| Keeping Your Mind Off of BC Fun things and posts that do not apply to BC |
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12-24-2008, 11:49 AM
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#1
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Senior Member
Join Date: May 2006
Posts: 3,142
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Prayer Room
For better health for all of us in 2009, for guidance for all of us in 2009, and for our doctors in 2009.
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11-24-2009, 05:35 PM
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#2
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Senior Member
Join Date: Aug 2009
Posts: 94
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Re: Prayer Room
A Great Idea - I have herceptin and doctor appt. Dec 3, I have not had pet scan since June.
In Jan, my 18 year daughter will see a surgeon, regarding her back
scoleosis, she may need surgery - 10 hr long, breaking of back bone.
My son signed with the ROTC Airforce, will be lt. in 3 yrs.
My only daughter and son, and me, I am always worried, scared.
My son had to sign a will for military - only 19.
My daughter's surgery is dangerous - only 18.
They are my only babies.
I'm NED with stage 4 bc.
how much more can one person take - I'm constantly scared and
worried - terrified for my daughter's surgery, and this does not help me with trying to be cancer free - stress does not help.
Thank you for opening up such a great chat area - I hope
we are able to keep it.
thank you, margie
dcis 8/8
liver met 11/08
10 wks, ned 1/09
vaccine 6/09-11/09
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11-24-2009, 05:44 PM
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#3
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Senior Member
Join Date: Aug 2009
Posts: 94
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Re: Prayer Room
I am seeing the dr. Dec 3, getting herceptin, and maybe, need another pet scan, last one in June.
My daughter - 18, sees the back surgeon - she has scoleosis. she sees the dr. Jan 15, I am so scared for the both of us
I cry all the time, my husband says, who are we crying over now,
and I say both of us.
margie, scared in Florida
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11-24-2009, 07:59 PM
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#4
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Prayer Room
Margiermc,
We'll be thinking of you and your family.
Sounded like you've got a lot of stress for the holiday season. I have a feeling that you have yet to get over with the trauma of your own BC treatment. "And then all these..." probably is what you are thinking.
Glad you've come to the prayer room. It tells me that you believe in the power of prayer. And definitely more prayers you will receive. I love the scripture about 'Faith, Hope, and Love' because Faith gives us the access to the supreme power, Hope gives us the confidence (for the 'unknown') and Love provides the stength we need.
You worry about your children because you love them. You worry about the future because it is not in your control - you've learned it from the shock of having breast cancer, and it's hard for you to be confident that nothing 'bad' will happen in the future.
But you've come to the prayer room. So it's all now in God's hand. And all we have to do is to go back to our childhood faith and 'let go and let God'. He is faithful. He will not give us anything that we can not handle.
I have not been 'home' to my parents for 11 years now. They are worried to death because I've had so many surgeries and treatments. They are too old to come here and I've been too sick to go there, so we talk a lot by phone. I think it is a good opportunity for you to share with your children your cancer-fighting experience. Let them know you will be standing by them as they have been standing by you.
And don't forget your hubby as he's going to be 'stressed out' as well (or more) having everyone else in the family going through major challenges.
The feeling is real. The stress is there. I 'hope' that through all our 'faith' we will all fill the holidays with as much 'love' as we can.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 11-24-2009 at 08:05 PM..
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11-24-2009, 09:34 PM
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#5
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Prayer Room
Prayer really does help.
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04-30-2010, 10:22 PM
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#6
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Prayer Room
My thoughts and prayers are with some of our sisters who are in tough circumstances right now.
VickieH has been on my mind, as we have not heard from Cap, and I feel they are taking the time they need to make the best of the life she has left.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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03-26-2008, 10:22 PM
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#7
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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My prayer goes out to MicheleH.
I pray that everyone at this site is never given more of a challenge then what their inner strength is able to support.
I pray that everyone here receives blessings and rewards for every lesson learned.
I pray that all here are able to have the peace and love that they so deserve.
I believe with all my heart that every prayer is heard and every prayer is answered.
Blessings to all.....and sweet dreams tonight....
Harriecanarie
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
Last edited by harrie; 03-28-2008 at 12:33 AM..
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03-26-2008, 10:37 PM
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#8
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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Thank you Harrie - that is beautiful!
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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03-27-2008, 12:32 AM
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#9
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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 Great idea---Thank you Bill!
 I lit a candle for your Angel, Nikola.
Dear Lord Hear my prayers for improvement and wellness for MicheleH, Kate, Hermiracles, Marie and Ed, Vanessa, Julerine, Kareneg and all those on this site touched by cancer and their loving families.
Very, very nice Harrie! Thank you!
May God Bless You All!
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03-27-2008, 05:21 PM
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#10
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Praying for peace, health, and strength for all of the warriors on this site, and their families and friends. Harriecanarie, what a beautiful prayer and wonderful words. Thank you, Doug, and thank you, Joanne for the thoughts and the candle!
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03-27-2008, 07:23 PM
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#11
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I'm so happy I happened upon this thread...better late than never I guess.
Dear Lord......I thank you for wonderful people like Bill who brought such a wonderful thread for us all to share our innermost thoughts, in prayer, to You. No matter how individual each of us are, we are all very much the same deep down. We all long for the same things - we all want love - peace - healing.....we all have fears and we all care deeply about one another here because we all share a common bond.
I ask God to bless each of us.................strengthen those who are suffering and PLEASE give them peace, give wisdom where wisdom is needed, give caring hearts and true love to each of us as we journey along together.
Thank you Lord for giving me this group of friends....I love them all. Amen.
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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03-27-2008, 08:30 PM
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#12
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Senior Member
Join Date: Aug 2007
Location: Detroit Metropolitan Area, Michigan
Posts: 592
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 & 
May
+ Your health be it's best,
- Your cancer be at rest,
May
< Your troubles be less,
> Your blessings be more,
And May
Nothing but
= Happiness come through your door!
__________________
Aug06...Dx Age 50, IDC Left Breast, 6+/16 lymph nodes, Stg 3, ER+/PR+/HER2+
Sep06-Jan07...Mediport. Chemo: AC x 4, T x 4
Dec06-Nov07...Herceptin
Feb12,2007...Surg MRM Left & SM Right, reconstruct w/expanders
Mar07-Jun07...Saline Exp
Jun07...Start Tamoxifen
Jun07-Aug07...Rad x 25
Jun07-Oct07...Persistent fevers-unknown origin
Jun07-Nov07...PT for Severe PMPS & Capsular Contracture
Nov07...Surg Capsulectomy, Gel Implants, PMPS pain gone instantly.
Feb08...NED 1st CANCERVERSARY!!!!!
Feb08...2 months post surgery Caps Cont again :(
Mar08...Stop Tamoxifen. Start Arimidex.
Apr08...Sudden high fever, Hosp ICU 10 days, staph infect, emerg surg, implants removed. Outpt IVantibiotics Daily x 6 weeks
Feb11...NED 5th CANCERVERSARY!!!!!
Feb12...NED 6th CANCERVERSARY!!!!!
Aug12...Spotting. Surg=D&C
Sep12...STAGE IV = RARE BC METS TO UTERUS ILC ER+/PR+/HER2-Negative) (Different BC than originally diagnosed = IDC ER+/PR+/HER2+).
Sep12...Stop Arimidex. Start Afinitor & Aromasin.
Jan13...MRI = no progression no reduction
Apr13...Progression. Stop Afinitor & Aromasin.
Apr13...Start Chemo: Taxol & Carboplatin.
Nov13...Scans & Pelvic 95+% Reduction. Nueropathy>Stop chemo start Fareston.
Jan14...PET scan = no progression stable.
May14...Pelvic > Bleeding & cramps. TMs up.
May14...PET scan = uterine progression :(
May14...Stop Fareston. Start Chemo: Xeloda.
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04-07-2008, 07:08 PM
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#13
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Praying for all of you, but especially right now for Kate. I'm praying that she regains her strength and feels all of our hugs and warm thoughts and God's Love wrapped around her.
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04-07-2008, 07:15 PM
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#14
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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I, too, want to offer prayers for our dear sister Kate. I ask God to give her strength, peace and healing. May she feel the love we all hold for her and may God send special angels to minister onto her. Also Lord, could you please give peace and rest to all who are struggling with worry and anxiety. Hold each of us close dear Lord and let Your love be felt by us all. Amen
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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04-07-2008, 07:29 PM
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#15
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Senior Member
Join Date: Oct 2007
Location: Portage, IN
Posts: 198
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Kate
I hope you are feeling better and able to return soon. You sure have had more than your share this year. I am praying for healing and health.
__________________
10/15/07: Diagnosed at age 46 lymph node removal (2)
ER/PR - Her2 +++
11/07: Port Installed
11/07 - 1/08: AC
1/30/08: Right Mast Stage lllC
2/28/08: Start Taxol and Herceptin weekly.
5/15/08: Finished Taxol
8/12/08: Finished 33 Rads
1/29/09: Finished Herceptin
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04-07-2008, 11:00 PM
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#16
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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...for kate...
You can include me for prayers for Kate. I will pray that she is given the courage, stength and peace for all that she is dealing with. I want her to know that she is not alone.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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04-08-2008, 08:39 PM
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#17
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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great thread
thanks Bill. I too just stumbled across this thread. What a great idea.
Lord, thank you so very much for this awesome support group and all the great people that give their all to make this happen. I know Lord that it was You that brought me here, knowing that I needed the strength that comes from knowledge, knowledge that is so willingly and quickly shared here by all the people that truly love and encourage each other on this site.
Lord, You know ALL things; You know what each and every one of us need for comfort and strength. Lord God, I know that all things are possible with You. I just want to ask that You lift up each and every one here. Please help each and every one of us feel Your presence in our lives and feel comforted by Your presence.
There are some that are especially struggling right now. Please ease their suffering and grant them strength and peace.
And finally Lord since NOTHING is impossible for You, I pray for a cure for this nasty awful disease.
Amen
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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04-10-2008, 12:48 PM
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#18
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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My prayer for today is that everyone is safe today and tonight while the weather wrecks it's havoc across the country.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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04-16-2008, 05:26 PM
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#19
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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I pray today for Phyllis, a friend's mom who is in the hospital with blood clots in her lungs.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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04-16-2008, 08:05 PM
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#20
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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The Lord has really put a burden on my heart for our dear Michelle H. I pray Lord that you would just touch her where she is today and that she would feel your everlasting love and comfort. I pray that her new drug combo works wonders in her body and that she is well soon. I pray that her family finds the peace that only you can bring. Lord, I am asking you to do more than they can ever imagine. We know nothing is impossible with you.
In Jesus' name I pray. Amen.
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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