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05-03-2007, 07:30 AM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Living with cancer
Sounds like an exciting program, although I am sure we are all familiar with the content
http://em.mansellgroup.net/acs/LWC/LWCgen052007.htm
Regards
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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05-03-2007, 10:25 AM
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#2
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Thanks Joe, I just copied it to post but you already did. I am planning on watching it. Sounds interesting. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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05-03-2007, 02:09 PM
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#3
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Thanks Joe,
Have placed it on my TO DO list....
How is Christine? Please give her a big hug for me.
Regards,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-04-2007, 09:39 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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On my calendar too
Did anyone else hear the radio interview this morning on NPR with Ted's friend? I caught just the last half of it (it was on just before 5 AM here *yawn*). I have been following the blog from time to time and it has been very worthwhile.
A.A.
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05-04-2007, 12:57 PM
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#5
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Member
Join Date: Oct 2005
Location: Ohio
Posts: 8
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NPR Leroy Sievers
I did....good interview. I wondered if anyone else here had listened to it.
If you missed it, you can listen to it or read the interview and other items related to Leroy Sievers and the Ted Koppel special here....
NPR : Leroy Sievers' Cancer Conversations
Hope the link works. If not, go to www.npr.org and you'll see the story highlighted on the homepage.
__________________
Cindy
Dx Feb 23, 2005 Age 40
R breast lumpectomy/ax dissection. Stage 2a Grade 3 IDC/DCIS
ER-/PR- HER2+++
2 out of 9 nodes +
DD A/C x4 Taxotere x4 with Herceptin
Herceptin started 12 weekly then every 3 weeks.
Rads 36
Finished Herceptin May 24, 2006!
R 4mm lower lobe lung nodule -stable"watching"
R breast lymph node/nodule -stable "watching"
2-14-08 Left breast reduction mammoplasty/abdominoplasty
Now I have a new perky boob to match cancer boob!
Oh and a flat tummy. :>)
3 Years!
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05-04-2007, 02:15 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Watery Eyes + Co Enz
Can't find the posting I saw yesterday with this issue. When I was on Taxotere my eyes dripped like a faucet. I clutched a tissue in my hand at all times. Try eating, cutting your food with one hand. I kept a baggie in my pocketbook to collect all the drippy wet tissues of the day. My nose was also a bit drippy. I went to 5 opthamalogists. Dry eye. I know. Felt like I had broken glass in my eyes, or sand. Pain. One doc put plugs in my tearducts. They fell out in two wks and didn't help. Another said if worse comes to worse we can unclog the ducts but that's a pretty major surgery involving the bone in the nose. NOOOO. 5th doc said DRY EYE. I said I know. He said, No severely dry eye. Taxotere dries out the mucous membrances throughout the body, stomach, vagina, nose and eyes. USE DROPS. I am. How often. 4 times a day. No -- you have to use something like REFRESH + (no preservatives) every hour. Really? Really. I did this. Watching the clock. Kept the little individual vials in my bag, on my night table, next to the toilet, etc. Within 2 wks., I was cured! GOOD LUCK!
ALSO -- THE THE PERSON LOOKING FOR INEXPENSIVE COENZYME Q10 -- My oncological BC/nutritional expert says to take 100. My husband buys it for me at Costco. You do have to watch "quality" on the cheaper brands of vitamins, but this seems fine. Good for heart, gums, energy, lots of stuff.
Wish I could find the exact right spot to insert this info, but chemo brain is real I guess. That plus computer savvy at age 62 is asking a lot.
LOVE TO ALL YOU FABULOUSLY SPIRITED FIGHTERS. I think of you all ALL THE TIME! ANDI
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