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05-16-2007, 11:32 AM
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#1
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Good News
Hello all.....................can you "see" the lift in my typing???????? Haha! So very thankful to report that the "findings" today were good news. The "nodes" in question (that lit up on the PET/CT in Dec.) were smaller today than in December. So, no biopsy was needed - THANK GOD! No waiting for test results. I met with my surgeon afterwards and she said the decision was mine if I wanted follow up for this node issue. A possible 6 month ultra sound ONLY IF I FELT IN NECESSARY TO DO as she felt comfortable with leaving it alone. I felt VERY COMFORTABLE leaving it alone so this issue is a dead issue.
Also, while "visiting" with my surgeon there were a few questions about my pathology report that I wanted to know. (at the beginning of the journey I didn't want to know too much) Of course, at the beginning of my journey, when the pathology report came back she did tell me the important information - tumor size (I thought 4.5 cm - it was 4. 0 cm - I could have sworn she said 4.5 back then) It wasn't 4.0 cm all the way around - narrower on the side - an oblong tumor) Anyway, grade 3 (knew that) - clear margins (knew that) 1 microscopic cell in first node - second node clear (knew that) but didn't know the size of the micromet - .085 cm (teeny tiny). Also found out today there was no vascular invasion. Something I learned about on here and didn't know about back then. Would never have thought to ask that almost 2 years ago. But, I asked today, and there was no vascular invasion. (some more great news)
So a GREAT appointment. Thanks to those of you who kept me in their prayers. Only God knows how much I appreciated it.
Love to all,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-16-2007, 02:06 PM
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#2
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Congratulations on the good news!
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05-16-2007, 02:16 PM
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#3
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Senior Member
Join Date: Feb 2007
Posts: 108
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Wonderful!!!! Thanks for sharing your great news!!
__________________
Age 50, premenopausal
Dx 1/2/07 DCIS/IDC
Lumpectomy 1/4/07 1.1cm tumor
SNB 3 nodes clear
Stage 1, Grade 2, HER2+++ (FISH 6.8)
ER + / PR +
TCH, 6 rounds, finished 6/1/07!!!
Herceptin to continue for 1 year
36 rads finished 8/22/07
Port out 8/27/07
Switched to Herceptin weekly for joint pain
Ooph 11/13/07
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05-16-2007, 04:56 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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AWESOME news!!!!!!!!!!!!!!
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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05-16-2007, 05:19 PM
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#5
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Senior Member
Join Date: Sep 2006
Location: Marengo, IL
Posts: 518
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Hi Mary Jo,
We are like one big family. I am rejoicing in your good news.
I love your picture. Who is that cutie?
Celebrate!
Love,
Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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05-16-2007, 05:30 PM
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#6
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Senior Member
Join Date: Mar 2007
Location: State Motto='HOPE'
Rhode Island
Posts: 28
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You Made Me Smile From the Inside Out!!!!!
What wonderful news to hear tonight(or anytime to be honest!). It is stories like that which make me so happy to be here. The news gave me goose bumps. Rejoice my Friend and I'll be here lighting the candles and saying my prayers. >>Waiting For A Miracle>><WAITING Miracle A For Miracle<WAITING>Marie G.....(and I do believe we all know how you appreciate those continued prayers from us all, a birdie told me so!!)
Last edited by Marie G; 05-16-2007 at 05:33 PM..
Reason: left out words..Ooops
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05-16-2007, 05:52 PM
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#7
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Mary Jo so happy for you! Enjoy!
Hugs,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-16-2007, 08:41 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Wonderful news Mary Jo---congrats!
________
AnnaSmile cam
Last edited by sassy; 08-22-2011 at 09:15 AM..
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05-16-2007, 10:11 PM
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#9
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Junior Member
Join Date: May 2007
Posts: 3
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Congratulations!!! That is just Awesome news!!!! It is news like this that give all of us HOPE. May you have many, many more good reports in your future and hopefully never ever hear bad news again.
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05-17-2007, 02:08 AM
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#10
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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congratuations....
.......on the great report! Isn't He just an awesome God!
Lisa
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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05-17-2007, 07:39 AM
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#11
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Senior Member
Join Date: Oct 2005
Location: TN
Posts: 84
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I love it when there are good reports! Congrats & celebrate!
Many blessings!
__________________
3/2003-Dx'd Stage 4 Her 2+++
"Life is not measured by the number of breaths we take, but by the moments that take our breath away."
Dum spiro spero (Latin: while I breathe I hope)
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05-17-2007, 07:58 AM
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#12
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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I'm SO glad to read your good news, Mary Jo!! Thank you for posting so soon because I thought of you all day yesterday and prayed it would go well! Hugs, Tricia
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05-21-2007, 07:04 PM
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#13
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Great news Mary Jo!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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05-31-2007, 02:05 PM
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#14
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Thank you all. It's nice when others rejoice with you.
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-31-2007, 02:37 PM
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#15
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Glad to see you join the "good news" club that is also part of this site. We who are doing well against this disease (in spite of the OLD stats) are needed to hold out hope to others who are also in this fight.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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05-31-2007, 05:22 PM
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#16
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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I just LOVE the sound of Great News!!!!!
Way to Goooooooooo!
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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06-01-2007, 08:09 AM
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#17
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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That is great news!! Have a wonderful weekend with your beautiful family...I love your pictures!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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