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Old 04-07-2013, 06:20 PM   #21
jacqueline1102
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Re: Why i take supplements

Hello,

Dr. Keith Block is a specialist with integrative medicine and oncology. He is located in Chicago, Illinois. My treatment team supports his work. I have yet to make an appointment but have talked with them. You may also check around your area (the medical schools within your area). DO's support the integrative component of health care and may know other physicians whose speciality is oncology. Hope this helps,

Jackie
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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Old 04-08-2013, 04:56 AM   #22
NEDenise
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Re: Why i take supplements

Andi...
Have I mentioned lately how much you rock!?
I love the story about your boy! I have a giant black lab who came to us through a rescue. They said no one wanted him. He was only 6 months old and had already been abandoned...then rescued twice and returned because he was too aggressive. When I went to meet him, they warned me. Andi, I am not exaggerating when I say that I sat down on the ground, and this 50 pound pile of gentle love crawled right into my lap. It was absolutely love at first sight. Clearly, someone had been mean to him. He was on guard...but he knew his new "mom" the minute he saw me. His foster parents were amazed! Evidently, he normally growled and avoided new people (even them at first) for days before warming up at all!

Is he protective? Absolutely. When new people come into our home, he has to be crated. But on a walk, or at the vet...he couldn't be friendlier. I tell him constantly how beautiful he is, and he answers to Good Boy as well as his real name! Positive energy, and love...the keys to happiness...and HEALTH I hope!

Now...on to less interesting things... ... fortunately,, I don't have any pain. My only brain swelling symptom is that I lose my balance and my hands shake when the pressure increases. All things considered...things could be much worse. Now...don't get me wrong...I'm no martyr...I'd LOVE not to have any symptoms. But compared to what some of our sisters are dealing with...especially our dear Chrisy...I'm blessed.

You've inspired me to talk to my body as it's healing. I've been narrating the decreased swelling. I do it in my best movie narrator voice. As an elementary teacher, I've grown pretty adept at the whole reading in different voices thing. So inside my head, I sometimes get to chuckling as the narration gets more and more elaborate...but then...laughter is my best medicine!

Right now, the swelling is just a stupid, amorphous blob, that doesn't say much. But, the key players on my team are real hardasses. Yesterday, the lead butt-kicker was a Tony Soprano type guy...with a heart of gold, of course...for me it's really about the accent and the way he talks. Today, perhaps the immune boosting echinacea will have YOUR face as it kicks things into gear! Now that should be entertaining!!

Oh, and please don't ever apologize to me for long posts! I love long posts myself...and if people get bored...they don't have to finish reading. And, I like changing fonts and colors too!


Hope you have a day filled with everything that makes you glow!
Denise
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1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 04-10-2013, 02:25 PM   #23
Andrea Barnett Budin
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Why i take supplements

Oh NEDenise... Hi there!

I am thrilled to hear that LOVE conquered all. Sitting down on the ground/floor w/pups and babes is one of the smartest things we can do. Though, it gets harder and harder to get back up, I must admit.

Your positive energy is felt EVERYWHERE. My computer is lighting up from you!

Just have to give you the whole story here. My rescued Maltese survived till 4 mnths w/his bro. The rescue lady wanted them to be taken together cause they'd been through so much together. So -- we took both. And both are now fine. The one I mentioned previously was the sickest, though both had mange. The littler one protected the big lug, who we thought was just dumb. But when all his hair fell out, we realized how truly sick he was. And we changed vets, which meant changing his meds. New vet said, totally wrong tx. My BOYS are now 10. AND -- we just rescued another maybe 1 yr old.

Looks like a Maltese and a Jack Russell got together. He bounces when he walks, little Jack ears. He was emaciated as he didn't fare well lost somewhere in Coral Springs. A cop found him and brought him (and his flea infestation) to the Humane Society. They shaved the poor skinny fella. He wasn't much to look at, but the moment our eyes met, I was in love. He's been with us since Feb. 1... Oh -- and we discovered -- he is deaf! All the more reason to love him. We do hand signals. And use a small flashlight to try to get his attention. Sooooo sweet. We have 3!!!!!!!!!!

So, on to less exciting things, as you say, Denise. I am hoping that the supplements will help your symptoms. Is the hotness still raging? I truly hope you get cut a break with that one at the very least.

I love that you use method acting to tease your body into cooperating. I too use the voices when I read to my grandkids or their classes. I really get into the roles. Fun is so healthy!

The body talks to us. We have to listen. Take its cues. When it is distressed it tells us -- w/sometimes subtle and sometimes not so subtle -- symptoms. Every ache or pain is telling us we're doing something right, or we need to switch to Plan B.

Keep us all posted re your reactions. When my husband couldn't walk (from the large dosage of statins he absolutely needs to be on) I read about the L-Carnitine/Alpha Lipoic Acid/Co-Enzyme Q10 combo. In a very very short period of time he was not in pain. Was limber. Getting down on the floor w/my grandsons and playing marbles (as he'd done as a kid). You could see the joy he was having. And the kids were excited to have a playmate.

The glow from that reminds me why I am still here. I don't want to miss a thing. Not the birth of the first grandkid (who's now 16) or the second, third, fourth or fifth. Went to the Bat and Bar Mitzvah of two so far. Ready and eager for lots more to come........................

Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 04-26-2013, 05:48 PM   #24
Andrea Barnett Budin
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Why i take supplements -- WE NEED TO BE ECLECTIC...!

Feeding your Soul / Spirit is as important as taking supplements. Which means giving yourself the gift of -- seeing yourself IN VIVID DETAIL far far far into the future!!!!!!!!! Using VISUALIZATION as Jackie mentions is part of the recipe for success w/canser. Your posts are fabulous, Jackie. So much good stuff. Please -- KEEP IT COMING!!!

I have been using this Guided Imagery technique since '98 -- seeing myself at my then 2 year old first grandchild's Bat Mitzvah (which occurs on your 13th Bday).

I am past the services, at the celebration. I'm standing and clapping with all in attendance, as Josie enters the dance floor. I am surrounded by my husband and family and friends. Radiant. I look great. (If you're going to visualize, you better believe you should be glowingly beautiful, from deep down inside out!)

I LIVED THE DREAM, and then some... My granddaughter is now 16!!!!!!!!!

Elaine -- please update us. I know you take lots of supplements, but were considering more. Did you ever run any by your onc??

Denise -- gosh, I am totally aware of alllllll you are going through, but was still wondering how the hot flashing was going with the Evening Primrose Oil. You should have at least that not to worry about. In fact, I was searching for your latest update. Did I miss it? I think of your witty and wonderful Self all the time!!! Honestly!

I'm presently reading OUTLIVING CANCER -- Cancer Doesn't Grow Too Much, IT DIES TOO LITTLE & Why That Matters (Robert A. Nagourney, MD). I am only 1/4 of the way through and I am quite motivated to keep returning to it when I catch a moment. Fascinating read.

This onc is all about eliminating chemoresistance! You know how I tout CAM -- complimentary alternative medicine...

He believes that cancer is a metabolic disease; a metabolic disorder, a disease of changed energy production. That heart health equals cancer prevention. That appropriate management of blood lipids and maintenance of blood sugar are key.

Exercise induces changes in cellular physiology, effects bone density and well-being associated w/endorphin release which has a profound influence on cellular metabolism.

He speaks of psycho-neuro-immunology (one of its' father Hans Selve, MD) which our Brenda introduced me to many years ago and I readily embraced. It made such sense! Emotional stress causing disability, adrenal hypertrophy, gastric ulceration, immune deficiency -- all byproducts of chronic stress.

The close association between the sympathetic nervous system, the hypotalmic-pituitary-adrenal axis, the disruption of momeostasis that can PREDISPOSE HUMANS TO SUCH VARIED ILLNESSNES AS CARDIOVASCULAR DISEASE, PARKINGSON'S DISEASE, THE METABOLOIC SYNDROME -- AND CANCER.

In answer to Europa's quest for an integrative doc, Jackie mentioned Dr. Keith Block. Well Dr. Nagourney who wrote this book I am raving about, also speaks of Dr. Block, Medical Director, Block Center for Integrated Cancer Treatment and Director of Integrated Medical Education, University of Illinois College of Medicine. HE IS STATED AS DEFINING A PERSON'S SUCCESSFUL RESPONSE TO ILLNESS AS THE INTERSECTION OF IMPROVED LIFESTYLE, BOOSTING BIOLOGIC COMPETENCE (DOES THAT MEAN SUPPLEMENTS AND EATING HABIT????) AND ENHANCING TREATMENT OPTIONS. REDUCTION OF OXIDATIVE STRESS AND INFLAMMATION.

As Dr. Christiane Northrup says, All bodily dysfunction begins with inflammation!!!

WE MUST BE ECLECTIC. ELECTICISM, THE CAPACITY TO DRAW UPON DISPARATE DISCIPLINES, IS THE WAY TO SUCCESS.

Dr. Nagourney says, I given conventional treatments unconventionally and give unconventional treatments conventionally. Hmmm...

Einstein told us that, "What you cannot see can be".

Dr. Nagourney has had over 20 years experience. During his medical oncology fellowship at Georgetopwn University, he confronted aggressive malignancies for which the standard therapies remained highly unsatisfactory. Responding to an unmet need, he pioneered the development of PERSONALIED CANCER THERAPY, applying a laboratory platform to match patients to therapies based on their unique response profiles. FUNCTIONAL PROFILING in human tumors is his thing.

I have a list of docs he recommends in Huntington Beach, Calif, Greenwich, Ct, NYC, Phoenix, Az, Mesa, Az, San Francisco, Calif, Portola Valley, Calif -- for anyone who lives anywhere near there or is willing and able to travel there. Please, just ask...
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 04-26-2013, 06:04 PM   #25
europa
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Re: Why i take supplements

Hey Andi!

Could you post the docs he recommends in NYC? I'm in DC so that's only a 3 hour train ride.

Thanks!
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PET Scan + MRI 10/2011
Lumpectomy 11/11/11
Stage 2B +++ ER+(10%), PR+(5%), HER2+++(1 positive node, 1 micromets to second node)
AC started 12/2011 ended 1/2012
Taxol + Herceptin weekly for 12 weeks ended 4/2012
30 zaps of radiation done 6/2012
Tamoxifen 6/2012
every 3 weeks of Herceptin for another year.
Metformin Trial 8/12
10/12 MRI- CLEAR
01/13 BRAIN MRI- CLEAR!
01/13 Neck MRI- CLEAR!
FINISHED HERCEPTIN 1/9/2013...Woot Woot
Starting Walter Reed Vaccine Trial 2/13
CT Scans + ultrasound of abdomen CLEAR-5/13
02/2015 through 11/2015 emergency D&Cs for Tamoxifen induced uterine polyps which caused uncontrollable hemorrhaging
12/2015 blood clot to left leg caused by Tamoxifen. No longer taking it. On Xarelto, a blood thinner
12/2015 Ablation to prevent hemorrhaging from potential issues with Tamoxifen residue in my system
1/2016 continuing journey without hormonal therapy. Reevaluating the option of a hysterectomy and oopherectomy.
4/1/2018 2mm stroke. Yes, stroke! No cause ever found but they believe it was a migraine that went bonkers and created a tiny clot. No deficits. I was back to normal with 24hrs. Now on baby aspirin for life.
7/27/2018 hysterectomy and oopherectomy
01/07/2019 Mastectomy and expanders put in
3/22/2019 Vtach, almost died. Cause unknown.
7/22/2019 New perky boobs put in
7/21/2020 Off of all drugs but a baby aspirin because of the stroke in 2018.


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www.facebook.com/mychemobag

8 YEARS NED
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Old 04-27-2013, 02:19 PM   #26
Andrea Barnett Budin
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Re: Why i take supplements

Okay Europa, Dr. Nagourney suggests:
Henry Dreher, MA
Cancer Guide Consultations
84 East 3rd Street, #2C
New York, New York 10003
347 - 344 - 7057

" Mr. Dreher conducts research for patients with all types of cancer, providing expert consultation on the most effective cancer treatments available. In phone consultations and written communications, he educates patients on the most promising therapies; guides them through the process of testing of their own tumor tissue for the design of personalized drug therapies; refers them to leading experts in their cancers; and empowers them to develop their own 'team' of oncologic experts.

"He also helps patients to integrate scientifically grounded complementary therapies (nutrition, natural compounds, mind-body medicine, fitness, etc.) with cutting-edge mainstream therapies."

More than 25 years experience as a researcher, educator and patient advocate. Brings a unique body of knowledge to his practice. Has authored nine books. His most recent is Mind-Body Unity: A New Vision For Mind-Body Science and Medicine (John Hopkins University Press)

Please let us all know what you learn and how you're doing. Wishing you Life's best... Keep the faith. Listen to your Inner Voice!

Love,
Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 04-27-2013, 02:57 PM   #27
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Wink Re: Why i take supplements

I believe in integrative medicine too. Does the doctor you mentioned have a website Andrea?
I promised to share the names of some of the supplements I take, so since I visited my naturopathic physician last week and he adjusted my supplements I thought it would be a good time to share the names with you.
Co Q 10
Milk Thistle
Calcium and vitamin D
B 12 (He found a deficiency.)
Maitake mushrooms or I cook with shitake mushrooms
Selenium
baby asprin
Evening Primrose oil
Curcumin or I cook with tumeric
(The active anti inflamatory ingredient in tumeric is curcumin.)
for an explanation of what these supplements and other supplements do follow the link below.
http://www.lef.org/magazine/mag2012/..._Cancer_01.htm
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Old 04-27-2013, 03:51 PM   #28
Andrea Barnett Budin
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Re: Why i take supplements

This is an amazingly great link, Elaine...! Thanks for sharing.

I know the importance of selenium (which is included in my RM-10 mushroom blend immune booster). So that's 1 pill I can skip. I think 200 mg is what Dr. Andrew Weill recommends on the selenium.

So glad you had your B-12 level checked. I do this periodically along w/Vit D. I have to request that my docs include those among my blood orders.

Your article speaks of the enormous control we as individuals have within our grasp!! EMPOWERING, RIGHT?!!!

That's how I feel about my supplements. (With IBS issues since chemo, there are many foods I cannot tolerate (digestively speaking). So I can't rely on diet alone. And the large portions of fruits and veggies we are supposed to ingest a day is not so easy even for those who enjoy and can eat them. Again, the supplements supplement my diet. Sounds funny, I know...

I take 1 baby aspirin every night. Very important! (I take a whole one on Sundays.) Guards against stroke too.

I take Green Coffee Bean Extract cause I don't drink coffee (don't even like coffee ice cream!) and I know how important it is to our lives, medically speaking. It lengthens our lives, AND it helps fight against cancer.

I take Resveratrol and Green Tea. I have Lycopenes in my Phyto Formula for my chronic fatigue (w/OJ). I take 10,000 Vit D 5 days a wk and still register in the low end of the normal range. As we age, our bodies' demand for D increases. Our organs need help to function well.

I am missing a few, but I think I can't swallow one more pill -- CAPSULE/SOFT GELS O N L Y...

I do not take soy though I did at one time take soy insoflavones. My nut onc (nutritional oncologist) in NY told me to only take natural soy, no powders or pills. My hot flashes at the time were so drenching horrid, I swear if they sold Estrogen in the vitamin store I would have bought it. (I was on hormone replacement therapy for a very very short period of time, trying to stop menstrual bleeding that was more like hemoraghing (no idea how to spell that!). I am post menopause now. But the hotness continued. The evening primrose oil seems to be controlling it now, after 27 yrs of flashing...

Elaine, and those interested -- I found the following:

Henry Dreher | Omega

I see a 212 - 228 - 0322 phone # on line for Henry Dreher.

Also -- www.henrydreher.com

AND -- came upon --

Naturopathic Medicine for Cancer Treatment | CTCA

HERE'S TO HEALTH & WELLNESS. I'm sipping wine while typing... )

Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 04-28-2013, 03:25 PM   #29
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Wink Re: Why i take supplements

Thanks for the link. I will look at it later.
Oh yeah. Mushrooms have selenium. I decided to look and see which foods have it. According to the website below several kinds of mushrooms are on the list.
http://nutritiondata.self.com/foods-...0000000-1.html?
Yes. I agree. We have a certain amount of control over our bodies even with cancer.
Take care.
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
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Old 04-28-2013, 04:52 PM   #30
Andrea Barnett Budin
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Re: Why i take supplements



SEA LION???? I couldn't possibly... Selenium by pill only...

Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 04-28-2013, 04:53 PM   #31
kvogler
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Re: Why i take supplements

I heard a news story the other day saying that Gingko Bilboa has been found to cause tumors in rats and that it may be pulled off the shelves. I don't take it so I didn't give it more thought. Of course, everything seems to cause cancer one day and not the next. I'm just enjoying my coffee today because a report came out stating it prevents a recurrence. But give it a week, and it will be causing something.
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Old 05-05-2013, 04:39 PM   #32
Andrea Barnett Budin
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Re: Why i take supplements

Please, if you haven't already -- check out the GARLIC, WINE AND CHOCOLATE thread.

More about supplements and foodstuffs that help inflammation, promote tumor cell death (apoptosis) -- and energy medicine!

I am having grand success w/a simple 2 minute ibs technique for -- diarrhea -- if anyone is interested in this.

Plus energy medicine for boosting your energy. Insomnia. And more. Takes a few minutes to do and works almost immediately.

I am amazed. And delighted. Life-changing...

Any interest???

LOVE,
ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 05-14-2013, 06:13 PM   #33
Andrea Barnett Budin
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Re: Why i take supplements

It occurred to me yesterday, midst OUTLIVING CANCER book (Dr. Robert Nagourney) -- MUST READ! -- that my supplements are in fact my MAINTENANCE THERAPY.

They aided me in not succumbing from all that nasty but effective Taxotere -- gotta just bite the bullet and go for it. My supplements helped keep my ejection fraction up (Arginine 500 immediate and 500 sustained release) actually works. Opens the blood vessels. Keeps the heart strong to withstand it all.

The stuff I still take for energy, just always low on the stuff, truly HELPS BIG TIME.

And though I am nearly 5 yrs off Vit H (Herceptin as I always refer to it, after 10 yrs on it) -- I would not even consider for a second stopping my MAINTENANCE THERAPY aka supplement regimen.

It's a pain in the butt. 2 x a day. Every darn day. Swallowing one at a time, stationed in front of the TV, focusing on whatever rather than the swallowing process -- is a true chore. But I am dedicated. I see the miraculous results. I feel the results. I KNOW I am doing all I can to remain healthy and well, stable, energized, no pains (co enz q10, alpha lipoic acid and carinitine), also Wobenzym 1 pill 1/2 before meals. D. All the Bs. C. Calcium. Omega 3 (RB is surely proud of that).

I go in to detail way above in this thread, for those who are interested in dabbling. I order on line @ Vitacost.com cause their quality is good and their prices discounted. Order $50, easy, and you get free shipping.

HERE'S TO YOU ALL! HEALTH AND WELLNESS!!!

Much love,
ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 05-15-2013, 06:22 AM   #34
Cat
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Re: Why i take supplements

Hi! I have a question. I have read so many things regarding nutrition etc. from fasting before during and after chemo to "starve" the cancer cells to adding all sorts of supplements. Is it different in remission vs treatment? I am so frustrated because I want to keep my body healthy and do what I can to beat this thing back. I asked my onc about the idea of not nourishing the cancer during a previous tx and he suggested holding off on supplements around tx days. Now I am reading about other things I was not aware of like selenium etc. and don't know if it's something to worry about if/ until I get to remission. Thanks for all the great info I get from this whole site you ladies are so informative and fun to listen too.
__________________
3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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Old 05-15-2013, 09:15 AM   #35
Andrea Barnett Budin
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Re: Why i take supplements

Hi Cat,

I hear you. I was just where you are now in '98 (when my 4th stage bc spread throughout my liver). After my initial dx/mastec/tram flap reconst ('95) I received loads of beautiful flowers, heaps of books and an outpouring of love and support. I was 50 yrs old. Way too young to die, I kept thinking.

I'd read Dr. Mitchell Gaynor's book (one of the stacks of books I'd received). It was 5 AM and I'd gone into the bathroom to read, not to wake my husband. With the lid down, I sat and read. On the 1st page I was covered in goosebumps. I KNEW I WAS GOING TO LIVE! Dr. Gaynor is an integrative oncologist, including meditation, guided imagery and sound therapy. He is an expert in all and most especially in nutritional supplements. I call him my nut onc.

He is not your average brilliant onc (I had accrued about 5 between NY and Fla where I lived at that time).

He totally believes in the mind/body connection -- WHEN THE MIND SPEAKS THE BODY LISTENS is a thread I started, you may want to find (if it isn't on page 1 -- it's on page 2 of the threads). I'd had personal experiences with 2 yrs of debilitating back pain, when my kids were young and really needed me 24/7. Also when I had a kidney stone the size of Texas that I refused surgery to remove and used my mind. And gallons of water to help move it along. I personally experienced the power of our minds and it was AWESOME!

So on tx in '98 my oncs all said -- wait to take the supplements -- which mainstream docs just don't know much about and don't trust. I repeated this to my nut onc and he said, rather passionately -- NO! DURING TX IS THE MOST IMPORTANT TIME, THE TIME YOUR BODY MOST NEEDS HELP TO COPING WITH THE SIDE EFFECTS OF TX!!!!

My Inner Voice told me that made perfect sense. I tend to listen to my docs direction, but in this case, with my gut feeling so strongly against what they were saying -- and it being MY LIFE we were talking about -- I bravely chose to take the long list of supplements, every one, that my nut onc recommended.

I KNOW it helped me get through the ravaging effects of Taxotere! I KNOW it helped me stop the shingles I acquired about 1 mnth into that tx (my immune system being so compromised). Generally shingles can last mnths, even yrs. I was firmly told I COULD NOT RECEIVE CHEMO WHILE I HAD THE SHINGLES. I knew I had less than a 15% chance of living for a year, 5 yrs tops. I planned on living till I was 100, and in good health with a sharp mind!!

I took more supplements targeting the Shingles virus. And in 10 days I returned to my oncs office. How are you doing?, he smiled and asked congenially. I'd known him for 3 yrs and we were close. He had 3 dghtrs and empathized perhaps even too much w/my situation(s).

I'm good, I said. He almost laughed I could see. He said, Let's have a look. I was seated on the exam table. My husband in a chair by my side, as always. I lifted my shirt. My onc circled me, checking out my torso, and was amazed. You're right! All the pustules have scabbed over and healed up. You can have chemo today if you want.

I wish you the very best, Cat. I almost said best of luck. But I believe we help create our own luck with knowledge, insight, unwavering fortitude, positivity, self talk (talking to your body and leaving commands for it to get its' act together), an open mind and an open heart.

I am sending you Love and Light. Please keep us all posted on your journey. Sharing is what this fabulous site is all about. We are here to help one another and grow...

Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 05-15-2013, 02:48 PM   #36
Cat
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Posts: 184
Re: Why i take supplements

Andi, Thank you so much for your positive input and support. I became teary eyed when I realized how long you have been going strong. It does make a lot of sense when you put it that way. I think I have tolerated the chemos I have been through quite well and have missed only 1 tx due to a staph infection and fever so I wonder if it has something to due with my attitude of "it's not my time". I hope so. I have always taken eating right and getting lots of water seriously even though I "supplement" my healthy food with some "junk food" too! My onc has come to respect my instinct so I will be looking for Dr. Gaynor's book and hopefully I will get goosebumps too. Thank you again
__________________
3/06 DX stage III er-pr-her2+++ breast, 1+node
age 49 and 364 days
3XAC 4X taxol and herceptin continue herceptin one year
bilat mastectomy w/TRAM
32 rads
9/08 recurrance 4 sternal nodes
mediastinoscopy, able to remove 3
taxotere, carboplatin, herceptin, x6
continue herceptin indefinately
5/10 recurrance in same node/area
mediastinoscopy, removed nodes
added tykerb
27 rads
10/18/10 PET shows inflammation no active disease
8/2011 recurrence one right mediastinal node, xeloda and proton radiation to node.
D/C xeloda due to toxicity
12/5 PET scan clear
2/2012 colon blockage, breast cancer
(never thought it could go there! thought I was constipated)
start abraxane, herceptin, continue tykerb
10/2012 Kidney ablation (renal CA!)
3/2013 CT and biopsy R kidney (BC met to R kidney)
4/4/2013 Begin Kadcyla
7/30/13 Craniotomy cerebellar mets, 1.7cm 3cm
Sept 4-6 post op cyberknife
Sept 23 ablation right kidney (blow up pesky breast ca met)
Oct headaches MRI Oct 10 (only surgical changes ! Yay!)
Short of breath. CT, pulmonary function, echo
New crap in right lung heart good. Pooh!
12/13 DC kadcyla. Begin halaven
2/14 MRI brain NED Yay!
4/3/14 CT mostly stable but breast mets r kidney growing
4/16/14 ablation right kidney again
Continue halaven, tykerb
dc halaven gemzar?
2nd opinion May 14
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Old 05-15-2013, 03:05 PM   #37
Andrea Barnett Budin
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Re: Why i take supplements

Keep listening to your Inner Voice. That's your Spirit talking to you. It is full of eons of wisdom and it wants what you want. It loves you more than you love yourself. So trust it. Stay in touch with it. Connect with it. Align yourself with that "Knowing". It is the True You. Many call this Inner Voice their gut. Their instincts rising up...


If you KNOW a thing (deep down at your core) -- it will be. IOW, if you KNOW you're going to fail -- you are sealing your destiny. Whereas, if you KNOW you can and will prevail -- you are calling your desired goal to you!!!!

Your gut is your Inner Voice. It's your SOUL! It guards and protects you. It nurtures and sustains you. LISTEN TO YOUR INNER VOICE. It is an eternal sacred entity that is always with you! You are never alone. Never. (I talk to mine all the time!! Yes, I talk to my body, and I talk to my Spirit -- at the very Essence of my beingness.)


And Dr. Gaynor understood this as I read his book, Healing Essence. I couldn't even make sense of the title when I read it in 1995. Now, I see! Your Essence is your Spirit. Your Essence is alive and getting well. Believe in its power!


Sending Love, Light and Positive Energy. I live in the Land of Yes! Join me, please...



Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 05-15-2013, 06:14 PM   #38
conomyself
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Posts: 111
Re: Why i take supplements

I like to visualize too...

I picture my husband and me at age 100 living in the old folks home with our iPads

I try to really imagine it in detail every day...

Thanks for all your great posts Andi, I love to read them!!

Rachael
__________________
7/30/2012 Diagnosed with metastatic breast cancer
8/3/2012 CT scan mets to liver (major!!), lungs, spine, and skin
8/8/2012 Biopsy results: invasive ductal carcinoma
ER+/PR+/HER2+ amplification 4.8 (whatever that means)
8/13/2012 Brain MRI (clear); bone scan verified CT scan
8/14/12 started Taxotere/Carboplatin/Herceptin, 2 rounds (added Neulasta after 9/4 treatment)
9/4/12 CA 15-3: >3000
9/15/12 CA 15-3: 840
9/15/12 started Taxotere/Perjeta/Herceptin, 4 rounds (no Neulasta)
10/29/12 CT scan showed dramatic improvement in all areas - largest liver met 2.5 cm, largest lung met 10 cm
12/17/12 Started Perjeta/Herceptin, 2 rounds
12/17/12 CA 15-3: 17 Yay!!!
1/21/13 CT scan showed improvement - largest liver met 1.9 cm, largest lung met 2 mm
1/29/13 CA 15-3: 12 Started Herceptin only
3/12/13 CA 15-3: still 12 yay!! Back to Perjeta/Herceptin
3/29/13 CT scan more improvement - largest liver met 1.2 cm, some lung mets disappeared!
3/7/14 started Tamoxifen
6/27/13 - 1/2015 CT scan stable
Began a diet of only single ingredient foods and went nearly NED excepts for some tiny lung spots - ask me if you want to know more...
1/2015 - 1/2017 CT scan stable
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Old 05-15-2013, 07:55 PM   #39
Andrea Barnett Budin
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Re: Why i take supplements

Guided imagery and affirmations or mantras are amazing tools. Essential to wellness.

I tell myself every day, throughout the day -- I AM STRONG, BRAVE AND DETERMINED. Even when I was scared to death, felt vulnerable, frail and emotionally shaken, I did know I was/am stubborn as all get out. The rest were goals. I drummed them into my brain, which communicates with my body all day long, and takes its cues from the mind's thoughts, images and emotions.

I would add, HEALTHY AND WELL. And after a while, I included -- NO MORE CANCER...!!!!!!!!! To be perfectly clear.

Stating my Intention and Expectation emphatically. Never wavering. Okay, yes, I had my weak, scary moments, naturally, but I did breathing, in and hold and out, over and over, to calm myself. And replaced my OMG I could die. I could be missing at all the holidays. My family gathered and me absent. Then I got myself together and literally saw myself there, for many yrs to come, laughing, loving, hugging, eating (of course) and being full of gratitude.

Every day, I look up and say, Thank you for my life. It brings me watery eyes as it comes from my Soul, my core. I know how blessed I am. I never get cocky. Never take anything for granted.

And I remain all along on maintenance therapy. 10 yrs of Herceptin. And 14 yrs of supplements twice a day, every darn day. (I've been off H for almost 5 yrs. My now annual scans due in June. Along w/my now ev 6 mnths bloodwork.) I expect to remain stable.

Wishing you all the same.

Love,
ANDI
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 05-23-2013, 05:38 PM   #40
Andrea Barnett Budin
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Re: Why i take supplements




What is Alpha Lipoic Acid?

Alpha lipoic acid is a fatty acid found naturally inside every cell in the body. It's needed by the body to produce the energy for our body's normal functions. Alpha lipoic acid converts glucose (blood sugar) into energy. Other names for it include lipoic acid, thioctic acid, and ALA.

Alpha lipoic acid is also an antioxidant, a substance that neutralizes potentially harmful chemicals called free radicals. What makes alpha lipoic acid unique is that it functions in water and fat, unlike the more common antioxidants vitamins C and E, and it appears to be able to recycle antioxidants such as vitamin C and glutathione after they have been used up. Glutathione is an important antioxidant that helps the body eliminate potentially harmful substances. Alpha lipoic acid increases the formation of glutathione.

Alpha lipoic acid is made by the body and can be found in very small amounts in foods such as spinach, broccoli, peas, Brewer's yeast, brussel sprouts, rice bran, and organ meats. Alpha lipoic acid supplements are available in capsule form at health food stores, some drugstores, and online. For maximum absorption, the supplements should be taken on an empty stomach.
Why People Use Alpha Lipoic Acid

1) Peripheral Neuropathy

Peripheral neuropathy can be caused by injury, nutritional deficiencies, chemotherapy or by conditions such as diabetes, Lyme disease, alcoholism, shingles, thyroid disease, and kidney failure. Symptoms can include pain, burning, numbness, tingling, weakness, and itching.
Alpha lipoic acid is thought to work as an antioxidant in both water and fatty tissue, enabling it to enter all parts of the nerve cell and protect it from damage.
Preliminary studies suggest that alpha lipoic acid may help. In one of the largest studies on the use of alpha lipoic acid, 181 people took 600 mg, 1200 mg or 1800 mg of alpha lipoic acid a day or a placebo. After 5 weeks, alpha lipoic acid improved symptoms. The dose that was best tolerated while still providing benefit was 600 mg once daily.
2) Brain Function

Alpha lipoic acid can cross the blood-brain barrier, a wall of tiny vessels and structural cells, and pass easily into the brain. It is thought to protect brain and nerve tissue by preventing free radical damage.

FOR MANY (INCLUDING ME) THE COMBINATION OF CO-ENZYME Q10 (150 MG AM/PM), L-CARNITINE (500 MG AM/PM AND ALPHA LIPOIC ACID (300 MG AM/PM) -- HELPS PREVENT ACHES AND PAINS, NERVE DAMAGE (FROM CHEMO)...



This 3 supplement combo is like a secret recipe -- for deep muscle and joint pain and for all the above reasons.

HERE'S TO YOUR HEATH...!!!

Love,
Andi
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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