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09-07-2008, 07:21 PM
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#1
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Senior Member
Join Date: Oct 2007
Posts: 57
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Vitamin D Deficiency?
Hi her2 group,
Per a vitamin D blood test, I was recently found to be deficient in vitamin D even though I take 1000iu per day! My primary doc wants me to use a prescription vit d-2, 50,000 units (one pill) once a week for 8 weeks. It is a large dose and I am on chemo (Tykerb/Abraxane) so I am somewhat nervous about this. My onc did not find any interactions, but I am still not sure yet. However another onc mentioned the possiblity of nausea and other unpleasant side effects at that dose! Has anyone else been told to take prescription vit d-2, 50,000 units? If so, can you let me know how it worked out? I really appreciate your input. Lida
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09-07-2008, 08:20 PM
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#2
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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I don't fit the profile. Hopefully my empty reply will bounce this posting up and someone will be able to answer it.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
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Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
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Tamoxifen B. scan
Irrtbl bowel 1'09
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hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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09-07-2008, 08:28 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Hi Lida,
I am taking a prescription dose of vitamin D once a week, but it is 1.25 mg.
Karen
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09-07-2008, 11:36 PM
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#4
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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I was found to be Vit D deficient as well and have been on 2000 units of Vit D a day but over the counter. My calcium levels were way high as well as my parathyroid levels so they took out a parathyroid gland which ended up having a benign andenoma on it which was causing all the trouble. My calcium levels have leveled off but the doctors still don't want me on any calcium which worries me in regards to my bone density. They took a density test and sure enough I became slightly osteopenic which is a big change from previous density scans which were perfect and without any problems. It isn't all that unusual to be deficient in Vit D especially us midwesterners. It's good that they caught it though because we need Vit D for a lot of reasons.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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09-08-2008, 04:09 AM
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#5
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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I am also Vit D deficient and am presently taking 50,000 units three times a week. I have tolorated this dose well and have been on it a month. Will do another blood test after taking it for 3 months.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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09-09-2008, 02:39 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Lida, I too am Vitamin D deficient again this yr after seeing my Endocrinologist. My Vitamin D level was lower this yr then last yr. So my Endo perscribed vitamin D I bought from his office. I am to take my normal D I've been taking which is 2000 IU's per day...and he wants me to add one pill per week thats 5000 IU's.
My Vitamin D level last yr was 29 which is one digit below the reference range...& this yr it dropped to 24. I don't know how mine can be so low? I'm very concerned as my DEXA scan this yr showed significant changes in my bones. I'm worried and I don't think he is taking it as serious as I am. I've done some research and see alot of ppl with a Vitamin D deficiency are given 50,000 units as you are suppose to take. Makes me wonder why my Endo did not prescribe me a higher dose?
Sorry I'm probably not much help but I am glad you posted this because I am going to look into a higher dose. I see "dhealey" is taking 50,000 3 times a wk. Anyone else on this board that has information on this topic would be appreciated.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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09-10-2008, 09:22 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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Say that AGAIN?
Hi Lida,
The first time I heard my PCP prescribe 50,000 units for a patient who was vitamin D deficient, I thought I was hearing things, or that he'd had a rough night. But for specific patients, surprisingly that is the right dosage.
Be well,
AlaskaAngel
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