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Old 05-16-2010, 08:13 AM   #1
Myra Lynn
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Question about Vitamin C

Does anyone know what the prevailing wisdom says about Vitamin C through food or supplements once you're finished with chemo & radiation? I know about the Sloan Kettering study, but don't know if I can resume normal eating. I would like to eat oranges again without guilt! I have also stopped taking any Vit. C supplements.
I am on Herceptin until Sept. and Arimidex for the next 5 years.
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Mammo 6/2/09
left breast biopsy 6/12/09
Bad news 6/18/09!
7/17/09 lumpectomy
Stage 1- 0.5 cm IDC , DCIS 25%
HER2 +++, ER+95%, PR+10%
8/09 Muga Scan 65
8/19/09 beg. TCH 1Xwk. 12 wks.
last chemo 11/26/09
IMRT - 33 txs. 1/12/10 to 3/11/10
Herceptin 1X week for 1 yr. Ends 8/10
Femara 3X wk. started 1/13/10-t
oo much pain in middle finger; switched to Arimidex 4/28/10 -permanently swollen, but no pain. Will continue for 5 yrs.
10/2/11 CT/PET scan due to elevated CA27.29 of 40.5.
Hot spot in irradiated area. Score goes down again to normal range. Subsequent blood tests go up and down until 2 tests in row at elevated levels of 42.5 & 45.7.
7/9/11 Intermittent vertigo. As a precaution contrast MRI to head. NED.
8/15/11 Erratic CA27.29 may be result of new auto immune disease, bullous pemphigoid (skin problem)
Off Arimidex for 6 wks. to see if trigger finger improves
Switched to Aromasin, 3X wk., but affected my liver.
On 2/23/12 taken off AI's.

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Old 05-16-2010, 11:53 AM   #2
ElaineM
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Wink Re: Question about Vitamin C

Hi,
I don't know about the study, but I would like to share something for thought. So many foods (especially fruits and vegetables)have vitamin C that it would be very difficult to eliminate vitamin C from a diet completely. I would say go ahead and enjoy an orange now and then.
Take good care of yourself.
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Old 05-17-2010, 05:30 AM   #3
Karen Wheel
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Re: Question about Vitamin C

I know nothing about this study --- I'm not sure why anyone would want to cut out Vitamin C. All the diet and nutrition books (and most the website information I have read) also the Naturopath that I consulted --- all say lots of Vit C is very important for us fighting cancer.

Cancer Battle Plan Sourcebook talks of 5,000-10,000 mg per day ---
Dr. Gerson's Diet Plan - they have 13 fresh juices done daily (one is straight orange) and they add another 1.5 gm (1,500 mg) of Vit C on top.
Beating Diet with Nutrition talks about Vit C...

So, after consulting with my Naturopath --- I settled into taking 5,000 a day (powdered in my fresh juice)--- plus I know I get more in natural format in the fresh fruits and vegetables I eat and juice.

I would like to read what they are talking about in this study - it could be the type of Vit C that is ingested.

From the book " The Gerson Therapy - The Amazing Nutritional Program for Cancer and other Illnesses by Charlotte Gerson: "Inasmuch as the Gerson diet contains large amounts of natural vit C a routine daily supplementation with this vitamin should not be necessary, however, Vit C is the prime nutrient when it comes to overall support of the immune system. Vit C is used supplementally as a tool for fighting infection, and as part of a pain-relieving triad of natural and nontoxic medications. It also offsets free radical pathology created by the administration of chemotherapy or radiation therapy.
The Gerson Therapy's dose of vitamin C cones in orally administered crystalline (powdered) form such as Bronson's Vitamin C in an amount of 1 to 1.5 grams per day. NEVER use calcium or sodium ascorbate, since these two particular products will bring about serious detrimental effects. High doses of intravenous vitamin C are associated with long-term survival in patients with a variety of cancers, even after the tumors have metastasized." (the book then footnotes to Null, G. The Complete Encyclopedia of Natural Healing, New York Kensington Books, 1998, p.102.

I have also read a LOT that Vitamin C is a miracle worker - that high doses are not dangerous and can be linked to recovery from many immune system disease ---

I vote to use it - and not sparingly!

Karen
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2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!


7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!

2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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Old 05-17-2010, 12:41 PM   #4
StephN
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Question Re: Question about Vitamin C

Just realize that excess vitamin C is expelled from the body on a a daily basis. My understanding is that our bodies can metabolize only a certain amount of any given vitamin or supplement. The rest just gets flushed.

I have known a couple of women with BC who tried megadoses (even drips) of vitamin C. It did not help them in the end.

Does anyone know just HOW vitamin C can work against OUR kind of cancer??
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MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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Old 05-18-2010, 06:34 AM   #5
TanyaRD
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Re: Question about Vitamin C

The role of vitamin C in cancer treatment and prevention remains unclear. Some studies have demonstrated that high doses of supplemental vitamin C can interfere with the effectiveness of certain chemotherapy agents (From MSK: Vitamin C can reduce the effectiveness of many antineoplastic agents, include vincristine, doxorubicin, methotrexate, cisplatin, and imatinib.) The amount of vitamin C consumed in the average diet is not enough to worry about. I do not advise my patients to avoid fruits and vegetables during chemo/xrt treatment but discourage use of vitamin C supplements as a precaution. I do caution against some of the special formulated juices (including excessive homemade juicing) designed for a high dose of antioxidants. Even when chemotherapy is complete I do not put vitamin C supplementation at the top of my list due to limited and conflicting research on the benefits. I would rather my patients obtain the vitamin c and other nutrients in their diet. We have a lot of definitive research demonstrating the benefits of high fruit/vegetable intake in breast cancer.
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Old 05-18-2010, 10:16 AM   #6
Westcoastgirl
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Re: Question about Vitamin C

My readings have encouraged me to take only Fish Oil, Calcium and Vit D supplements. I have even stopped taking a multi vit/min. There is too much conflicting data that I have decided to make sure I have an extremely healthy diet with lots of leafy greens, etc. It is not hard to take in all the required vitamins in a good, well rounded wholesome diet. We estrogen + girls need to be extra careful but as long as we ingest the suspect elements in food as opposed to supplements we are pretty safe. Good to read the labels though. Carolyn
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12/30/08 diagnosed high grade IDC & DCIS
ER/PR +, Her2 (+++) post menopausal/age 57
1/15/09 double mastectomy/skin sparing; no evidence of vascular/lymphatic invasion, 8neg/8 nodes (tumor 8.0mm)
2/16/09 given portacath/removed 4/30/10
2/18/09 "surprise" 2.0mm tumor/positive borders~
completed 28 rads 10/09.
2/23/09 until 4/19/10~treatments every 3wks (4 Cytoxan + Adriamycin, 4 Taxol + Herceptin, 13 Herceptin alone)
8/09 osteoporosis diagnosis/Zometa 3 yrs of 1x/6 months
Chemo side effects; Deafness, kidney function loss
11/09 began Aromatase Inhibitor (Femara)/Feb2014, stopped Femara early/after 3 mos began Tamoxifen for 8 mos to complete 5 years
11/10 Reconstruction, directly to silicone implants
12/11 nipples by skin graft/Right breast size reduced

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Now my troubles are going to have trouble with me!
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Old 05-19-2010, 11:01 AM   #7
Rich66
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Re: Question about Vitamin C

Have a thread of Vit-C bits here:
http://her2support.org/vbulletin/showthread.php?t=41852
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