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Old 05-13-2007, 07:48 AM   #1
Shahyan
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Is goji a grapefruit ?

My mother has been taking goji juice for quite some time. She is to start Tykerb and it says that she should not be having any fruit or fruit juices (with special emphasis on grapefruit or grapefruit related juices). If anyone can advise me on whether she should continue taking goji or whether it is a grapefruit extract I would be much obliged.

Thanks

Shahyan
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Old 05-13-2007, 09:25 AM   #2
R.B.
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Small dried red things with little seeds that are quite "moreish", and not too sweet.

I looked it up as I did not know exactly what they were either.

This is an informative link. I have not idea about the supplier or prices- just the link was more helpful than most.

http://www.wildernessfamilynaturals....gi-berries.htm

RB
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Old 05-13-2007, 10:13 AM   #3
Sandy H
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I was told no grapefruit and than someone said pineapple has the same thing in it. It contains an enzyme that interacts with the Tykerb. hugs, Sandy
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Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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Old 05-15-2007, 08:00 AM   #4
Lolly
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When I was contacted by TykerbCares for the followup by phone, the rep said no grapefruit or products containing grapefruit. I asked if other citrus fruits were ok and she said yes, just no grapefruit...so then I realized the one Fresca I drink each day has grapefruit concentrate in it, so no more of that!
I'll ask my chemo nurses tomorrow if they know whether pineapple and any other fruits are a problem.

<3 Lolly
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Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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Old 05-16-2007, 01:49 AM   #5
Adriana Mangus
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No graprefruit

I also was told by the onc not to drink grapfreuiit juice as it interacts with the chemo, have you tried the new drink at jamba juice it's called pomegranate ....something? it's delicious and it's mixed with berries. I also add a boost of immunity+energy. It works for me!
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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