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06-21-2010, 11:51 PM
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#1
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Senior Member
Join Date: Nov 2007
Location: We presently live 1 1/2 hrs fr a city. in manitoba canada
Posts: 148
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been awhile..doing great
just wanted to thank so many of you that were there to support /talk me down.
My moment where ca just surprised me was when I realized i will soon be squabbling with my 12 yr old son.
I had wondered if i would see that day! Well its coming up.
I feel my newself, minus cognitive malfuntions at work , there are those achs and pains and well there is that fatigue but hey other then that its great . Can hardly believe its soon to be three yrs. thank you for those that rush in to help. Your brains, stories, wisdom, kind words,which i still refect on.
There are still days i wonder whats next but most days are good days. Wondering if we will stay on the AI few extra years.
Best wish to you all, lov ya and thankya
suzanne
__________________
suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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06-22-2010, 04:31 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: been awhile..doing great
Suzanne - Thanks for posting your good news that you are doing well. Having raised 2 sons I can say you are entering some possible challenging times - yet fun and rewarding as well. Keep strong, enjoy that young man, and good health to you.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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06-22-2010, 04:32 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: been awhile..doing great
Hi Suzanne!
I am so happy everything is going well for you. I was just thinking about you but I figured you were doing just fine.
I did want to comment on your reference to staying on the AI alittle longer. I am on Arimidex. It will be 5 years in September (was on Tamoxifen until I got my ovaries removed). I just saw my onc on June 4 and he said he wants to keep me on another year and we'll go from there. He is hoping that a trial will finish up that will give some data that staying on is beneficial. He says that if the data says that it isn't, then we will stop then. So, I think I will be on at least one extra year and I think if there is still no data, he will continue. I have no appreciable side effects from it and I was 45 when diagnosed.
Sometimes I think about whether or not to continue as I wasn't greatly hormone positive (only ER+ - 50%) but for now, I'm good (and my 5 yrs on it isn't up until September anyway).
Always remember that being a survivor means you are still alive to live.
Love, Becky
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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06-22-2010, 04:50 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: been awhile..doing great
Hey Suzanne!
So good to hear from you. I can hear the joy in your voice. So that son you worried over is now a different kind of worry! Isn't it wonderful! My sons are 18 (tomorrow!) and 19--both out of high school and off to college. Even the tough times were wonderful, because I was there to experience them!
Enjoy all the wonderful times you have coming up. The years pass so quickly.
Life is good.
Enjoy!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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06-22-2010, 08:27 PM
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#5
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Senior Member
Join Date: Nov 2007
Location: We presently live 1 1/2 hrs fr a city. in manitoba canada
Posts: 148
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Re: been awhile..doing great
Thanks guys
It is wonderful to see my children grow into their own person...as a matter of fact Joshua lost his glasses this week, imagine that. I want to be upset so he learns to be responsible but.....life goes on. A moment i will remember. My daughter rollerbladed to school for the first time today. she is in grade 2 . I was freaking out.
I wish everyone well, thanks to all my her2 family.She was telling me "its ok mom, i fall all the time"
suzanne
__________________
suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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06-24-2010, 08:40 PM
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#6
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: been awhile..doing great
Isn't it the truth? We all fall all the time. And it's OK. The important thing is to get up and try again. [As I'm sure that's what you'd taught your daughter ...]
Thanks for the wonderful posting.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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