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12-18-2010, 11:23 PM
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#21
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Re: new development surgery on Saturday
Pam,
I am so sorry that you have gone through sooo much. I just want to let you know that I am praying for you and your health and from this side of the river, sending you a big hug and best wishes for a prompt recovery.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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12-20-2010, 10:06 AM
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#22
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: new development surgery on Saturday
Pam,
You are in my prayers.
Amelia
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12-20-2010, 03:59 PM
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#23
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: new development surgery on Saturday
Pam,
Didn't know if you have access to the Internet while in the hospital. Just wanted to check on you and hope everything works out as planned (that your son is available to take care of you for two weeks)
Be sure to take your pain medicine on time. Know that you are in our thoughts and prayers.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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12-20-2010, 06:41 PM
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#24
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Re: new development surgery on Saturday
Pam,
So sorry to hear that you are facing yet another hurdle; you have been through so much! Please know that you have the love and support of so many people behind you. Be sure and keep us updated.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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12-20-2010, 06:46 PM
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#25
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Senior Member
Join Date: Sep 2005
Posts: 556
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Re: new development surgery on Saturday
Pam,
Sending you hugs and best wishes.
Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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12-21-2010, 06:49 AM
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#26
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Senior Member
Join Date: Aug 2010
Posts: 58
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Re: new development surgery on Saturday
Hope all is well. So sorry you have to go through this. Sending prayers and hugs. Enjoy the somewhat peace and quiet of the hospital. Take those meds, pain does not have to be unbearable.
__________________
Laureen (laurie)
Diagnosed 8/10/06 (found own lump)at 35
Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagnosed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David born Feb. 6th 2009
Pregnant with baby #2, due in early june 2011.
*reach to recovery volunteer
*survivor recruitment committee -relay for life
*imerman angels
*making strides- team courage
*livestrong
*young survivor coalition YSC
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12-21-2010, 08:56 PM
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#27
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: new development surgery on Saturday
Hugs Pam.I hope you are on the road to recovery by now.
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12-22-2010, 05:52 AM
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#28
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Senior Member
Join Date: Sep 2005
Location: MN
Posts: 731
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Re: new development surgery on Saturday
HI EVERyone! i LEFT hospital Tuesday. Im at a rehab for more pt & healing. Just didn't hink I was ready togo home. Hopefully this wil be a short stay here. Surgery went well, There was already a small frature in hte femur so good I got in when I did. I'm not in a lot of pain, but I'm on oxicodom. it manages the pain pretty well but also makes me foggy and groggy. I can fade out mid sentence and as you can see my typing sucks fur I'mm too groggy to fix it. Thanks for everything. I'll chck i again sonl''Someone asked abou chemo I take oral - tykerb so have had that everyday & I'm not due for herceping until 1/6 so mopefully can get to the clinic with help by then.
__________________
Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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12-22-2010, 06:26 AM
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#29
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Senior Member
Join Date: Oct 2005
Posts: 823
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Re: new development surgery on Saturday
Glad that surgery went well. Praying for fast healing. Have a wonderful Christmas.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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12-22-2010, 07:07 AM
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#30
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: new development surgery on Saturday
Pam,
So glad to hear from you.
Amelia
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12-22-2010, 08:51 AM
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#31
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: new development surgery on Saturday
Pam, I have thought about you every day and specifically checked the sight hoping to hear about you. It's even better to hear from you! So glad the surgery went well. Sending best wishes for good healing and a return home as soon as you feel well enough. Good that you can continue the Tykerb as you recuperate.
Barb A.
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12-22-2010, 09:04 AM
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#32
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: new development surgery on Saturday
Thanks for checking in Pam ... your typing is fine 
I'm glad you chose re-hab for awhile - just get your rest
and do what 'they' tell you to do and you'll be back home
soon enough.
If you like, you can play a few Lexulous words while you're
'foggy'  ... I'm bad
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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12-22-2010, 09:19 AM
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#33
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: new development surgery on Saturday
Hi Pam
Glad this is behind you now.Hope you have a good christmas as you continue the healing journey.
Love Ellie
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12-22-2010, 09:20 AM
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#34
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Senior Member
Join Date: Feb 2007
Location: Paris, France
Posts: 858
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Re: new development surgery on Saturday
Pam I am happy you were able to give us some news and that the surgery is now behind you. You were right to choose re hab and I hope you will recover well and fast. Hugs. Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex
12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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12-22-2010, 10:04 AM
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#35
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Senior Member
Join Date: Nov 2010
Location: PA
Posts: 297
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Re: new development surgery on Saturday
Hi Pam. I was so happy to hear from you today. I too was praying for you and I am so glad that everthing went well. Your typing was great considering your medication I'm glad that you decided on the rehab as they are there to help you when you need it. I hope you heal quickly and have a Merry Christmas. Fondly, Mary L
__________________
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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12-22-2010, 10:37 AM
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#36
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: new development surgery on Saturday
Pam
I've been checking everyday to see if there was an update from you. Heal and recover dear girl. I am thinking about you.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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12-22-2010, 01:58 PM
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#37
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: new development surgery on Saturday
I also have been thinking of you Pam and hoping for a quick recovery, rest up and don't worry about the typing lol
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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12-22-2010, 02:06 PM
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#38
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Senior Member
Join Date: Oct 2006
Location: Louisville KY
Naples FL
Posts: 665
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Re: new development surgery on Saturday
Praying for a quick recovery for you. Rest, take the
meds, let everyone wait on you and heal. Take care
patb
__________________
patb
Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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12-22-2010, 02:52 PM
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#39
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: new development surgery on Saturday
Take care Pam, glad that you are on the road to recovery. I agree with pink girl, your typing is fine. Better than my IPhone typing by a mile.
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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12-22-2010, 03:19 PM
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#40
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: new development surgery on Saturday
Hi Pam,
It's so nice to hear from you! Not a day has went by that I haven't thought about you? That was a very wise choice going to rehab. Believe me...when I got home all I thought about is how I wished I was back in the hospital because I just needed too much help with everything. You will recover much quicker there since you will get more rest, meals brought to you--& good pain management.
That kind of surgery takes alot out of you. So let them wait on you--bring you your food and just think about nothing but resting. I'm so glad this part is all behind you. Thanks so much for checking in with us. Rest up and let them take good care of you...if they don't I'm going to come down there. lol
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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