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01-10-2008, 01:50 PM
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#1
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Update on Carol H -
Hi All
Firstly I must apologise for not being around much lately, a dear friend of mine had a recurrance of her bc with a large spine tumour which had to be removed asap so I've been spending my time mailing her with encouragment and updating people who care about her.She was stage 2 with no node involvement and not her2+...also taking femara at the time so her recurrance has shaken a few of us and was very unexpected.
Now to Carol H (from Scotland, to jog everyone's memory) I had a short message from Carol yesterday but not news I wanted to hear as it seems her femur and leg had broken so they had operated to insert metal rods to replace the bone. The really tragic news is her tykerb, chemo and rads have all been cancelled. As some of you will recall Carol was desperatly awaiting Tykerb to hopefully keep her brain tumour in check which had begun growing again.
The news could'nt have come at a worse time and although Carol has been moved to a hospital quite close to me she's allowed no visitor's and said she'll try to keep in touch but otherwise I should call Derek her hubby. I'm not too sure what all this means but am fearful for her with such an aggressive cancer and no protection whatsoever to keep it from spreading all the more. I know a few of you ladies were very helpful to Carol in the past so I wanted you to know whats happening with her as I doubt she'll be posting herself for a while.
Thank you for all the help you've given us in the past and please send prayer's, good vibes or whatever seems right to you for a miracle!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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01-10-2008, 02:20 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Florida
Posts: 503
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Please let Carol know that warm, sunny vibes are crossing the ocean just for her.
Maria
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01-10-2008, 02:22 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Please let Carol know that she is in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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01-10-2008, 02:26 PM
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#4
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Darn nabbit
Sorry for all the stresses in your life right now, I wish I could make it better. I can send you my prayers and thoughts for YOU and for Carol and family. Also being sent to you all is every iota of positive energy that I possess....and that's alot Dear Friend. Hoping for everyones well-being and peace.>>Believe51
PS: Oh, I forgot to send smiles and hugs, so..... 
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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01-10-2008, 03:44 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Prayers for Carol as she heals from her surgery. I am hopeful that she will be able to start her tx soon.
Hugs and Prayers,
Lexi
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01-10-2008, 04:43 PM
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#6
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Senior Member
Join Date: Sep 2005
Location: Lumberton, Mississippi
Posts: 118
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Tricia, please let Carol know that I am praying for her, and you also.
Love,
Linda
__________________
Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05
"Worry looks around. Sorry looks back. Faith looks up."
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01-10-2008, 04:47 PM
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#7
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Senior Member
Join Date: Jun 2007
Location: moved to Lancaster, Pa in June, 2010
Posts: 576
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Tricia, please let Carol know she is in my thoughts and prayers. Praying for a miracle and speedy recovery.
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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01-10-2008, 04:56 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Tricia, you are such a good friend. Thanks for passing this news on for Carol. I was praying for a break for her...but not that kind. I'll keep praying maybe they'll get it right this time.
Much love
chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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01-10-2008, 05:31 PM
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#9
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Senior Member
Join Date: Feb 2005
Location: LI, NY
Posts: 660
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Tricia - I am truly sorry about your friends reoccurance. I truly understand how that has shaken you and your friends. Not a good feeling!!! Thank you for keeping us informed about Carol. Please let her know I am praying for a speedy recovery and that she will be able to get back on treatment/track real soon!! Prayers for all of you........Maryann
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01-11-2008, 01:48 AM
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#10
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Friends,
Thank you so much for your prayer's and good wishes. I just sent a message to Carol letting her know she has a lot of dear sister's thinking and praying for her. Bless you all.
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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01-11-2008, 04:47 PM
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#11
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Senior Member
Join Date: Oct 2007
Posts: 47
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Tricia,
I am so sorry to hear this ews - you have been such a support , it must be devastting to you. I will keep Carol, in my prayers, always.
Patrice
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01-11-2008, 05:48 PM
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#12
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Tricia, please add my thoughts and prayers to all the good flowing towards your two friends, and to you as you help them through this tough spot.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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01-11-2008, 06:04 PM
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#13
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Please add my warm thoughts and prayers to the list. May you all find comfort and the strength you need to handle any given situation. Peace to you, Bill
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01-11-2008, 10:43 PM
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#14
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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My thoughts and prayers go out to you, your friend and Carol. Blessings to all of you.
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