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02-18-2007, 03:31 PM
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#41
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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peace to you Tom, and I am sure that your mom has found hers. She already had it in such a wonderful son.
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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02-18-2007, 07:12 PM
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#42
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Tom, We have all felt through your posts how much your mom meant to you. Although you will never get over missing her and I know there will be a deep void in your life for a long time because so much of your life was spent in caring for her, there has to be comfort in knowing how much she loved you. She was so blessed to have a son like you! You will find great comfort in knowing you did all you could to help her through her battle. We all feel your loss and are so grateful that you took time to post to us even in your pain. Please know that we are praying for you, and we hope to hear from you from time to time. We feel like family and want to know how you are doing. My mom died 50 years ago when I was a very young mother, and though I have missed her terribly all through the years, there are warm and tender memories that have given me comfort. I know you have such sweet memories too and they will sustain you through the years until you meet her again. God bless you with peace and comfort. Hugs, Tricia
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02-18-2007, 11:35 PM
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#43
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Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
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Dear Tom, I am sorry for your loss. You made her and all of us proud. Thankyou and God Bless You. She has made it to her reward. Life everlasing with our Father. Love, Lu Ann
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02-19-2007, 12:36 AM
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#44
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Senior Member
Join Date: May 2006
Posts: 157
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Tom,
I am so sorry to hear about your Mom. My heart goes out to you and your family. May God be with you and carry you in His arms through this difficult time. Your Mom was blessed to have a son so caring and dedicated like you.
Hugs and prayers,
Karla.
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02-19-2007, 02:22 AM
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#45
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Senior Member
Join Date: Sep 2005
Location: Melbourne Victoria
Australia
Posts: 330
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sending good thoughts
Hi Tom
So sad to hear of your loss. I spoke at a "Relay for Life" event on Friday night and mentioned this website and how much support we all give one another. I feel as if I know you well and your mother too and yes she was very lucky to have ason like you. Please keep posting as you remain a member of this family.
Kind regards
Jackie (down
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02-19-2007, 04:15 AM
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#46
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Senior Member
Join Date: Sep 2005
Location: .
Posts: 211
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Tom I am so sorry for your loss - your mother would have felt blessed to have such a wonderful son.
love
linda
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02-19-2007, 06:24 AM
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#47
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Dear Tom
I was away for almost 2 weeks and just returned. I am so sorry about the death of your dear mother. She is living with new angels now since you were truly an angel living on earth.
With deepest sorrow and sympathy.
Becky
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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02-19-2007, 07:35 AM
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#48
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Senior Member
Join Date: Sep 2005
Posts: 208
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Dear Tom, Words cannot express, am so sorry for the loss of your wonderful Mother, Prayers and hugs, Diane
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02-19-2007, 09:52 AM
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#49
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Senior Member
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
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Tom-
I am so sorry to read of your loss. I echo the comments of others who felt from the beginning that you had a special bond with your mother, and she was very fortunate to have such a caring son.
Your family is in our prayers.
Regards,
__________________
Shell
init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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02-19-2007, 10:44 AM
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#50
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Senior Member
Join Date: Sep 2005
Location: OH
Posts: 385
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My sincere condolences to you...I hope you have a support system around you that can help you get through this as you did for your mom. You know you can count on us. Also, having experienced the loss of my husband within the past year, the loss is extremely difficult, but I knew my husband could not have had better care and I had no regrets -- as I'm sure you feel about having cared for your mom, and having no regrets. Take care.
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02-19-2007, 11:17 AM
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#51
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Tom, I am heartbroken to hear about the passing of you beloved mother. She is equally as lucky to have been loved by you!! You will be in my thoughts and prayers.
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02-19-2007, 12:29 PM
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#52
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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Tom, Tom, Tom
Oh my goodness, I am so sad, really, really sad for you and your family. What a difficult and emotional transition you are facing. I KNOW without ever having met your mom that she is an amazing person. I know this because of 'knowing' you. You embody ALL those qualities that you love about her. Please take care of yourself. Ask for help and know we all have cyber shoulders for you.
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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02-19-2007, 02:59 PM
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#53
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Dear Tom,
I am so very sorry for your loss. Please know that I am thinking of you now.
With tears,
Lexi
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02-19-2007, 04:02 PM
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#54
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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(((Tom))), I am so sorry to hear about your mother's passing--she sounded like a dear lady and she sure was lucky to have you in her life. Like so many others on this site, I will also be praying for you to find peace and strength in the days ahead.
__________________
Audrey
diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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02-19-2007, 06:13 PM
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#55
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Senior Member
Join Date: Jan 2007
Posts: 138
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Tom,
I am very sorry for your loss.
I am sending you healing prayers, peace and strenth.
Karen
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02-19-2007, 09:12 PM
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#56
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Tom,
Sympathies as well. From the posts and pics I can tell your mom had an amazing spirit. Someone we all wish we could have known in person. It's kind of selfish, but I'm glad it wasn't the beast.
Please continue to visit. Your posts were very informative. Do take care of yourself. Do something nice for yourself, you deserve it. Thanks for being there. Bev
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02-20-2007, 08:15 AM
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#57
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Tom,
Just wanted you to know that I am thinking of you with a heavy heart. May your days ahead be filled with Love of Family, friends and loving memories of your Mom.
Thinking of You
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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02-20-2007, 11:51 AM
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#58
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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Dear Tom,
I am so terribly sorry to hear of your loss. We all feel like we knew her through you. Your love and devotion were the greatest gift a mother could have. Take care of yourself and know I'm sending heartfelt prayers your way.
Love, Kim in CA
__________________
Diag. Feb 1997 4.5cm IDC <10%ER+, PR-. 5 out of 36 nodes +. Mastectomy followed by 3 rounds Adriamycin/Cytoxin.
5/1997 Hi Dose Chemo w/ Stem cell rescue. Spent 4 weeks in isolation ward. Then 6 weeks radiation.
9/2001 widespread mets to liver. 8 mos Taxotere/Herceptin brought me almost to NED. Stop Taxotere & add Femara .
11/2002 liver resection to remove spot that turned out to be necrosis. Officially NED!
7/2003 Tumor markers rising add Xeloda Disastrous reaction, 8 days hospital, but tumor markers came back to normal!
June -Dec 2004 UW Vaccine Trial.
7/2005 MRI single 11mm brain met
8/2005 Gamma Knife.
Brain MRI @3 months NED!
2006-2011 brain/body still NED
8/04/11 Taking Herceptin break, will monitor with tumor markers.
6/20/12 Tumor markers begin to rise. CA15-3 is 31.3 and Her2 Serum is at 17.1 Decide to repeat in one month.
7/23/12 CA15-3 now 49.3
Her2 Serum 26.8
8/6/12 Back on Herceptin
CA15-3 now 76
Her2 Serum now 49
11/7/12 Add weekly Taxotere for 4 cycles
2/2013 Stopped Taxotere added Perjeta. MRI shows approx. 50% reduction liver mets. CA15-3 still elevated @ 55. Will continue on just Herceptin & Perjeta.
November 2014 Continuing on Herceptin, Perjeta, and
Femara indefinitely. Guess I'm NED again, but watching those tumor markers carefully!
Dec. 2015 PET scan reveals mass in perirectal area of abdomen.biopsy confirms. Still Her2+, but no longer ER+. Bye bye Femara
Jan 2016 Begin Kadcyla
March 2016 PET scan shows tumor now barely visible, still NED everywhere else.
2016/2017 continue Kadcyla
November 2017 brain MRI reveals small focus of T2 hyperintensity with possible 4mm enhancing nodule. Short term follow up MRI suggested. Stay tuned...
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02-20-2007, 04:30 PM
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#59
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Member
Join Date: Nov 2006
Posts: 8
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My Sympathies
Hi Tom,
I recently lost my mom to the "beast". You might have remembered her as Hope on the Her2neu board. I remembered all your posts and thought what wonderful advocate you are just like I was with my mom. It's good to know that they are good daughters and sons out there to take care of our parents. My deepest sympathies go out to you. Take Care, Julissa 
__________________
Julissa Trahan, daughter of Hope Trahan ,who was a loving mother and fellow Her 2 neu member.
RIP 12-6-06
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02-20-2007, 06:01 PM
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#60
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Senior Member
Join Date: Apr 2006
Location: Boston
Posts: 66
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Dear Tom,
I am sure your mother felt your deep love for her every day -- she must have been so very proud to have such a caring, open hearted son. You are a very exceptional man, and we are all so very sorry for your loss. Please take care of yourself, and keep in touch through this board - we all do feel like we know you and knew your mother, because you write with such honesty and heartfelt feeling.
With deep sympathy,
Emmay
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