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Re: Is this aa bad sign?
Andi, your story reads like a modern day miracle. I love it, oh would so like one of those.
Darita, I too am doing puzzles in the middle of the night, if I'm not raiding the fridge. I like your idea of cutting down on the steroids, even when just taking 2mg. I might halve the pill and see how I do.
Michka, the reason I take the steroid is that after stereotatic radiotherapy I had blurry vision . The mri was clear so the doc said it was due to the treatment and the steroid helps.
I'm encouraged by your replies, I hopefully will get back to normal sometime soon. I have bone and ct scans next week so that should tell me a lot. I think I always worry more around scan time.
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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