping them small. I asked to have my herceptin treatments every four weeks so I could holiday in Texas. I flew home after four weeks, and drove home today. I have met so many ladies who are moving on to have 'normal' lives in between all the testing, and Dr. appointments. Do you not feel we are on to something with the latest round of treatments? This site is a huge help and it is a place we can get good information. I check in almost daily and I'm amazed at the courage and insight this group has.
Life's a dance,
Diana.

rinaina · 04-24-2007, 08:38 PM

I was diagnosed March, 2006 and had a lumpectomy April 19, 2006, (my husband's birthday. I finished chemo late July, 2006 and I am still receiving herceptin every 3 weeks with little problem other than bad nails and fatigue. My mammogram was clear on March 1, 2007 and I have made it through the first year with NED.

Debra · 04-24-2007, 09:05 PM

Diagnosed at age 40. IDC 2 tumors

Grade 3 Triple positive. One positive node so staged at IIb.

A/C every three weeks x4 Taxol for 12 weeks--weekly. Just finished 52 weeks of Herceptin last week!
currently on Arimidex/fosomax
Will have first set of scans since diagnosis in May.

Vanessa · 04-25-2007, 10:14 AM

I was diagnosed in early April, 2006, had a partial masectomy on April 21, 2006. I was diagnosed with as stage iv with mets to the liver after a petscan. Started chemo (taxotere and carboplatin) and Herceptin on June 15, 2006. I was NED by September and remain NED at this time. My oncologist discontinued chemo in November, 2006, but I am still on Herceptin.

Judy Smith · 04-25-2007, 12:28 PM

I will be a 3 year survivor in June. I am doing well and still on Hercepting every three weeks. I helps to hear form those who have been around for awhile fighting this disease. Good luck to you.
Judy

sassy · 04-25-2007, 08:01 PM

Its all in my sig!
________
Hildember.Hot Cam

kari · 04-25-2007, 09:05 PM

Here is my story so far:

Mammo and U.S. for suspicious lump lt. breast-Nov/05 (both neg. for pathology);
Lumpectomy-Dec9/05;
Dx(at age 46): Dec 16/05-Stage IIB IDC, 2.2cm, grade 3, ER+/PR+, Her2+++;
Mastectomy&SNB-Jan 11/06 (2 nodes +);
Axillary Nodes-Feb6 (all 17 neg);
4 rounds AC-began Mar6;
4 roundsTaxol-began June20;
25 Rads-Sept26-Oct31;
Tamoxifen-began Nov5 (for 2-5 yr);
Herceptin-began Nov16 (for 1 yr);
Mammo-Nov/06 (neg. for pathology)
1 year Surviving!

Blessings to all you survivors and your wonderful support!
Karen

mindersue · 04-26-2007, 01:33 PM

Isn't it amazing how everyone's bc is different? I'd like to see "age at diagnosis" in all those sigs! Love to all! -Mindy

hutchibk · 04-26-2007, 06:05 PM

My sig is my story, too! Just keep telling the universe that you intend to stick around for a long long time, no questions asked!

Carol Carlson · 04-29-2007, 09:24 AM

Diagnosed 3/04 with IDC
2.2cm tumor with 3 small DCIS
4/18 positive nodes
er/pr/ neg .her2 pos.
partial mastectomy and axillary node dissection
A/C dose dense 4 rounds and 4 of Taxol 1 year herceptin which ended 5/06
last mammo 2/07 showed a few" benign" looking calcification areas near scar tissue. sch. for MRI 6/07
markers fine
NED I think !!!!
3/9/07 marked 3rd year survivor
Carol C

mslinda · 04-29-2007, 05:14 PM

Hi, 10/07 will be two years NED for me. I was diagnosed at 55. My signature gives the info on me.

Blessings and Prayers to all
Linda
S. Mississippi

Cathy1 · 04-29-2007, 06:19 PM

Diagnosed 1999- 10 out of 17nodes- Left B. Mastectomy
Adriamycin 8 months, taxol 2 months.
Arimedex
2003-3 small lung nodules, also between lungs and left axcilla
xeloda and herceptin
Stopped xeloda and herceptin 6/06
NED until 2/2007-
Recurrence in left axcilla- Surgery to remove. Surgeon said he removed 95%.
Also, tiny nodule in left iliac bone and small lung nodules.
Currently on herceptin, femara and zometa.
Doc is waiting for my next scans and if there is progression, I will start back on xeloda.
Had very good results with xeloda and herceptin together.
Lots of prayer, lots of Masses and positive thinking! God Bless!

Sheila · 04-29-2007, 06:57 PM

Thankful for each minute, each day, each week, each year!!!!!!!!!

Erin · 04-29-2007, 10:03 PM

It's all below...

momdeeco · 04-30-2007, 06:30 PM

This Is Me!

IRENE FROM TAMPA · 05-01-2007, 04:35 AM

Jan/1996 - Diagnosed With Infiltrating Ductal Carcinoma Of Left
Breast. Had Modified Radical Mastectomy And Tram Flap
Reconstruction At The Same Time. Was Put On 7 Doses Of
Adriamycine/5-f/cytoxin. In Remission 3 Years.

Jan/1999 - Recurrence In Axila Area On Same Side, Also Mets To Liver.
Several Rounds Of Taxotiere And Had A Stem Cell
Replacement. Started On Herceptin In Dec/1999.

Dec/2001 -recurrence To Liver. Two Tumors.
Stayed On Herceptin. Started Navelbine For Several
Months, Then Gemzar For Several Months, Then
Xeloda.

Sept/2003 - Had Liver Tumors Abalated. In Remission For About 7-8
Months. Tumors Returned By Liver.

July/2004 - Had 1/2 Liver Resected (removed) In Remission For
Another 7-8 Months. Liver Grew Back Clean.

Feb/2005 - Recurrence With A Tumor In Lymph Node Outside Of
Liver. Started On Abraxane For About 7 Months. Was
Put On Taxol/carboplatin. Still On Herceptin Since
1999 (6 1/2 Years)

April/2006 - Second Tumor Pops Up In Same Area. Liver Still Clean.

August/2006 - Started On Trial With Tykerb/xeloda. As Of Last
Scans In April, Am Stable And One Tumor Is Gone And
The Other Has Shrunken Down Some.

So This Is My Story And As You Can See, I Have Survived This For The Last 11 Years And Have Been Fortunate Enough To Have A Good Quality Of Life. Always Keep Your Hopes Up And Keep Your Immune System Strong...and Most Important...live Your Life To The Fullest.

Good Luck To You And Take Care.

pattyz · 05-01-2007, 09:07 AM

This is copied from the IBC page:

Seven (plus) years out from Inflammatory; Four 1/2 w/brain mets....

<HR style="COLOR: #aa8799" SIZE=1>

Jan. '99 Dx'd at age 50. Stage IIIb 

My treatment consisted of: Surgery first, followed by 4 rnds of A/C. No rads.

The entire bottom half of my right breast was 'orange peel' - I had an additional two tumors, inside upper (3.8cm) and lower (1.9cm) quandrants, plus 6 nodes positive of 26.

July 2002 - Recurrance two plus yrs. later. Mediastinal nodes/spot on lung and pelvis. Brain mets dx'd just two mos. later.

Focalized rads for 16 brain mets in batches over course of 18 mos. Successful to treated areas.

Navelbine/Herceptin put body in NED after a few months. Stopped all treatment.

Third recurrance of brain mets treated with Xeloda/Temodar responding by shrinkage and stable to all new eight lesions. Still under X/T schedule coming up on two yrs.

Still NED in body, (knock wood) four 1/2 yrs out, with active/stable brain mets.

Feeling amazed and grateful,
yours truly, ;o)
pattyz