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Old 06-07-2014, 06:27 PM   #21
Ruth2
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Re: How many years NED? Give others hope

Thank you for making me feel more hopeful. I usually am, pretty much, but this thread helped.
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surviving stage 2b diagnosed at annual mammogram 2010, mastectomy, TCH, radiation, Herceptin, follow-up tests clear as of 2012, age 56, college teacher, outdoorsy and active, health conscious
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Old 06-10-2014, 10:38 PM   #22
margaret
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Re: How many years NED? Give others hope

I wanted to add my positive story.
13 years NED !!!!
I feel great! Take no medicines. Grateful for every breath

I had stage 3b, 9cm, er/pr - and her2+++ ,16 pos. nodes in Nov. 2001 at age 38. My daughters were 8 and 10.
Mastectomy, 4 ac, 4 taxol plus herceptin and 1yr herceptin and radiation.
No reconstruction.

Blessings and prayers to all those going through treatment and still battling the disease. There is hope!!
Every new breath brings potential joy.
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Old 06-17-2014, 01:59 PM   #23
rondo
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Location: Monterey County, CA
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Re: How many years NED? Give others hope

6 years. I intend to live forever. So far, so good!,:-)
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IDC 6 mm l.b. 3/08 age 49; ER <1%+; PR -; KI67 40%; HER2 +++by FISH; lumpectomy/snb 4/08; extensive dcis found at surgery (didn't show in bx or mammo); micromet in sn; MRI breasts and chest 4/08-NED; re-excision l.b. 5/08; refused axillary node dissection; no ca found in re-excision tissue. TCH q 3 wk x 6 finished 10/08; whole breast rad x 7 wk finished 12/08; refused axillary and supraclavicular rad. Herceptin thru 6/09. Refused tamoxifen & aromatase inhibitors.
1/13 so far so good:-) have vestibular hypofunction from chemo but its all good since now officially on borrowed time!
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Old 06-17-2014, 07:54 PM   #24
JillaryJill
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Re: How many years NED? Give others hope

3 years and 7 months, my first grandchild is due October 30. She is a girl and my son and his wife already named her Everly "Ev". We can't wait!!! I never thought I would see this day!!! Feeling blessed everyday!
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DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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Old 06-18-2014, 02:14 PM   #25
lkc Gumby
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Re: How many years NED? Give others hope

9 years for me!
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 06-24-2014, 05:32 PM   #26
cafe1084
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Location: West Virginia
Posts: 105
Re: How many years NED? Give others hope

I was diagnosed ER/PR-, HER2+ in August 2006, bilateral mastectomy with 3months adriamycin, 3 months taxol, and 18 months herceptin...so its been almost eight years. The only problems I have are some nerve damage to my left hand and to a few toes from the chemo. I feel I may have a potential heart issue from the adriamycin, but so far all is well. I havent been here for a few years, but I feel so blessd to have found this site and the people who created it...it got me through many dark days.
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Old 08-10-2016, 08:55 PM   #27
ljbm
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Posts: 35
Re: How many years NED? Give others hope

Nine years since diagnosis and still cancer free! Thank God and MD Anderson.
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5/07-clean mamo
8/07-found lump in right breast
9/07-diagnosed HER2+++, IDC, ER-PR-, 6.2 cm tumor, stage 3, 1/18 nodes, grade 3, modified radical mastectomy
10/07-power port installed, chemo begins
12/07-finished 4 rounds AC
1/08 began taxol/herceptin
3/08-finished taxol, herceptin only till end of 08
4/08 30 rads
12/08-last chemo I pray
1/09-port out, YEA!!!
Currently NED and pray I stay that way.
Thank God and MD Anderson!!!
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Old 08-11-2016, 03:57 PM   #28
lkc Gumby
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Posts: 413
Re: How many years NED? Give others hope

Now over 11 years and thankful everyday!
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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