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08-15-2008, 03:18 PM
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#1
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Senior Member
Join Date: Nov 2007
Location: We presently live 1 1/2 hrs fr a city. in manitoba canada
Posts: 148
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almost a year since surgery
hi everyone, its been awhile but with two children you have no choice but to live your life in the fast lane. Just wanted to share that its almost my caniversary. So to celebrate i thought i would have an ooph and go to Chicago!! Nothing like mixing it up. Very excitied about all the culture,art museum..etc. We are planning our trip around the world music festival that is happening in Sept. It has been a rollercoaster year...and well we just need a break as all of you can relate. Just wanted to thank everyone for all your kind words, words of encouragement. I know its all long road to ever really feeling sane again. I'm at the half way mark with my herceptin all is going well. I'm hopful that i'll soon start the AI after my ooph!!
If anyone has words to share regarding Chicago please email me.
cheers,
suzanne
__________________
suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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08-15-2008, 06:39 PM
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#2
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Suzanne,
It was nice to hear from you and I am happy that things are going so well in your life. Yes, you're right, when children are around...life surely goes on .... and in the fast lane all of the time.
Enjoy the ride and thank God for you good health.
Hugs to you...
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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08-15-2008, 07:58 PM
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#3
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Hi Mimi
Congrats on the almost one year!!! Nice to see you posting and
happy that you are feeling good and will be taking a vacation.
Have a great time in Chicago.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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08-15-2008, 08:49 PM
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#4
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Congratulations Mimi! Time does roar by when you have children. Thanks for taking time out to keep us posted. Love ya, Bill!
__________________
For Nicola
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08-15-2008, 11:51 PM
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#5
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Congratulations on your one yr mark!! Way to go!!
Have never been to Chicago but heard it is a great place to visit! If you have your oophor via laparoscopy, it should be a breeze with lots of time and energy to devote to your trip!!
Have a great time at your celebration!!
maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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08-16-2008, 05:04 AM
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#6
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Suzanne
Congrats on your big anniversary....WAY TO GO!!!!!Chicago...so many things to do....so many choices...my top picks would be to tell you to:
* Do a CUBS game...this is their year!
*ride the ferris wheel at navy peer
*go to Millenium park downtown (great ice skating in the winter)
*see the "bean" while at Millenium Park
*Shop the magnificent mile aka gold coast
*hit the museum of science and industry, aquarium and field museum..Lincoln Park Zoo Downtownand the art institute.
*be a south sider, Do a white sox game
*See if the Bears are in town for a home game
*Take in a show..Jersey Boys, Wicked is ending soon
* Eat a Chicago Style Hot Dog!!!! and wash it down with some Chicago Pizza
I'll think of more....hope your vacation is long!!!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-16-2008, 08:54 AM
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#7
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Senior Member
Join Date: Nov 2007
Location: We presently live 1 1/2 hrs fr a city. in manitoba canada
Posts: 148
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a year since surgery
thanks Marejo, pink...bill and harrie.
harrie i will be having laparscopic(sp?) proceedure
Sheila thanks for all the suggestions. We will be at Millenium park our first night for the world music fest.
You have many good ideas are you from Chicago?
thanks
Suzanne
__________________
suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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08-16-2008, 09:13 AM
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#8
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Congrats Suzanne. I'm glad you're doing well and are so busy too. Busy is better than bored.
Your ooph will be a breeze. I had mine that way. Sheila has great suggestions (she lives near there) and I have done the Navy pier and the magneficient mile too (better this time of year - I was there in February on a quick business trip to Wrigley (the gum people) which is by the mag mile and its then that you know why it is called the windy city).
Enjoy everything
Love and hugs,
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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08-16-2008, 09:54 AM
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#9
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Senior Member
Join Date: Nov 2007
Location: We presently live 1 1/2 hrs fr a city. in manitoba canada
Posts: 148
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hi Becky..we were told this was a gd time to see chicago..so hope to do lots of walking, navy pier also but i know we can't see it all.
I see the surgeon for my consult Aug 25 then we will know more about a date.
After so much research, talking pondering..it became clr in my mind that i need to get off the tomaxifin before my herceptin is completed. Most research seems to point in that direction AI. I will admitt i'm scared of the future consquences for my bones & heart muscle. I will try to beg for zometa but not sure if this is standard care for early bc. Any more insight is alway welcomed.
take care
suzanne
__________________
suzannne
dx aug10/07
3 pos high, grade 3
tumor 2.5cm multifoc
bil mast recon sept 24/07
neg snb/neg lymph vascular
clear marg
chemo a/cx 4 rds
tomoxifan started feb11/08
herceptin to begin soon
herceptin completed feb/09
aromacin(A.I)for as long as i can
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08-16-2008, 02:01 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Suzanne
When you go for your consult on the ooph, have the gyne give you orders for a dexa bone test. It will measure the density of your bones at the hip, lumbar spine and neck. This test will ascertain if you have osteoporesis or osteopenia ("pre-osteoporesis) right now because I did have osteopenia (just starting) when I got mine 4 days after my ooph. At that point, my gyne and onc concured that since I was still getting Herceptin and in the IV stage anyway, getting Zometa every 6-9 months was a good solution. It may be for you too (plus now they are touting that it has anti-cancer, anti-recurrence properties too). It doesn't hurt and you should know the condition of your bones before going into this anyway. (Let's just pretend - maybe your bones are in bad shape right now. If they are, it might may make a huge difference in whether to get the ooph or not. This very most likely won't be the case but you should know your bones' condition so you can remedy that with Zometa or another drug).
Peace
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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08-16-2008, 08:22 PM
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#11
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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HEY SUZANNE!
Good to hear from you. Hope all has been going well and hope that your whole family has reached an even keel.
Glad you have come to a conclusion about AI's and which route to take with your ovaries. Just making the decision will take a load off your shoulders. Becky has good advice about a baseline dexa scan. I had to show a decrease in bone density before my insurance would approve Zometa, but my second scan did show a decrease. After having Zometa, I had an increase in density. So it is definately worth it if you can get it approved.
I haven't been to Chicago, but it sounds like Sheila should be a tour guide! Enjoy your trip and keep us informed.
My best to you,
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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08-16-2008, 08:58 PM
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#12
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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I spent a week around July 4th in Chicago in 1986. Lake Michigan supplied the cool air and I couldn't believe how comfortable it was there in the summer. People were nice and it was interesting to see them actually fishing and cooking the fish right there by the lake.
Have fun and don't forget to tell us about your "September in Chicago".
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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