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Old 07-13-2007, 10:21 AM   #21
RhondaH
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Exclamation Bump up***also Diana Dyer has a new blog with GREAT info***

http://www.dianadyer.blogspot.com/

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 07-13-2007, 11:34 AM   #22
Odette
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Karla,

I have been wondering about this myself!
What I try to do: add the olive oil at the end to the steamed or cooked food.

Odette
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May 18, 2006 Age 52,
Diagnosed infiltrating ductal carcinoma
er/pr- HER2 + 3.9 by FISH
June-August 2006 AC chemo
August-October 2006 Taxotere + Herceptin
November 18, 2006 Mastectomy 16 involved lymph nodes
Jan 2, 2007 start radiation
Stage IV, Jan 12, 2007 recurrence in cervical lymph nodes while on Herceptin, stopped Herceptin
Rad oncologist extended the radiation field, good response
Started Tykerb Xeloda on beginning of May 2007
Progression to lungs and conglomerate lymphadenopathy July 2007
Undecided about next treatment

'One does not get to choose one's adventures'

I'm experimenting with my diet, using green tea, flax seed curry and olive oil

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Old 07-13-2007, 03:10 PM   #23
CLTann
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How confusing! Yesterday, we had a report from Japanese research people concluding that soy derivatives are safe. Now the MD Anderson people say avoid soy. Olive oil has been tauted as the good oil. Here, we just learned on heating it is a carcinogen. I have been a fatty acid chemist and I could not understand the heated olive oil can become carcinogen. It is not the chemistry I have learned.
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Ann

Stage 1 dx Sept 05
ER/PR positive HER2 +++ Grade 3
Invasive carcinoma 1 cm, no node involvement
Mastec Sept 05
Annual scans all negative, Oct 06
Postmenopause. Arimidex only since Sept 06, bone or muscle ache after 3 month
Off Arimidex, change to Femara 1/12-07, ache stopped
Sept 07 all tests negative, pass 2 year mark
Feb 08 continue doing well.
Sep 09 four year NED still on Femara.
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Old 07-13-2007, 05:29 PM   #24
hutchibk
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HI CL - I have learned over the years that heating almost anything with a high heat and or direct heat can cause carcinogens that shouldn't be ingested. Acrylamide to be specific. I have learned that even burned toast is a bad idea. All meats and fish if heated with a direct high heat cause carcinogens, so grilling or blackening is not healthy...

http://www.cancer.gov/cancertopics/f...ylamideinfoods

From what I have learned from dietary folks is that no oil should be heated to smoking, even if the recipe tells you to. EVOO is too fragile to use as a primary cooking oil. Use other oil (canola perhaps) for higher heat sauteing and cooking. I use some olive oil for cooking, but I also take 3 tbl spoons of it a day, as it is suspected to be active against Her2neu, and it can't possibly hurt me!
http://www.sciencenews.org/articles/20050219/food.asp

and

<li class="body">Health Canada scientists say they have found that adding rosemary can reduce acrylamide levels in both home fries and commercial potato chips by about 25 per cent, while other anti-oxidants had little to no impact. The research, published in the Journal of the American Chemical Society, also found that potato slices that were fried with olive oil had 50 per cent higher acrylamide levels than those fried with corn oil, although there appears to be little difference between frying in cheap processed olive oil and more expensive virgin olive oil, in terms of acrylamide levels. <li class="body">"Acrylamide Advice: Don’t Burn Your Toast" includes audio of an expert explaining how the risk of acrylamide can be reduced by using different cooking methods.
from http://www.cbc.ca/consumers/market/f...de/can_do.html
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Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 07-13-2007 at 05:43 PM.. Reason: add info
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Old 08-07-2007, 05:31 AM   #25
Lauriesh
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bump

Laurie
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Old 09-12-2007, 03:02 AM   #26
RhondaH
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Exclamation Time for a

bump Take care and God bless.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 10-11-2007, 09:06 AM   #27
RhondaH
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Smile Time for a...

bump.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 12-09-2007, 04:59 AM   #28
RhondaH
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Exclamation Time for another bump

AND I'm attaching Diana's blog. Of particular interest to me as I'm a BIGGER advocate of the "balance" theory and have either organic beef or pork once or twice a week (usually 2 fish, 2 vegetarian and 2 beef/pork a week and leftovers thereafter) and she is NOW advocating organic beef due to the high amount of Omega 3 (See Oct. 18th entry). I'm a true blue Flexitarian who happens to eat a LOT of whole fruits and veggies and tends to believe that it's the "processing" of food (all the prepak food isn't even what is SAYS), our HUGE caloric intake (super size this, that and the other) AND our sedentary lifestyle (I think of BOTH my grandmothers who lived to be 91 and while neither one was particulary "svelt"...actually the one was a LARGE burly German woman...they both were born in a time (1892 and 1902) where you COOKED your food, CLEANED your house (sorry, but I can't help believing that all the "conveniences" to make our life easier has come with a price) and worked outside (i.e gardening, farming, building etc.). Also, another thought provoking book is the Omnivores Dilema...heavy, but interesting reading. Take care.

Rhonda

http://dianadyer.blogspot.com/

http://en.wikipedia.org/wiki/Flexitarianism

http://www.michaelpollan.com/omnivore.php
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 12-09-2007, 05:15 AM   #29
Mary Jo
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Thanks Rhonda. Those bumps are always beneficial as they are gentle reminders to us to pay attention to what we do for good health. So important.

I agree with what you said. I, too, believe that all our modern conveniences come with a price. A huge one. I believe all the pre-packaged foods, preservatives, dyes etc. are killing us. That being said, I will admit, I don't "cook" like it sounds you do but I do eat way less - hungry eat - eat veggies - grains - try to stay away from trans fat - fast food and exercise. It just feels better.

Thanks again for the gentle reminder Rhonda.

Blessings of Peace for your Sunday,

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

12 years NED

<>< Romans 8:28
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Old 01-23-2008, 10:05 AM   #30
RhondaH
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Exclamation After reading Lani's post, thought it was time...

for a BUMP.

Rhonda
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 04-29-2008, 07:27 AM   #31
RhondaH
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Exclamation Gotta...

BUMP this up...
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Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 05-07-2008, 10:48 PM   #32
Alaska Laura
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The olive oil thing is news to me; I heard a naturopath doctor speak a few weeks ago, and acceptable oils were olive oil (in the can not bottle), and I can't remember the other oils, but I think there was canola was one of them.

A good site with nutrition info and recipes is at www.aicr.org
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Enjoy the Day,
Laura
www.laurasjourney.com
ER+PR+Her2Neu+ - I'm just a positive person :D

"Life is a grindstone; whether it grinds you down or polishes you up depends on what you're made of."
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Old 05-08-2008, 03:31 PM   #33
R.B.
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Hi Alaska Laura,

This thread look at Omega 3s and Sixes.

http://her2support.org/vbulletin/sho...ght=greek+diet

Canola is quite nigh in Omega 3 which may have been why it was suggested at the lecture you attended.

RB
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Old 05-08-2008, 05:01 PM   #34
Alaska Laura
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Well thank you RB, I'll check it out! It is that dang chemo brain, if I don't write things down, it goes right out my head I swear!

Omega 3's were strongly recommended (I remember, I remember LOL) and we were told to freeze our fish oil pills, that way we wouldn't burp them, and that the fish oil caplets had to be made out of anchovies, sardines or other wild small fish to get the best quality.
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Laura
www.laurasjourney.com
ER+PR+Her2Neu+ - I'm just a positive person :D

"Life is a grindstone; whether it grinds you down or polishes you up depends on what you're made of."
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Old 05-08-2008, 08:20 PM   #35
karen z
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Alaska Laura,
Thanks for posting the www.aicr.org site. Also, I visited your laurasjourney site and just wanted to tell you that it is wonderful. Your writing will not only help you, but many others as well.
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Old 05-08-2008, 08:45 PM   #36
Alaska Laura
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You're welcome, and thank you
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Enjoy the Day,
Laura
www.laurasjourney.com
ER+PR+Her2Neu+ - I'm just a positive person :D

"Life is a grindstone; whether it grinds you down or polishes you up depends on what you're made of."
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Old 05-09-2008, 01:18 AM   #37
R.B.
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You are welcome Alaska Laura.

Re repeating; the best quality oils are better refined these days, almost tasteless and do not tend to repeat.

Omega 3s are essential to brain structure and function.


RB
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Old 05-09-2008, 01:24 AM   #38
R.B.
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You are welcome Alaska Laura.

I found your site too. Great graphics and well laid out with a twist of irony. Thank you for reminding me of the value of images as a basis fro communication.

Re repeating; the best quality oils are better refined these days, almost tasteless and do not tend to repeat.

Omega 3s are essential to brain structure and function.


RB
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Old 05-09-2008, 10:59 AM   #39
ElaineM
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breast cancer diet

Hi,
Thanks. I am always trying to improve my diet. I appreciate your contribution very much.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 05-26-2008, 04:06 PM   #40
Becky
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Bumping up
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Zometa every 6 months for osteopenia

NED 13 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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