| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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09-02-2007, 06:53 PM
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#21
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Senior Member
Join Date: Jan 2007
Location: Media (Wawa to be exact), PA
Posts: 104
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Talk about inner peace... Andi has a great list, and allow me to include -
The Travelers Gift - Andy Andrews
The Alchemist- Paulo Coelho
Many Lives Many Masters - Bruce WiessPHD
__________________
DX BC 12/06
tumor .9
Lumpectomy 1/8
Mammosite radiation completed 2/10
Stage1/Grade 1
clear Margins /Nodes Neg
ER+
IHC +2 Fish +
ONCO 23
Started TCH on 3/2 for 6 rounds of TC once every three weels and a year of Herceptin every 3 weeks -
Finished everything and now on Aromasin
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09-02-2007, 07:28 PM
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#22
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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It's Not About the Bike
My Journey Back to Life
by Lance Armstrong
Grace and Grit by Ken Wilber
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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09-02-2007, 07:34 PM
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#23
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Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
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Thanks you guys! I reserved a bunch of these on my library's website...looking forward to some good reading.
Val
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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09-03-2007, 06:36 PM
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#24
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Senior Member
Join Date: Apr 2007
Posts: 292
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I love to read!!!
Okay, I sheepishly admit that I haven't read everyone's posts on the book suggestions, but I just read a great book Water For Elephants. I have loaned it out, and of course can't remember the author!
Take care,
__________________
Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
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09-03-2007, 07:21 PM
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#25
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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It's Not About the Bike My Journey Back to Life by Lance Armstrong
Grace and Grit by Ken Wilber
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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09-04-2007, 02:10 PM
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#26
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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sounds good
I haven't read this but I plan to. Even the title makes me laugh.
DON'T LOOK BACK
WE'RE NOT GOING THAT WAY!
…OR How I Survived a Rocky Childhood, Fat, a Nervous Breakdown, Breast Cancer, Widowhood, Fire, Menopausal Single Motherhood and Still Manage to count My Lucky Chickens!
http://marciawallace.com/
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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09-04-2007, 09:35 PM
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#27
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Senior Member
Join Date: Oct 2005
Location: San Francisco, CA
Posts: 96
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Kitchen Table Wisdom by Rachel Naomi Remen. Gave me peace and the ability to breath when I was 1st dx. I consumed it like a snack each day and was very sad when I was done.
Currently reading Tough Choices by Carly Fiorina
__________________
age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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09-04-2007, 10:19 PM
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#28
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Patricia, what is Kitchen Table Wisdom about? You make it sound intriging....I guess i could Google it. But I had chemo today and feel like a slug. Tomorrow I will be wired though, so maybe can research it then....
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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09-04-2007, 10:49 PM
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#29
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Senior Member
Join Date: Oct 2005
Location: San Francisco, CA
Posts: 96
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Hi Bonnie,
Kitchen Table Wisdom is a compilation of healing stories, told by the author who is a Dr. who has suffered from Crohn's Disease for 40 years and changed her path mid-career from practicing internal medicine to practicing psychology for patients with life threatening illnesses (including cancer) as well as with Physicians. The stories she tells are her own and her patient's including those that were ill and the physicians she also treated. This book touched me in a way no book has done in many years. I have since shared it with everyone that I know who has been dx with cancer as well as my own surgeon. I highly recommend it. I hope your chemo went well today and that you have a healing week.
Hugs,
Patricia
Here is the statement on the back of the book:
"Despite the awesome powers of technology, many of us still do not live very well, " says Dr. Rachel Remen. We may need to listen to one another's stories again." Dr. Remen, whose unique perspective on healing comes from her background as a physician, a professor of medicine, a therapist, and a long-term survivor of chronic illness, invites us to listen from the soul. This remarkable collection of true stories draws on the concept of "kitchen table wisdom" - the human tradition of shared experience that shows us life in all its power and mystery and reminds us that the things we cannot measure may be the things that ultimately sustain and enrich our lives. Kitchen Table Wisdom addreses all the spiritual issues; suffering, meaning, love, faith and miracles in the languuage of absolute authority of our own life experience.
Rachel Naomi Remen, MD., is one of the earliest pioneers in the mind/body health field, and was one of the first to develop a psychological approach to people with life threatening illnesses and educate their physcians about hteir needs. She is cofounder and medical director of the Commonweal Cancer Help Progrram, which was featured on Bill Moyer's PBS special Healing and the Mind, and is a Clinical Professor at teh University of California San Francisco School of Medicine.
__________________
age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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09-05-2007, 04:40 PM
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#30
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Also "My grandfathers blessings"
This is another book by Rachel Naomi Remen - sometimes you can get it in a set with Kitchen Table wisdom. Both are really good, inspirational, and definitely (for me anyway) hanky material in a good way.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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09-08-2007, 01:54 PM
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#31
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Deceased
Join Date: Oct 2005
Location: Chadds Ford, Pa
Posts: 206
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Thank you all for some great recommendations. Here's my contributions:
If you like biographies, I liked Jane Fonda's (My Life So Far) and Queen Noors (can't remember the name, sorry). Margaret George does great historical fiction and has done a book a Mary Queen of Scots, Cleopatra and Henry VIII - they are all fascinating and long!
Fiction - Travels with My Donkey, Tim Moore (hysterical), The Time Travelers Wife (fascinating) and Snow Flower and the Secret Fan by Lisa See (fascinating asian culture).
Enjoy!!
__________________
Donna
Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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10-28-2007, 06:53 AM
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#32
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Good Books Thanks
Just wanted to thank you all for your books selection. I love to read and to date have enjoyed The Alchemist, Devil in the White City & Infidel. Keep those suggestions coming it will get me through the long Michigan winter.
Mary
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
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10-28-2007, 11:48 AM
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#33
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Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
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A couple others...light reading
I just finished two books--you don't need to read the first one before the second, but it helps. Norris Church Mailer wrote them (Norman Mailer's wife). Both are fast reads, not the literary classic sort of books, but definitely enjoyable reads. The first is Windchill Summer and the second one is Cheap Diamonds.
Val
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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10-28-2007, 11:51 AM
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#34
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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This is a very interesting book... Loving What Is by Byron Katie. Google it. I have just started it, but I like it. (non-fiction)
"Katie's book, Loving What Is, can give you the tools you need to transform any problem, from everyday conflicts to lifelong traumas, into peace and understanding. It demonstrates clearly how asking four simple questions can change your life. For the first time, readers can find in one place detailed instructions, humorous anecdotes, and a wide variety of transcripts of people doing The Work on issues such as sex, relationships, death, the body, family, work, and money. This is the definitive sourcebook for The Work. Just reading the exchanges in Loving What Is has already helped people experience breakthroughs when nothing else worked."
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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03-12-2008, 08:54 AM
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#35
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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I am enjoying a novel titled Gap Creek.
The author is Robert Morgan.
It is full of "hidden" messages and I am about to
start re-reading it with my yellow highlighter in hand.
I could so relate to this passage. It reminded me of the
day my Dad passed away. I walked out of the hospital
to find a beautiful, sunny day - it was 12 noon and
I saw school buses driving by ...
"It was the prettiest night you ever saw, with the moonlight slanting
on the creek and dew sparkling in the grass. The mountains rose like
shadows ahead of us.....it was the first time I ever noticed how the
way the world looks don't have a thing to do with what's going on with
people."
Just thought I'd share.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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03-21-2008, 07:14 AM
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#36
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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In Defense of Food
It discusses how far away we've gotten,as a culture, from real food. It questions whether much of what is sold and we buy in the grocery store would even qualify as food. Very interesting book.
Leslie
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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03-21-2008, 12:51 PM
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#37
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Good call, Leslie! IN DEFENSE OF FOOD has some excellent points we all need to know about.
Understanding what they call food these days is something that I have been working on since my extensive liver mets in 2002. I became VERY careful what I ate as I wanted to take the toxic load off my liver as best I could.
Shopping "the perimeter of the store" is something I learned myself, but this can help in lowering your purchases of frozen and convenience food that are full of things we need to avoid.
These habits persist and I find that more and more evidence is pointing to my hunch as being a good one.
Eat FRESH and ORGANIC. A very simple rule. The first local farmer's market opened March 5th and their produce is MUCH better and cheaper than the grocery chains.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-23-2008, 04:47 PM
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#38
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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Justice by Dominick Dunne. I'm actually listening to the unabridged version on tape, but it is interesting.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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04-15-2008, 04:23 AM
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#39
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Great book that gives some insight about doctors How Doctors Think. Groopman, J.
Mary Jo,
All winter I have been enjoying J. Picoult Thanks.
Mar
__________________
Mary
Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED
Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
And never stops at all -Emily Dickinson
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04-15-2008, 01:41 PM
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#40
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Thanks Mary Jo!
Also THE ANATOMY OF HOPE by Dr. Jerome Groopman -- is worth the read. His personal battle w/debilitating back problems and pain is quite fascinating. The LESSONS he learned, beyond his medical degree and expertise are invaluable for each of us! Stunning revelations are buried in this great book.
Will try the other one, Mar. Appreciate your post!
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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