 |
01-05-2008, 03:22 PM
|
#1
|
|
Senior Member
Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
|
Worried about liver mets
Hi everyone. I was hoping to vent. I am so very scared.
I have had pains on my lower right side for the last few days and now I am having slight pain (feels more like a muscle pull) in my right shoulder blade. I am so worried that this could be related to my liver. I had scans done at the end of October and those were clear. I am going to see my dr. for my three-month check-up on Friday.
I tend to still carry my four-year old daughter on that side and carry all heavy things on this side (since it is the opposite of my lumpectomy). Could the cancer grow that quickly in 2 months? Any thoughts would really help!
Lisa
|
|
|
|
01-05-2008, 03:44 PM
|
#2
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
Lisa! I know that you must be totally worried at this moment! But you know, it could be over doing it over the holidays or something else simple. I hope it is absolutely nothing! I'll be praying that that is so! But try to save the fear for when you get bad news and then for only moments! Don't let this stupid disease rob you of this week with your family! You'll know soon enough. "Own" this time til then, if at all possible! Maybe getting mad would help!
Lots of love,
ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
01-05-2008, 05:26 PM
|
#3
|
|
Senior Member
Join Date: Jun 2006
Posts: 153
|
Lisa, on word....gallbladder.
I had pains EXACTLY where you describe for over a year (right shoulder blade and below right rib cage). Two ultrasounds and a CT scan said there was nothing wrong with me. I had a HIDA scan and that showed that my gallbladder was functioning at 13%.
I was scared it was my liver too, but it wasn't.
__________________
|
|
|
|
|
01-05-2008, 06:02 PM
|
#4
|
|
Senior Member
Join Date: Sep 2005
Location: Lumberton, Mississippi
Posts: 118
|
Sounds like my gallbladder problems. I didn't have a severe attack but just annoying pains and going up to my chest and shoulder. I also though of a heart attack. But it was gallbladder. And this was before breast cancer. I still have nagging pains on the right side. I have been ultra sound, cat scanned, pet scanned and MRI'd, but nothing. So I just ignore them now. I have said a prayer that this is something simple. You take care.
Linda
__________________
Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05
"Worry looks around. Sorry looks back. Faith looks up."
|
|
|
|
|
01-05-2008, 06:14 PM
|
#5
|
|
Senior Member
Join Date: Jun 2007
Posts: 2,210
|
I agree with the others. It is interesting that gallbladder pain can be experienced in the right shoulder. But it happened to me too.
Or it could be the lifting, etc, that you've been doing.
ETA: amazing that we consider it a GOOD thing to "only" have a gallbladder attack!
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
|
|
|
|
|
01-06-2008, 07:48 AM
|
#6
|
|
Senior Member
Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
|
Thank you so much for your responses. It has helped my "psyche" tremendously! You guys are awesome!
|
|
|
|
|
01-06-2008, 08:58 AM
|
#7
|
|
Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
|
Although I agree with everyone - still get it checked out by your onc to be 100% sure. Unless it goes completely away - don't just ignore it. Even if it is a gallbladder attack, you may need treatment for that.
Love and a hug to you
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
|
|
|
|
|
01-06-2008, 05:30 PM
|
#8
|
|
Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
|
Hi Lisa,
I don't have a clue what it could be - of course - but DO have a clue on how it feels to worry about those pesky problems and always wondering if the cancer has returned. I've had many scares (as we all have) and for me each time is is nothing.
Of course you know you have to tell your onc. and they will determine for you what it is.
I'm only responding so I can tell you that I know how you feel - I know that unsettling feeling we get - BUT I also know that it can all turn out well and that each pain we get isn't always cancer.
Just wanting to encourage you and to say I understand,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
|
|
|
|
|
01-06-2008, 05:40 PM
|
#9
|
|
Senior Member
Join Date: Jun 2007
Posts: 2,210
|
Oh, yes, I agree with Becky. Even if it is "just" gallbladder, it needs to be checked out. I had to have surgery. Not saying you will......
__________________
Bonnie
Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
|
|
|
|
|
01-06-2008, 06:09 PM
|
#10
|
|
Senior Member
Join Date: Dec 2005
Posts: 148
|
Hi Lisa,
Are you on aromasin and Tykerb...
I have similar feeling and I am going to the doc tomorrow...
Regards,
RUpali
|
|
|
|
|
01-06-2008, 07:11 PM
|
#11
|
|
Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
|
I had the same worry after celebrated New Year. But when I saw my oncologist for a routine check Wednesday, he did not even try to take a look. Then I realized that I had cleaned all the ceiling fans in my In-law's house - 7 of them- before Christmas. That must be the cause of it. I am going to wait a couple more weeks and see if it will go away.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
|
|
|
|
|
01-06-2008, 09:45 PM
|
#12
|
|
Senior Member
Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
|
Thanks everyone. I finished Herceptin almost a year ago.
The pain in my shoulder went away after some tylenol today and it hasn't come back. I am hoping the side pain will go as well.
I am going to the doctor on Friday. I will keep you updated. Thanks again!
Lissa
|
|
|
|
|
01-09-2008, 02:01 PM
|
#13
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Having abdominal ultrasound on Friday
Doing this as I too have been having symptoms of gall bladder trouble. The pains, some nausea and tenderness in my right front abdomen. This thread got my attention focused and I saw my GP yesterday.
Having already had liver mets, I knew this seemed different.
Hope Lissa's pains will be just a form of "ceilingfanitis."
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
01-09-2008, 03:23 PM
|
#14
|
|
Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
|
Hi lISA,
I agree with Becky get it checked better to be safe and have no worries then to worry. Your in my thoughts and prayers.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
|
|
|
|
|
01-19-2008, 12:12 PM
|
#15
|
|
Senior Member
Join Date: Sep 2006
Location: Chicago, IL
Posts: 105
|
Blood work back
Again, thank you for all of your encouragement. I had blood work last week and it was in "normal range." Do you think I should push for a CT scan? I am going back to see my doc in two weeks. Thanks again for all of your help.
Lisa
|
|
|
|
|
01-19-2008, 12:53 PM
|
#16
|
|
Senior Member
Join Date: Dec 2005
Posts: 148
|
Hi Lisa,
I had similar pains. Got the blood work done. The liver enzymes came slight bit higher. Doc asked to stop tykerb for one week.
Got the Liver function test done again and all enzymes back to normal.
Got ultrasound of the liver, kidney,spleen gall bladder - all normal..
The pain went away for a few days and now after 3-4days Ihave it again.
I asked onc for CT scan and she said its not needed as I had PET scan in December and everything was ok.
I am scared and dont know what to do.
Taking Tykerb again as monotherapy but the doc decreased the dose to 4 tablets.
They will do a new blood test next Friday....
Any suggestions.
Regards,
Rupali
|
|
|
|
|
01-19-2008, 10:30 PM
|
#17
|
|
Senior Member
Join Date: Feb 2006
Posts: 1,014
|
Let me just say this...my brother has melanoma and over half of his liver is eaten up with cancer. He has had no pain in that area and his Oncologist at MD Anderson has said that the liver rarely produces painful side effects. I know us with cancer always worry about every pain. It is always good to have it checked out...sherryg
__________________
Sherry
Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year
Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 05:43 PM.
|
Linear Mode
