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Old 06-26-2008, 11:15 PM   #1
pegb
Junior Member
 
Join Date: Jun 2008
Posts: 1
blogging about DIEP reconstruction experiences

Hi,

I've started a blog about my experiences with delayed breast reconstruction. I'm getting a DIEP flap reconstruction on July 3 and plan to write about the things I learn as well as the pain and how I like the results, etc. Come on over to visit at http://www.beyond-breast-cancer.blogspot.com

I'd appreciate the support and hope I can share some info that might help others considering their reconstruction options.

Peg B.
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Old 06-27-2008, 04:38 AM   #2
sarah
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Join Date: Sep 2005
Location: france
Posts: 1,648
Hello,
Make sure they explain the morphine drip to you and where it is placed.
what you can do and can't
I had to blow into a tube every hour to avoid getting pneumonia, plus they put plastic pants on my legs (air cooled!) to avoid thrombosis.
ask about cream or tape to help the scars heal.
the breast will feel totally natural.
Good luck
sarah
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Old 06-27-2008, 08:28 AM   #3
CindyE
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Join Date: Apr 2008
Location: WA State
Posts: 199
Hi Peg,
I too have a blog and have found it very therapeutic to blog about my BC. It helps me and helps others too when they can read about our experiences. Best of luck with your reconstruction.
__________________
Cindy

L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008

Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!



I am calling this my pink journey
Follow my journey into the pink at my blog here

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Old 06-28-2008, 05:34 PM   #4
harrie
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Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
Peg, it looks like your day is coming up soon. MaryJO just had her DIEP done less then 2 wks ago and is doing fantastic. I had mine done Nov 06 and I could not be happier with the results. I'm sure you will do very well. I would be happy to share with you any of my experiences with the procedure.
Best wishes to you.
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara

Last edited by harrie; 06-28-2008 at 05:37 PM..
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Old 06-29-2008, 04:26 AM   #5
Mary Jo
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Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
Hi Peg,

As "harrie" said, I just went through bilateral DIEP. On June 17th as a matter of fact. I had a very positive experience. Everything went perfectly and my new breasts are beautiful. Honestly, I'm enjoying them WAY more than I thought. I didn't realize I missed them as much as I did.

Anyway, if you have any questions please don't hesitiate to contact me. You can PM me here or just ask in the open, whatever you want. If you want to talk via the telephone that would be fine too.

Your day is fast approaching....asking God to make it "alright and wonderful" for you "sister."

Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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