HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 11-23-2009, 09:25 AM   #1
margiermc
Senior Member
 
Join Date: Aug 2009
Posts: 94
Re: To ALL - Please Remember Our Focus

Hi, I went back to work, felt good to be in a normal world.
Last Monday was the last vaccine in Washington, got
very emotional about health screening, not just for me but
for my daughter and other young family members.

I just felt - what will they say next, no treatment to later stages?
Got, scared. We all have our own personal faith and political
opinion. And, yes - we do need to keep this post focus on what we all have and are going through her2 breast cancer disease.

It did get political - with government panel guidelines, all over the news, and some like myself had an urge to say something, letting others aware - about possible insurance problems, but there are other places to take action/advocacy groups etc.

There are many organizations that have online petitions, Komen is one of them - that will combat this head on - and that is a good place to vent/or take action that will hopefully show a voice in how a breast cancer survivor feels in front of the political arena.

As for me,
I am doing well, working, cooking, exercising and decorating for the holidays.
Wish all good healthy holidays!

Forgive me, I was scared, tired and emotional.
Margie

dcis
liver met 10 wk treatment TCH
NED
Vaccine
margiermc is offline   Reply With Quote
Old 11-24-2009, 12:45 PM   #2
Christine MH-UK
Senior Member
 
Join Date: Sep 2005
Posts: 414
Re: To ALL - Please Remember Our Focus

Hi Joe,

One strategy that has worked well for the only other chatroom I post in has been to have a separate 'hot issues and current events' section for people who are interested in the political issues or controversies of the day. People are heavily interested activism go to that part and people who are just interested in giving or receiving emotional support don't.

This has been a really lovely, supportive website, and it would be nice to get that atmosphere back.

Best wishes,

Christine MH
Christine MH-UK is offline   Reply With Quote
Old 11-25-2009, 11:07 AM   #3
PinkGirl
Senior Member
 
PinkGirl's Avatar
 
Join Date: Jul 2007
Location: Canada
Posts: 2,193
Re: To ALL - Please Remember Our Focus


Well said Christine. I too miss the former atmosphere of the
message boards.
__________________
PinkGirl

Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

My Photo Album
PinkGirl is offline   Reply With Quote
Old 11-25-2009, 09:43 PM   #4
Debbie L.
Senior Member
 
Debbie L.'s Avatar
 
Join Date: Jul 2006
Posts: 463
Re: To ALL - Please Remember Our Focus

>>Well said Christine. I too miss the former atmosphere of the message boards.

If the atmosphere has changed, then I will accept a good share of personal responsibility for that.

It has always been my nature to question. Learning more about breast cancer, after my own experience with same, has honed my interest in the science of breast cancer. And as I learned how few answers we (yet) possess - it also honed my interest in questioning.

Working through the issues of mortality/survivorship has brought this formerly-shy and reticent person out of the shyness-closet. I believe that having an understanding of the science, and of the controversies, is an important part of breast cancer advocacy and support. And that, having acquired some understanding myself, it is my duty to stand by it and to express it.

But I am able and willing to accept that polite debate of science conundrums, and of controversy, is an unwelcome intrusion into this already-comfortable and content group.

I can't say that I'll be able to leave this group altogether. I've become attached -- to many of the people, and to the HER2-specific science. I am pretty sure I'll still lurk. But I can say that I'll stop posting, and that you can return to your "former atmosphere" in peace.

Warm regards,
Debbie Laxague




__________________
3/01 ~ Age 49. Occult primary announced by large (6cm) axillary node, found by my husband.
4/01 ~ Bilateral mastectomies (LMRM, R elective simple) - 1.2cm IDC was found at pathology. 5 of 11 axillary nodes positive, largest = 6cm. Stage IIIA
ERPR 5%/1% (re-done later at Baylor, both negative at zero).
HER2neu positive by IHC and FISH (8.89).
Lymphovascular invasion, grade 3, 8/9 modified SBR.
TX: Control of arm of NSABP's B-31 adjuvant Herceptin trial (no Herceptin, inducing a severe case of Herceptin-envy): A/C x 4 and Taxol x 4 q3weeks, then rads. Raging infection of entire chest after small revision of mastectomy scar after completing tx (significance unknown). Arimidex for two years, stopped after second pathology opinion.
2017: Mild and manageable lymphedema and some cognitive issues.
Debbie L. is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 01:47 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter