|
Senior Member
Join Date: Aug 2011
Posts: 271
|
whole brain radiation
Hi, I have a friend diagnosed 2.5 years ago, ER-PR-, Her2 positive. She is in her 40's. She is Stage IV with lung, liver, bone, brain mets. She was originally diagnosed Stage III, but went Stage IV shortly after stopping Herceptin. She is on chemo, plus Herceptin and I am not sure what else. She already has had whole brain radiation once. She has permanent hair loss. Her last CT showed progression and the docs are recommending a 2nd whole brain radiation. What should she do? Should she seek a 2nd opinion at this point from an MD Anderson or a Mayo. She is currently being treated by a top teaching hospital, but I know she is desparate for next steps and a 2nd whole brain radiation sounds rather dire to me.
Any help with this would be appreciated. I am just devastated by this news. I hate cancer. Her suffering has got to be unbearable and she has 2 young children. I have prayed so hard for her, lit candles at churches everywhere...I will continue to pray that is all I can do.
__________________
DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
|
Threaded Mode