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Help!!!
Hi everyone,
It's been a long time since my last post...and I am afraid I need your help again my dear Her2 sisterens. A year ago around this time I was diagnosed with recurrent BC (two months after I finished treatments!!!) I was completely devastated as my Onco told me to get a bucket list. Somehow, I pulled myself together and enrolled into the TDM1 trial which gave me a good run of NED. Unfortunately, it's back again so they pulled me off the trial. I am turning 31 this weekend and am sad because it seems like ever since I turned 29, I can't get past a birthday without having to worry about this BS coming back!
My onco is recommending the next line of treatment, any feedback would be appreciated as I have to make a decision in two weeks.
Option:
1) monthly injections to induce menopause+Femera
2) remove ovaries + Femera
3) Herceptin + Navalbine
To be honest, I am hoping to find another trial that either offers targeted treatments or has minimal side effects. I am a teacher and cannot afford to be off work.
Sisters, I need all the help I can get, prayers are welcomed too. God Bless.[/SIZE]
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Feb/2010-Diagnosed with IDC ER+, PR+, Her2+++(age 28)
Mar 2010- 6 Rounds of FECT (made me sick as a dog)
Jun 2010- Finished chemo
Jul 2010- Mastectomy +12 lymphs (4+)
Oct 2010- Radiation/Begin Herceptin (Her2 was overlooked by my Onco!)
Sep 2011- End of Herceptin
Nov 2011- Recurrence-->Chest Wall, muscle, and possible lymph (ER+, PR-, Her2+++)...WTF!!!???!!!
Feb 2012-Randomized for Clinical Trial
Feb 2012- Begin blind study either TDM1 w/Pertuzumab or TDM1 w/Placebo Pertuzumab
Jan 2013-2nd Recurrence, off TDM1...what next?
Feb 2013-chest wall resection
Feb 2013-Begin Zoladex :(
Apr 2013-Begin Femara
Jul 2013-Oopherectomy + both tubes
Oct 2013-Chest wall recurrence same spot...Dr monitor
Nov 2013-New nodule on chest...restaging...bone/ct clear...continue to monitor
Mar 2014-Surgeon fr/dif hospital confirms lung metasis based on review of CT scan from Nov...Onc recommends Aromasin/Affinitor...
Apr 2014-Start Herceptin+Vinorelbine
Sep 2014-New pain in lower back, MRI confirms metastasis
Oct 2014-SBRT to lungs
Nov 2014-SBRT to lower back
Dec 2014-Restaging confirms two new nodules to lungs and lower spine :(
Jan 2015-Xeloda and Tykerb (good response)
Aug 2015-Xeloda/Tykerb not working...Dr wants to try Taxol/Herceptin combo...problem, Herceptin not covered by OHIP
Sep 2015-Begin Taxol continue Xgeva
Oct 2015-Add Herceptin
Nov 2015-CT stable but MRI shows new mets to spine :(
Jan/Feb 2016-Start Erubulin (Halavan)
May 2016-Progression...Stop Erubulin
June 2016-PMH to explore Clinical Trial options...consideration for Immunotherapy
July 2016-Screening for Trial...Still without treatment, experiencing low appetite, low energy, pain, and rapid wieght loss...cachexia???
You never know how STRONG you really are...until being strong is the only CHOICE you have...
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