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Old 04-06-2007, 09:07 PM   #161
LindaC
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Location: Live in New York Monday through Thursday.Friday,Saturday,&Sunday Live in Cape May,New Jersey.
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DX October 18 2006
Left breast cancer lymph nodes mets to liver and bones.
Carboplatin 1 dose
weekly taxol and herceptin
once a month zometa
February 21 pet scan done on February 5 2007 showed everything clear except bones.

LindaC
__________________
DX October 18,2006
Changed doctor for second opion
Dx November 2,2006
three tumors left breast,lymph nodes involed don't
know how many.Kidney failure postponed my surgery
which gave the doctors the opportunity to run test.
FishTest showed that I have her2 positive, mets to liver and bones.
Dx December 14,2006
one dose carboplatin
now once a week herceptin,taxol
once a month zometa
February 5,2007 pet scan showed everything good except bones
5-16-07 muga scan
5-17-07 pet scan
Everythig was clear taken off of zometa,chemo
herceptin every three weeks
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Old 04-09-2007, 10:29 PM   #162
Melissai
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Dx Jan 2006 Age 36

Multi-focal IDC (4 tumors largest being 3.0cm) left breast
DCIS right breast
ER+(46%)PR+(75%)
Her2+ Immunochemistry-Borderline, FISH 2.1
Grade 2
Blood/lymphatic invasion
Sentinal Node Neg. Left breast
Bilateral Mastectomy 2/28/06
4 AC/ 4 Taxotere/weekly herceptin (last tax on Aug 28,2006)
Herceptin every 3 weeks until June 07
Lupron Injections every 3 months and on Arimidex
All scans clear
BRCA2+
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Old 04-10-2007, 01:20 PM   #163
gin-tx
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Smile Date of diagnosis

Dear Melassi,

I was originally diagnosed in Dec, 1995, had lumpectamy followed by radiation. Second diagnosis on April 2006, still getting Herceptin every 3 weeks, Aridia every 6 weeks. I'm finding I am very fatigued after treatments, takes 2-3 days to get up to speed again. Keep me informed of your progress and how things are going with you. This site is so wonderful to keep up our morale, learn of others in similar situations, etc.

ginkott1@aol.com
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Old 05-02-2007, 04:51 PM   #164
gin-tx
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Smile Date of diagnosis

Dear Catherine,

I too was diagnosed in April 2006, first bout of BC in 1995. Had been free for 10 yrs. This time it's more aggressive, had biopsy which surgeon thought looked fine. Three days later he called it was malignant, had wider margins done, also bone scan which revealed something on spine. Had MRI, was diagnosed with Stage IV metastatic cancer. Had 18 radiation treatments to spine and lungs. Then began Herceptin with Aredia. Still getting every 3 weeks, last CT was no change but nothing new, due for another next month. This has not been a good week, have not felt so hot. Keeping in contact with onc, trying various meds. Keep me informed of how you are doing. We all need to support each other.

ginkott1@aol.com
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Old 05-02-2007, 05:07 PM   #165
lilyecuadorian
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Location: CHARLOTTE NC USA Home town (ECUADOR) South America
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april 18-07

diagnostic on April 18/06

and the rest is on my signature
__________________
Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 05-02-2007, 05:23 PM   #166
fullofbeans
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Diagnosed June 06 with BC stage 1/2 two lumpectomies (until clean margin). Aug 2006 stage 4 (liver mets), I beleive the rest is in my signature

Cheers
Kx
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
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Old 05-03-2007, 06:20 PM   #167
Hazel Joyce
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My lump was found on routine mammogram, no palpable mass. Core needle biopsy done, diagnosed 11-17-06 with IDC. I had a lumpectomy and lymph node dissection on 12-20-06. 3 cm tumor, Grade 3, 8 positive nodes. Stage IIIA. ER/PR-, HER2 +++ (avg 20 copies per cell). I have a chest port. I had 4 cycles of Adriamycin/ Cytoxan. I had 12 doses of Taxol, and will get a year's worth of Herceptin. 35 radiation treatments. H was held for 4 weeks, and onc says she will add it on at the end. So, I'll finish H in May 2008. I didn't work much in 2007, quit work entirely in June. I am ambivalent about returning.
So far, no recurrence or spread. My onc doesn't order scans unless symptoms appear. Lab work has been good. Neg CT chest and brain MRI in July.

Last edited by Hazel Joyce; 12-31-2007 at 12:43 PM.. Reason: Update info
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Old 05-04-2007, 12:35 AM   #168
mcgle
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Still NED 18 months later (I hope!).

Please read my signature.

Mcgle
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Old 12-26-2007, 05:28 PM   #169
RhondaH
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Smile Bump

Thought I would like to update. Thank you.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 12-26-2007, 06:22 PM   #170
gin-tx
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Dear Rhonda,

I was diagnosed in April 2006, first diagnosis in Dec 1995. I was cancer free for over 10 yrs, then it came back more aggressive. Still getting herceptin with aredia (for bones) as I had a tumor on spine which changed diagnosis to Grade IV. Am holding on so far, but seem to catch a lot of viruses that are going around. Evidently my immune system is not as good as I had hoped, will talk with onc about it.

Hope you continue to do well, keep me informed.

ginkott1@aol.com
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Old 12-26-2007, 07:44 PM   #171
dhealey
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Location: moved to Lancaster, Pa in June, 2010
Posts: 576
I had a normal mammogram July 2006, found lump in my breast myself Oct. 2006. Had lumpectomy Friday 13th, 2006, Oct. 20th, 2006 Left breast mastectomy, 2.5 cm tumor, negative nodes, ER/PR positive, Her2 Positive comfirmed by FISH. Stage IIA. Started 4 rounds A/C Nov. 2006 followed by 4 rounds Taxol/Herceptin. Continued with herceptin until Jan 8, 2008. Was started on Arimidex March 2007. June 2007 prophlactic mastectomy Right breast (no reconstruction) Stopped Arimidex Aug 2007 due to severe joint pain and was started on Aromasin stopped this Dec. 2007 due to severe joint pain and bruising. Brain MRI Oct 2007 showed pineal cyst no cancer/ PET SCAN Dec. 2007 negative. Now have lump in Right side of neck, onc thinks this is a lymph node, but all test including tumor markers normal. When all this started I was age 52 now 53 and still going strong or trying too!!!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 12-26-2007, 11:33 PM   #172
Joanne S
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Location: Detroit Metropolitan Area, Michigan
Posts: 592
Smile My breast cancer infor

Rhonda, Following is my breast cancer information.
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.



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Old 12-27-2007, 05:02 AM   #173
michka
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Post

See my signature. This is an interesting initiative Rondah! I see that I am not the only one who had a mammo 1 year or less before the finding of a large tumor by herself. Who knows what the reliability of a mammography is? do tumors "explode" in one year? You read everywhere that tumor grow slow and they are there about 10 years before we can see them.
This drove me crazy of anger and despair. My mother had BC, my aunt and cousin died from it so I thought I was serious and would catch a cancer at the beginning. And they always told me during the 10 years I had mammos that my breast were easy to read.
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 12-27-2007, 06:25 AM   #174
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Arrow Thought i responded to this but did not..

My 50 year old husband's journey is in his signature. Nice post>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 12-27-2007, 01:43 PM   #175
Sueinuk
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Diagnosed in 2003 with bc in right breast. Had chemo first followed by surgery then rads. Re-diagnosed two years later with local recurrence. Stage 3. Now on Herceptin and Capcitebine. NED.
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Old 12-27-2007, 02:55 PM   #176
theresaw
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Wink You will also see this in my signature

One thing I didn't put on my sig. was that I am er-/pr-.
__________________
Diagnosis bc june,2006.
3months of taxol and herceptin, nupregin shots weekly. Now herceptin only, her2 positive. stage III. Left breast, mastectomy with reconstrutive surgery.
Herceptin until 10/06. Due to low echogram numbers had to stop Herceptin indefinetly.
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Old 12-28-2007, 07:44 AM   #177
DEBBIE S
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Posts: 40
Hello All ...
I was first dx in Oct. 2004 ; I had a routine mam. in April 04 and was called back in for a follow-up with a magnification of test and was then
told to come back in 5 months ... I do belive if they had done an ultra-
sound my tumor would have been found .. but hindsight is 20/20 ...
Was dx Stage 4 with 3.2 cm tumor and spot on liver ....
HER2 +++ ER - PR -
Currently doing hercp every 3 weeks and my onc has agreed to let me do
chemo ( taxol & carboplatin ) every 6 weeks ...
__________________
dx stage 4 ... 11/04
3.2 cm mass breast & liver mets..
her2 +++ ; er- ; pr -;
11/04 treated with hercp, taxol & carboplatin - every 3 wks
3/05 ned - stopped chemo; hercp only
5/05 reoccurence left breast
6/05 added navelbiene w/ hercp every other wk
7/05 mascetomy
12/05 ned ; same regiment- every 3 wks
3/06 & 7/06 ned
9/06 stopped navelbiene.. hercp only.. every 3 wks;
10/06 pet scan shows positive lymph node in pec
12/06 PET no change;
4/07 scan showed 4 abnormal nodes in right pec area ... these have increased in activity since last scan... will start back on weekly navelbeine & hercp
7/07 PET done ..this time it showed new nodules in both right & left lung area as well as increased activity in pec area..
8/07 started Taxol & Carboplatin with Hercp every 3 wks
10/07 PET done ...Great Report ... NED ....
11/07 continue with Hercp every 3 wks & do Taxol & Carboplatin every 6 wks
4/09 still on same regiment; 1 positive node in left lung and right pec area
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Old 12-28-2007, 09:04 AM   #178
dlaxague
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Posts: 221
I was just going to post my signature but it says my message is too short if I don't type something.

Debbie Laxague
__________________
3/01 ~ Age 49, occult primary announced by large axillary node found by my husband. Multiple CBE's, mammogram, U/S could not find anything in the breast. Axillary node biopsy - pathology said + for "mets above diaphragm, probably breast".
4/01 ~ Bilateral mastectomies (LMRM, R simple) - 1.2cm IDC was found at pathology.
5 of 11 axillary nodes positive, largest = 6cm. Stage IIIA
ERPR 5%/1% (re-done later at Baylor, both negative at zero).
HER2neu positive by IHC and FISH (8.89).
Lymphovascular invasion, grade 3, 8/9 modified SBR.
TX: Control of arm of NSABP B-31's adjuvant Herceptin trial (no Herceptin): A/C x 4 and Taxol x 4 q3weeks, then rads. Arimidex for two years, stopped after second patholgy opinion.
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Old 12-28-2007, 11:02 AM   #179
romo9
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Diagnosed oct 2004 her+++ 3cm tumour 18 positive nodes. Chemo,radiotherapy. herceptin 2 years. 3 years NED. Romo9
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Old 12-28-2007, 04:21 PM   #180
tdonnelly
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Location: BridgeView IL
Posts: 116
Dx: 10/2006 Infiltrating Carcinoma (Ductal) with Lobular features
Age: 46 2.1 cm Stage 2 HER2+ 4.3
Lumpectomy/Right Breast
4 cycles of A/C and 4 cycles of Taxol
Completed to date 9 cycles of Herceptin:every 3 wk/1 hr. 630mcg
28 Radiation treatments

Status: Neuropathy in fingers/toes - Ongoing
Bone/Joint pain in knees and legs - Ongoing
(Bone Scan - Negative for Mets 10/07- Deg. Arthritus
Edema in legs - Ongoing
Harsh cough
3 cm cyst on Scalp - to be biopsied
2 suspicious moles on scalp - to be biopsied
TSH Level (Hypothyroid) remaining high during Chemo and
Herceptin treatments (175 mcg/purple pill)

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