***Request for those of you finished with/finishing one year of Herceptin***
Could you fill us in on which, if any, of your symptoms on herceptin improved when you stopped (please also let us know how long it has been since you had chemo , as some of your symptoms may have lingered from that) and whether you are ER+ or ER- and hence if you are still on tamoxifen or an AI
(which might also contribute to your symptoms) as well as your menopausal status (in or out)
This is ground-breaking pioneering stuff--neither Genentech nor your oncologists have probably started a study of this type.
I am sure many who are nearing completion of their Herceptin as well as many just starting are curious...
Among the questions:
is your vision improving? are your bowels improving? headaches? loss of words? dry eyes? aches? dry nose/nose bleeds? exercise tolerance? eyelashes or eyebrows? ...
Perhaps putting down your date of last herceptin and updating this every 3 months would be useful, as Herceptin antibodies are supposed to stick around and be measurable for 6 months after finishing the last dose.
Now this is information you can't look up!!
THANKING EVERYONE IN ADVANCE
Rhonda
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Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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