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10-05-2009, 05:50 AM
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#21
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Senior Member
Join Date: Jun 2007
Location: Bergenfield, NJ
Posts: 121
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Re: It's happening
Dear Sue,
Sweetheart, you're a wonderful daughter. My thoughts and prayers are with you. I'm sending lots of love and prayers.
Love,
Gemma
__________________
My love to you all
Gemma
____________________________________
Dx July03 at 35
Rt,breast lump.,1 node+
ER+(98%)ER-, grade3
A/C 4rounds,Rad for 38 days
Tamoxifen 2004-05
Recurrence Feb.2006, radi double mastectomy canceled bec. of mets, StageIV lungs mets
Her2+++, BRCA negative
Taxol/Herceptin six rounds of Taxol from April06.then Herceptin alone til May07. Started Tykerb/Xeloda in Jun07-Sept.07 bec of progression of the lympnodes. Navalbine/Herceptin Sept.07 to April 08 due to progression . Gemzar/Hercptin Apr08.June08 Brain MRI showed Brain Mets.CraniectomyAug.1,08, tumor removed completely
completed 20 wbrt!
Started Doxil 10/31/08 (monthly) and weekly Herceptin
Ixempra on 2/13/09
due to multiple hepatic mets
will have Herceptin as well.
Radical rt.breast Mastectomy June2009.
Ixempra/Herceptin 11/06/09--increasing right axillary lymphanenopathy and enlarging left upper lobe nodule :-(
Taxotere/Herceptin 3/5/10,more liver mets, lungs, lymphnodes. 2 weeks on, one week off...
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10-05-2009, 11:00 AM
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#22
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: It's happening
sad news indeed...my prayers for you and our family are on the way xo Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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10-05-2009, 11:35 AM
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#23
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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Re: It's happening
I'm so sorry for you. I know that your heart is breaking. What an awful thing to be going through at such a young age. You are in my prayers.
Lisa
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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10-05-2009, 11:52 AM
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#24
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Senior Member
Join Date: Aug 2009
Location: Owasso, OK
Posts: 185
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Re: It's happening
Dear Sue,
My heart just breaks for you when I read your post. I don't know of any "right" words to say, but please know that the people on this board truly do care. My kids are nine and five, and I pray that they will not be in your shoes at such a young age as you. You have been through so much, and have been a wonderful support system for your mom. I know she must be so proud. Your mom will be with you ALWAYS, and I believe you will always be able to feel her presence.
I know I am far away, but truly, if there is anything I can do, please let me know. Until then, please know you and your family are in my thoughts and prayers.
God Bless,
Hayley
__________________
Hayley
Oklahoma
3/35/2009 - Diagnosed, age 39
5/7/09 - Mastectomy and reconstruction started. Two tumors found. Tumors were side by side. DCIS tumor was 2.8 cm, ER-, PR-, grade 2. Invasive tumor was 1.1 cm, poorly differentiated, grade 3, ER+90%, PR+95%, HER2+3. Thankfully, no node involvement.
5/29/09 - Second surgery resulting from difficulty healing from mastectomy.
6/2/09 - Began Herceptin treatments
6/23/09 - Began Taxotere and Carboplatin treatments along with Herception every 3 weeks.
10/06/09 - Completed Taxotere and Carboplatin - Yeah!!!
10/27/2009 - Herceptin maintenance and began Femara
12/10/2009 - 2nd stage reconstruction surgery
2/2010 - Body rejected saline implant
3/18/2010 - Second stage reconstruction using silicone implant
5/4/10 - Completed Herceptin - YEE-HAA!
May '10 - Body rejects silicone implant...taking a break.
11/29/10 - Hysterectomy
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10-05-2009, 12:10 PM
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#25
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: It's happening
Sue, there are no words but I'll praying for you all as you face this.
We're here for you. ((((hugs))))
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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10-05-2009, 12:52 PM
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#26
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: It's happening
Sue,
I am so sorry to hear what is happening. You and your family will be in my prayers.
Amelia
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10-05-2009, 01:53 PM
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#27
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Senior Member
Join Date: Dec 2007
Location: Avilla, Indiana
Posts: 261
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Re: It's happening
Big hugs to loveher and believe. Such a difficult time. Prayers and warm thoughts heading you way(s).
Love,
Dana
__________________
-Dana-
]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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10-05-2009, 04:40 PM
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#28
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: It's happening
Sue
You and your Mom and Family are in my prayers....knowing how difficult this time is. Sending strength and love....you need to ask hospice to stay longer if you need them....i believe they will come anytime and stay as long as needed. What a lucky Mom to have a daughter like you.....a big hug
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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10-05-2009, 05:55 PM
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#29
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Re: It's happening
Sue,
I have no words...just prayers for you and your family at this time.
Peace,
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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10-05-2009, 07:40 PM
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#30
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: It's happening
Dearest Sue,
I have a daughter who is 25 and has been by my side since the beginning of my journey. Speaking as a mother, I can tell you that your Mom loves you very much and she hates that you are having to go through this more than she hates that she does.
But, I also know how very proud of you your mother is just like I am of my daughter. I'm amazed at the strength and courage she has shown and I know your mother feels the same.
Please know that you are both in my heart and how sorry I am that you have to go through this.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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10-06-2009, 03:39 AM
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#31
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Senior Member
Join Date: Jun 2008
Location: NY
Posts: 81
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Re: It's happening
My mom passed yesterday morning 11 am. I havent actually slept so it feels like it happened today.
It was very peacefull. Not at all how it is in the movies. We were all by her side. Her blood pressure lowered and her breathing became more and more difficult until she decieded to finally take a rest from this long long journey.
I've been feeling a mixture of things. I feel sad, i felt frustrated with the world, some moments i still feel like i need to call the doctors and ask about tumor markers and scans but I've also had moments where i felt a lot of relief. at the actual moment it happened i felt relieved.
It's been an unbelievable 10 years. all these years of fighting with set backs and victories. a lot of tears shed. through everything i have seen the ultimate show of strength from my mother. I don't think strength has to scream really loud or boast i think strength is the determination to fight against seemingly insurmoutable odds. My friend texted me and reasurred me that my mom won her battle a long time ago. And i believe it. In my heart my mom is my hero. She's taught me so so much about life, about love. I don't feel like she's gone, she's definently still here.
I'm so glad i found this board. I hope everyone here who is battling this disease will give it all they've got. There's nothing to be afraid of.
love
-Sue
__________________
Hi i'm Sue. I've been part of the her2support family since 08'. My amazing mother Hong was her 2 stage IV 9 years and bravely earned her wings, I still love this board and continue to her fight. Plz reach out if you want to connect:)
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10-06-2009, 04:42 AM
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#32
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Senior Member
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
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Re: It's happening
Sorry to hear your news. You and your family are in my thoughts and sending peace and good energy to you and yours...
Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!
7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!
2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
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10-06-2009, 05:10 AM
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#33
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Senior Member
Join Date: Nov 2008
Posts: 103
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Re: It's happening
Deepest sympathy for your loss. May you be comforted by the wonderful memories you carry in your heart of your courageous mother. And be assured that your love and support gave her the strength to fight the fight.
Prayers are with you and your family at this difficult time.
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10-06-2009, 06:46 AM
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#34
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Re: It's happening
I am sorry for your loss. I am sorry you are experiencing this so young, while you are in college. I am grateful for what you said about heroism being steady and quietly determined. Your mom gave us all a lesson. God bless you and your family.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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10-06-2009, 06:59 AM
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#35
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: It's happening
Dear Sue,
Sorry to hear you mom's passing, glad it was peaceful. You mom definitely was a great warrior, and inspiration to all of us.
I have 2 college age daughters myself, and I intend to give it all I have, as you say.
May you find comfort knowing your mother is at rest now.
all the best to you and your family
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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10-06-2009, 11:24 AM
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#36
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Senior Member
Join Date: Jun 2009
Posts: 343
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Re: It's happening
What a beautiful tribute your words are to your mother. Wishing you peace and understanding in the upcoming days and weeks ahead.
__________________
Vicky
Age 47, TN, Diagnosed 05/09
Her2+, ER/PR-, Stage III, 2 tumors = 1 8cm tumor
Grade 3
Sentinel Node Biopsy-speck present in 1 node
Completed 3 month clinical trial of weekly Herceptin and 1000mg Tykerb daily
Tumor no longer present
Right mastectomy and lymph node removal 09/25/09
No cancer present at time of surgery, none in lymph nodes
Start TCH 10/15, every 3 weeks for 4 months followed by radiation
Finished chemo 01/28/10-YEAH!
Herceptin every 3 wks until end of June
Radiation begins 03/01, 6 1/2 weeks
Radiation complete--Yeah!!
Developed lymphedema after radiation
In hospital for 4 days with pneumonia:(
Herceptin done! 06/24/10
Port Removed 07/08/10
Still in PT for lymphedema and mobility issues
DIEP Reconstruction 05/11
I can be changed by what happens to me, but I refuse to be reduced by it~~Maya Angelou
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10-06-2009, 03:18 PM
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#37
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: It's happening
Dear Sue,
Sending along my most sincere sympathy and a wish for your solace in this difficult time. Your mom has left much of herself in you. I know you will feel her love for you for always.
Barb A.
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10-06-2009, 04:35 PM
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#38
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Re: It's happening
My prayers are with you as well,Sue..
Marcia
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10-06-2009, 06:05 PM
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#39
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Senior Member
Join Date: Oct 2006
Location: Southern California
Posts: 900
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Re: It's happening
Dear sweet Sue,
I am so sorry to hear that you have lost your mother to this horrid disease. I lost mine at the age of 12, so I really do know of the hurt you are feeling. You will miss your mom so much at the defining moments of your life, but know this, she lives on in you and will be there for eternity.
You are an amazing young woman Sue. My prayers to you and your family.
__________________
Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
********** Enjoy the little things, for one day you may look back and realize they were the big things. - Robert Brault
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10-06-2009, 07:58 PM
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#40
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Senior Member
Join Date: Jan 2009
Location: Colorado Springs, CO
Posts: 430
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Re: It's happening
Sue,
I agree with Vicky, what beautiful words you wrote about your mother, I know she is proud of you. Any of us would be proud to have someone like you for a daughter.
I still remember the day my mother passed away. I sat in my car in the hospital parking lot watching people go about their lives as usual. I wanted to scream and shout at everyone saying "My Mother just DIED!! You need to stop and mourn along with me!!". . . it was not an ordinary day for me.
That was 10 years ago. On the anniversary of her death, I made her famous oatmeal chocolate chip cookies and felt her presence in the kitchen like never before. As I bit into one that was fresh out of the oven, I started bawling my eyes out as memories came flooding in. The pain never really goes away, but it does get easier. Thank God for our memories. May you experience the peace that only He can give.
I send my deepest sympathy to you and your family.
Love,
Alice
__________________
9/15/08 (age 52) - Mammo: calcifications
9/22/08 - Biopsy: DCIS, grade 3. ER,PR status: Pos. in 75-90% of tumor cells.
10/01/08 - Ob/Gyn appt.: found complex, mostly cystic mass on right ovary - 11cmx12cmx 8cm
10/15/08 - Hysterectomy & Oophorectomy, Lumpectomy: Cyst on uterus, not ovary - all was benign. Breast - 5 of 6 bad margins. 2 Sentinel Lymph nodes removed, both negative. Stage 0, Tis, N0
12/11/08 - Mastectomy & DIEP reconstruction: Surprise! 2 cm Invasive DC, grade 2 found. One benign internal mammary lymph node. Stage 1, T1c, N0, all clean margins. ER+ (Proportion Score = 2/5, Intensity Score = 2/3) and PR+(Proportion Score = 3/5, Intensity Score = 2/3)
HER2 score = 3+
1/09/09 - Oncotype DX: Recurrence S/core of 60 !?!?! ER status is NEG!! PR staus is NEG! HER2 score = 12.2 (still positive, greater than 11.5 is positive).
1/20/09 - Started chemo: TCH
5/26/09 - FINISHED CHEMO!
1/05/10 - FINISHED HERCEPTIN!
1/22/10 - Port-a-catheter removed!
3/07/18 - Still NED
9/10/23 - Still NED
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