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03-21-2008, 12:04 PM
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#1
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Senior Member
Join Date: Oct 2005
Location: Beavercreek, Ohio
Posts: 67
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Lung Concerns
Hi All:
I posted last week about shortness of breath and chest pains which I thought was due to taking Tykerb. I'm currently enrolled in the TEACH trial. I went and had an echo and CT scan of the heart on Wed. All the tests show normal. After more reading, I am concerned I might have lung issues....I have read the symptoms of lung cancer and some of what I'm experiencing was listed. My onc. office is closed today but I have an appt. to see them Wednesday. I already know the test results. I think that I need to call them first thing Monday morning and arrange for them to call in an order for a lung x-ray. I recently have had tumor marker tests done, both through the trial and through my regular onc. All were normal. I know those tests are not the perfect guage. My blood pressure was quite low. 91 over something. I have also had numbness/tingling in my hands during the night, for the past 3 nights. I'm worried and now I have a long holiday weekend to get through. I'm relieved it's not my heart, as least so far, but could it be lung mets??? Advice please!
Thanks!
Joannie
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Joannie
Diagnosed April 2003
3.3 cm tumor left breast
HER2 positive 3++
ER/PR negative
Masectomy April 2003
4 Rounds of AC - dose dense
4 Rounds of Taxol - dose dense
Removed right breast prophalactically
Full reconstruction with implants/nipples
No Late Herceptin Received
Started Tykerb TEACH Trial in May 2007
Completed Tykerb TEACH Trial in May 2008
5 year NED August 27, 2008!!!
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03-21-2008, 12:24 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Joannie I don't have any great advice for you but hope everything goes well for you and this is just a scare we all get now and again. I do know though that the symptoms of lung mets are also the symptoms of about ten other benign conditions(found that out while self diagnosing!) so try not to panic too much and hope the other ladies/gents can reassure you and advise.
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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03-21-2008, 02:31 PM
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#3
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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Maybe you just have a touch of a bug that is going around...try to relax and stay positive...it may be nothing.
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Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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03-21-2008, 02:55 PM
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#4
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Senior Member
Join Date: Apr 2007
Posts: 292
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Joannie,
Like everyone always tells me, get it checked out so that you can not worry! While I am not in that trial, I think that the Herceptin that I take has affected by breathing, and I do have occasional chest pains. Does it hurt when you press on it, or deeper? My seem to be muscular, which my ONC. kept telling me, but I could only confirm by pressing when it hurt.
Please let us know what you find out!
Take care,
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Krista
Diagnosed 3/29/2007 @ age 34
Stage 1, Node Neg. (SNB), Grade 2, 1.4 cm. IDC
ER/PR 90%+ HER2 +
6 TCH started 5/25/2007, ended after #5 due to steroid "reactions" and neuropathy in feet and hands
BUT--#6 CH w/o Taxotere
Begin Herceptin alone 9/28/2007
30 rads completed 12/19/2007
Finish Herceptin 5/9/2008
Stopped Tamoxifen early--HATED it.
Married 17 years
13-year old son
3 embies on ice (from 1999)
GA, USA
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03-21-2008, 05:34 PM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 476
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Just to relieve your worriness, lung cancer's main symptom is coughing, not pain. Pain is most likely from the rib cage. Still an x ray pic will quickly show. Best luck.
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Ann
Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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03-22-2008, 11:01 AM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Joannie,
I don't know what to say to put your mind at ease regarding lung mets. I was diagnosed with lung mets in July and if I were you I would ask my oncologist for a PEt/CT scan of the chest just for your own peace of mind. I'm sure that your shortness of breath is nothing serious as when I was on Herceptin I always had shortness of breath. I've also read that Tykerb can cause shortness of breath.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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