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05-05-2010, 01:40 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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TriciaK checking in!
It's been awhile since I posted but do browse every week or so, and think of you all with love and prayers. I did just have my 6-months PET/CT, which once again shows NED! It's been 6 years now since I was diagnosed her2, and over 25 since my first BC diagnosis. My ca27.29 markers have been rising steadily for almost a year and are up to 225 now but my onc can't seem to pinpoint why. We do check them monthly now. My general health has not been good, but am still feisty (and counting) at age 80. My wonderful husband, 9 children, 32 grands and 40 great grands keep life so interesting I plan to stay around awhile longer, God willing. I am writing my memoirs and have 400 typed pages , though I'm only through the 1970's and no pictures are added yet. My husband and I agree that old age and poor health are the most frustrating things we've faced, but I don't dare complain. I've gotten through BC three times, plus serious heart problems and painful arthritis, while my parents only lived to ages 47 and 56, and my only sibling died of BC at age 53 the year I was first diagnosed. Life has been challenging and hard, but I've been blessed in so many ways, and especially have been blessed to be able to help others along the way. My experiences taught me many things, but I'll pass two favorite sayings along to you: "People make plans and God just chuckles", and "This earthlife is the only school where you get the tests, and THEN you learn the lessons." I guess the reason I've lived a long time is because I'm a slow learner! Love, prayers and hugs, TriciaK
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05-05-2010, 02:01 PM
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#2
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: TriciaK checking in!
Hi Tricia,
What a great post :-). I'd like a preview on those memoirs of yours. Sounds like they'll be an interesting read. God bless!
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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05-05-2010, 02:06 PM
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#3
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Senior Member
Join Date: May 2009
Posts: 510
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Re: TriciaK checking in!
Tricia,
You're truly an inspiration to us all. I feel like giving you a big hug right now. Thank you so much from the bottom of my heart.
Much love to you and your blessed family,
Marcia
__________________
ER+ (30%)/PR-/HER-2+, stage 3
Diagnosed on 02/18/09 at 38 with a huge 12x10 cm tumor, after a 6 month delay. Told I was too young and had no risk factors. Found swollen node during breastfeeding.
March-August 09: neo-adjuvant chemo, part of a trial at Stanford (4 DD A/C, 4 Taxotere with daily Tykerb), loading dose of Herceptin
08/12/09 - bye bye boobies (bilateral mastectomy)
08/24/09 - path report shows 100 % success in breast tissue (no cancer there, yay!), 98 % success in lymphatic invasion, and even though 11/13 nodes were still positive, > 95 % of the tumor in them was killed. Hoping for the best!
September-October 09: rads with daily Xeloda
02/25/10 - Cholecystectomy
05/27/10 - Bone scan clear
06/14/10 - CT scan clear, ovarian cyst found
07/27/10 - Done with Herceptin!
02/15/11 - MVA-BN HER-2 vaccine trial
03/15/11 - First CA 15-3: 12.7 and normal, yay!
10/01/11 - Bone scan and CT scan clear, fatty liver found
now on Tamoxifen and Aspirin
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05-05-2010, 02:27 PM
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#4
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: TriciaK checking in!
Dear Tricia,
Your words are pearls of wisdom.
How wonderful for your family that your are keeping a journal of your memoirs - your family is so fortunate.
Your life is rich with family and that means love.
Breast cancer has been in your life a long time and it is with joy to read that you are NED and remain so. Your positive attitude and energy put those much younger to shame. May God continue to bless you and please don't stay away too long....as we miss you! You are better than a vit. pill.
Hugs,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-05-2010, 03:02 PM
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#5
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: TriciaK checking in!
Thank you so much for posting. You are a role model for the rest of us. You give us hope. You inspire us to keep putting one foot in front of the other when things don't turn out the way we want them to turn out. You are the energizer battery that keeps on lighting the way for everyone else. I think part of your success is from your philosophy and enjoyment of life.
Keep on doing what you have been doing. It is working.
Hugs to you !!!!!!!!
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05-05-2010, 04:17 PM
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#6
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: TriciaK checking in!
Well, from one Triciak to another you amaze and astound me!!
You also inspire me and I 'm so glad to share your good news today 
Mnay congrats Tricia and here's to many more for you you!!! xxxx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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05-05-2010, 04:55 PM
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#7
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: TriciaK checking in!
Hi TriciaK
A truly amazing post from a truly amazing woman!!
Glad you are still NED, you certainly need to stay healthy with 40 great grandkids!!
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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05-05-2010, 06:50 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Re: TriciaK checking in!
Hi Tricia,
Thank you for posting. You totally inspire me and have given me such hope over the years. It's not about just the will to survive, but the strength to handle life's challenges.
Wishing you all the best!
Barbara H.
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05-05-2010, 08:03 PM
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#9
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Re: TriciaK checking in!
Tricia,
Bless you.
Thank you for your wonderful post!
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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05-05-2010, 09:00 PM
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#10
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: TriciaK checking in!
Tricia,
Great to hear from you. Thank you for this great inspiring post. Best wishes.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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05-06-2010, 12:51 PM
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#11
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: TriciaK checking in!
Tricia,
Glad to hear from you. Glad to hear you are doing well.
Amelia
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05-06-2010, 01:13 PM
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#12
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: TriciaK checking in!
Tricia, I love your post. Sending hugs to you also. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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05-06-2010, 01:57 PM
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#13
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Re: TriciaK checking in!
I think your memoirs will be worth reading. Add me to the long list of women who find you an inspiration.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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05-06-2010, 04:08 PM
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#14
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Senior Member
Join Date: Dec 2006
Posts: 415
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Re: TriciaK checking in!
Thank you for your beautiful, spirited post!
God bless you Tricia<3
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05-06-2010, 06:12 PM
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#15
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: TriciaK checking in!
I loved your story and quotes. You have inspired me and given me great hope.
Kris...
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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05-06-2010, 07:22 PM
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#16
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: TriciaK checking in!
Tricia,
I'm glad you plan on sticking around! I loved your post and think your memoir sounds like a good read. Don't leave out any juicy parts! Thanks for the encouraging post.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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05-07-2010, 12:05 PM
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#17
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Senior Member
Join Date: Oct 2007
Posts: 46
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Re: TriciaK checking in!
Dear Tricia,
You are so beautiful! Where do you take all this grace from? I guess it's just your personality. Please come here more often and share your light with us.
Love you,
belle
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05-08-2010, 12:38 PM
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#18
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Senior Member
Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
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Re: TriciaK checking in!
Tricia-
You are an amazing and inspirational woman!!!!
Thank you for the courage and strength you provide to this
support group.
I LOVE THIS.........
"People make plans and God just chuckles"
Have a wonderful Mothers Day!!!
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED
12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line
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