Long-Time Survivors

asahizuru · 04-02-2009, 08:21 AM

Hi LisaJ,

I posted my story in Profiles in Courage so I wont go into any detail here. I was dx 19 years ago Er/Pr neg and her2 positive. In UK herceptin was not available back then and I didnt get on to that until 2004. I had by then exhausted all available chemos and it was looking like I was heading for Phase1 trials. My onc then checked out my her2 status from previous tissue. For me it has been my miracle drug and I have had no further progression. My extensive bone mets are stable.

Asahizuru.
xxx

pmm10414 · 04-03-2009, 12:51 PM

I started herceptin 3 weeks ago and am also on Taxol. I have been in pain and have neuropathy (got it from AC too after onc said it was impossible). Anyway, all the news from all of you is encouraging. I pray each day the Lord heals me. They are doing chemo before surgury and all are surprised how much shrinkage has been achieved thus far. I have 8 more treatments then surgery and radiation. It is scary having this tumors still in me, but all agreed that the size of my tumor dictated this course (along with lymph node involvement)

Jackie07 · 04-06-2009, 04:51 AM

I was first diagnosed in 2003. Though I've got some bumps along the way, I am glad to say that I have made it close to 6 years. And my latest biopsy were 'benigh' - the surgeon stated that she had never seen anything like it - the 'clip' inside of my old underarm surgical site had got pushed up to the surface of the skin and made it look and feel like a 'growing' lump.

ps. Now I'm headed to the 7th year in mid July, 2010. [3-4-2010]
ps. Headed to the 9th year in mid July, 2012. [11-15-2011]