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09-04-2007, 07:40 PM
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#1
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Having scan Friday need of prayers
Well ladies I had a visit with my oncologist today along with a herceptin treatment. She found an area in question on my right chest wall near the axillary area and she wants me to have a scan Friday. I am freaking out as I just had prophylactic mastectomy on this side in June. I so hate this disease! She is also switching me from arimidex to aromesin due to joint pain. Anyone else taking the aromesin? Any noticable side effects? Do you ever get over the fear with disease and just start living your life again? I keep trying but keep getting knocked down again. Thanks for just letting me vent.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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09-04-2007, 08:03 PM
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#2
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Debbie,
It sounds like your onc is on top of things and is super watchful.
I know it is not easy - but do try to think positive thoughts. What
the dr. is seeing could just be leftover residue from your recent surgery.
Wishing you all the best for good ct scans on Friday. Please let us know
how it goes. It the meantime will say a huge prayer that it is nothing.
It is all so early since your dx. it is only normal and natural to feel the way you do. It does get better with time. Sending you a huge hug.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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09-04-2007, 08:52 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Hi D,
I'm on Arimidex so can't comment on drugs.
1 - 1/2 years ahead of you with similiar stats. Each day gets a little better.
Hope it's nothing. Hugs and prayers. Bev
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09-04-2007, 09:14 PM
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#4
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Senior Member
Join Date: Jun 2007
Posts: 2,210
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Debbie, I have this technique that I TRY to practice. And that is: not to worry about something until I know for SURE it is required. I mean, you will have time enough to worry after Wed, if you need to, when you have solid information. Does that make sense to anybody but me? To postpone the worry? And I didn't say it was EASY....
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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09-04-2007, 09:15 PM
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#5
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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I, too, am hoping that your onc is just being very cautious. I sort of thought you could not have a recurrence while on Herceptin. I am not sure how I made that conclusion. But, since you are still on Herceptin, I hope that your doctor is just being cautious.
Let us know. We are here for you.
All the best, Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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09-04-2007, 10:25 PM
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#6
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Senior Member
Join Date: Apr 2006
Posts: 56
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Debbie you are in my prayers, I am sure all will be fine. God Bless !
With Love, Donna
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09-04-2007, 11:06 PM
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#7
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Senior Member
Join Date: Oct 2005
Location: San Francisco, CA
Posts: 96
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Hi Debbie,
You will be in my prayers for good scan results. I know it is stressful waiting, but please know that every one of us on this board understands that anxiety and are standing there behind you to support you so feel free to vent. It does get easier with time, is all I can say. I remember feeling the worst part in the beginning was exactly as you describe, the minute I could deal with something, I got knocked down with the next thing and had to start all over again. I can't say I am over the fear, but I am moving forward and living my life and enjoying every day and you will too someday.
I take Aromasin too. I had a lot of joint pain in the beginning and tried Femara for awhile instead. The Femara made me depressed so I switched back to the Aromasin. As with many on this board, the joint pain lessened up after a period of time and I now have only a small fraction compared to the beginning. Hang in there, if you can get through the rough part it does get better.
Hugs,
Patricia
__________________
age 37 @ dx 7/21/05: IDC 1.5cm, grade III, Stage 1c, ER /PR+, HER2+,
7/29/05: Partial Mastectomy
dx 8/15/05: Papillary Thyroid Cancer
9/15/05: Total Thyroidectomy
A/C X 4 DD, 11 weekly Taxol + Herceptin, + 9 mos Herceptin Alone, 36x Rads, Lupron, Aromasin
7/29/07: 2 years NED :)
8/6/07 Oopherectomy (Lupron no more! :-)
Aromasin & Estring plus Synthroid and supplements
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09-05-2007, 01:42 AM
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#8
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Debbie,
Sorry that you have to go through the anxiety of a scan and waiting for the results. Sounds like your oncologist is really on top of things and is just being cautious. You will be in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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09-05-2007, 06:21 AM
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#9
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Debbie
Hoping that it is just scar tissue, which is common. Sorry you are having the extra anxiety of this scan...I will keep you in my thoughts and prayers.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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09-05-2007, 07:28 AM
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#10
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Hi Debbie,
Hard not to worry, but it sounds like you have a great onc. Many will be praying for you on Friday. Waiting is the hardest part.
God Bless!
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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09-05-2007, 10:07 AM
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#11
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Debbie, I'm praying and believing for you!
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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09-05-2007, 11:04 AM
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#12
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Debbie, I hope it's nothing, but I know you are nervous. Just try to stay on an even keel, and remember to breathe.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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09-05-2007, 12:13 PM
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#13
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Debbie,
Prayers for comfort as you wait on your scan. I am happy that your onc is being cautious and I am praying that it is not cancerous.
Hugs and Prayers,
Lexi
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09-05-2007, 03:36 PM
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#14
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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I want to thank all of you for your words of encouragement, it has made me feel some what better. I will let you know how things turn out. I have read somewhere that you can have recurrence while on herceptin.(when that happens your body isn't responding to the treatment any more) And yes, I do have a great oncologist. Thanks again ladies!
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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09-05-2007, 05:51 PM
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#15
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Senior Member
Join Date: Jul 2006
Posts: 869
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hope all goes well for sure! However, one can have a recurrence while on herceptin...I did and still am on it with Xeloda and Navelbine. However, I started my treatment with herceptin 20- months after chemo. Best of Luck to you Ceesun
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09-05-2007, 06:26 PM
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#16
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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I will keep you in my prayers. Here is hoping for a clear scan!
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09-05-2007, 06:54 PM
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#17
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Senior Member
Join Date: Oct 2005
Posts: 476
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Not as a positive statement but just a speculation, the June mastectomy is unlikely to produce a tumor so soon. It is often reported that 12 to 16 month would lapse before a tumor can be detected. Therefore, scar tissue is a very likely image your onc has noted.
__________________
Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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09-05-2007, 07:31 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Keeping you in my thoughts and prayers and praying for "nothing" on your scans.
________
Glass Weed Pipe
Last edited by sassy; 08-22-2011 at 09:29 AM..
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09-06-2007, 07:41 AM
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#19
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Senior Member
Join Date: Mar 2007
Location: CHARLOTTE NC USA
Home town (ECUADOR) South America
Posts: 542
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I will keep you in my prayers and just wait and leave everything and God hand and I'm sure you will be fine ...clean ..you see ..
__________________
Lily Diag April/06 5 months after give birth my son Max stage IV mets on liver (5 tumors) 38 year old, her2+++ and ER+PR+ from32 nodes 4 positives mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery 5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression 03-05-08 start tykerb & xeloda
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09-06-2007, 06:00 PM
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#20
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Senior Member
Join Date: Dec 2005
Posts: 274
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Hi Debbie,
Sending prayers and all good thoughts your way. I am sure you will be fine. It sounds like both you and your onc. are pro-active. Good Team.
Sincerely,
Liz J.
Last edited by Liz J.; 09-06-2007 at 06:01 PM..
Reason: typo
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