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05-26-2010, 10:47 AM
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#61
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Senior Member
Join Date: Nov 2009
Location: western ma
Posts: 280
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Re: Update on our sister Sheila
dear sheila- i haven't been on much because of my mother's pulmonary embolism and rehab and just read all this today. i can't believe all you have just been through and relieved to hear you are home. i truly hope this never happens again and that your rocky road is at an end. rich has talked a lot about the metronomic chemo. may it work for you! valerie
__________________
8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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05-26-2010, 11:37 AM
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#62
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Senior Member
Join Date: Jun 2007
Posts: 216
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Re: Update on our sister Sheila
Sheila,
So very, very glad you are home.
Thinking of you so much. You are an inspiration to me.
Janie
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05-26-2010, 12:26 PM
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#63
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Senior Member
Join Date: Mar 2006
Posts: 4,778
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Re: Update on our sister Sheila
Best wishes for a swift recovery. Metronomic chemo should be gentle from what I read--and gentle is something you probably wouldn't mind right now!
Take care of yourself!
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05-26-2010, 01:30 PM
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#64
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Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
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Re: Update on our sister Sheila
I'm so glad that you are back home. Thank you for that good news. Sounds like the treatment for you is a good one. Keep getting stronger and feistier, OK?
Now, to more important issues which do you like better, The Price is Right or Wheel of Fortune? Myself, I'm a wheel girl!!!
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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05-26-2010, 05:58 PM
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#65
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Senior Member
Join Date: Sep 2007
Location: Near Chicago
Posts: 196
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Re: Update on our sister Sheila
Hi Sheila,
Glad they were able to help. Sad to hear it had to happen. Glad that Donna was able to track you down!
As I recall there is possibly more treatment to come? [Re nodes?]
Regardless, you are amazing, a role model for me and obviously for many others.
With love,
Melanie
__________________
Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
Lymphedema Diagnosed 5/10/10 (almost 3 years post cancer diagnosis)
Lymphedema Rehab 9/10/10 - 11/10/10
Six years NED...7/7/2013!
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05-26-2010, 10:50 PM
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#66
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Re: Update on our sister Sheila
Dear Sheila,
What a journey in your space suit. So sorry you had to go through this, but so happy you are home now. Keep on getting better. Your team is with you!
Hugs, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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05-29-2010, 04:12 PM
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#67
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Re: Update on our sister Sheila
Oh my goodness. I haven't been on in a few weeks and last I was on I asked if anyone had heard from Sheila because I was worried. I am so sorry to hear this horrible update. I am sorry to hear the latest challenges Sheila is dealing with. Enough is enough already. If anyone is strong enough to beat this it is her. My thoughts and prayers are many and constant for this beautiful her2 sister. I hope to hear some better news soon. Until then we are all pulling for you Sheila. I will never forget how you reached out to me early on and always found a way to make me feel better. Now you get better because last we talked we were going to make plans for lunch. So you owe me a lunch so get better.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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05-29-2010, 09:25 PM
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#68
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Re: Update on our sister Sheila
Prayers continue for you dear Sheila.Glad you arehome in your own bed recovering...many gentle hugs,
Marcia
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05-29-2010, 11:23 PM
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#69
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Update on our sister Sheila
Sheila,
I am thrilled to hear you are home where you belong.
Know you are thought of dear sister and prayers are with you.
Sending a big hug.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-30-2010, 05:17 AM
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#70
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Senior Member
Join Date: Apr 2010
Location: Louisiana
Posts: 53
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Re: Update on our sister Sheila
I'm new on this site, but my prayers today (Sunday, May 30) are for Sheila! May God heal you today!
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05-30-2010, 05:29 AM
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#71
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Senior Member
Join Date: Oct 2005
Posts: 215
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Re: Update on our sister Sheila
Just got back from my vacation in Scotland and was shocked to read about your ordeal. I just know you will be stronger than ever, hugs and Blessings , jeanette
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05-30-2010, 02:14 PM
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#72
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Update on our sister Sheila
So relieved to hear you're home Sheila  Our thoughts are with you, feel much better soon!! x
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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05-30-2010, 08:54 PM
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#73
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Update on our sister Sheila
I haven't been on the board for a while and I have missed so much. Shelia I am so sorry that you had to go through all that. What a nightmare that must of been...how quickly things can change with this darned disease we battle. I am glad you had such a great team of doctors caring for you---and so pleased to hear your feeling so much better.
Shelia you have certainly had more then your share this year. You are one VERY tough cookie and such an inspriation to me and so many others here. After going thru SO MUCH I couldn't help but chuckle when you mentioned you can easily go seven days without washing or combing your chemo hair. You sure didn't lose your sense of humor! lol That's one Tuesday you will never forget...you must not think you have enough going on in your life so wanted to spice it up a bit. Ha! In all seriousness...that really is too much...I am so thankful you are ok. Metronomic Chemo sounds like the way to go right now...much easier on the body, and constant enough to kick cancers butt. I will be keeping you in my thoughts and prayers as always.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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05-31-2010, 04:50 AM
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#74
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Update on our sister Sheila
Glad you are back home and battling on against the damn disease.
At every level you are an inspiration.
Ellie
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05-31-2010, 05:48 AM
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#75
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: Update on our sister Sheila
Thank you for the update Donna!
I was sad to hear this about Shiela! CRAP! I hate this FLIPPING Cancer!!!!!!!!!!!!!!!!!!!!!!!! It does suck - royally sucks!
I will send some great healing energy out there across the sea and then the big Atlantic ocean back to you awesome girls in the US!!!!!!
Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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05-31-2010, 03:48 PM
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#76
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: Update on our sister Sheila
So glad you are back home Sheila. I'll be keeping you in my thoughts and prayers.
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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