| Herceptin / Tykerb Share your experiences or ask questions about Herceptin or Tykerb |
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05-09-2007, 10:17 AM
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#1
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Okay I admit I'm scared
Hi Ladies,
I am trying to stay busy and positive...funny and light, but...
Bottom line is that since I got confirmation that the bone mets in the spine are active again and I am adding Tykerb...and it arrived today...the pressure is building. I know that I have much to be thankful for and that most of the scans showed good news...but...I am scared. There I said it and you know it. I want to sound positive but...I am scared. Yikes, not terrified but scared...
scared, scared, scared...
Love, Hope, and Peace,
Carolyns
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05-09-2007, 10:57 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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True confession
Carolyn,
Of course you are scared. Who wouldn't be, "knowing" the appearance that all is not well with our bodies. So much of this fight - maybe even more than the chemo - is the mind games. Every day my mind goes to the dark side and it scary and sad. The best we can do is try to not dwell there. None of us know what is to come in the next days, weeks, months or years. Our job is to tap into the hope and resilience inside and just keep putting one foot in front of the other. And have our faith be stronger than our fear.
Sending you big hugs.
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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05-09-2007, 03:48 PM
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#3
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Chrisy,
Thank you. You said exactly the right thing at the right time. You are a wise women.
Love, Hope, and Peace,
Carolyn
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05-09-2007, 05:08 PM
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#4
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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you're not the only one!
I'm scared too, most of the time, just don't let myself admit it. Most of the time. I think it's healthier to admit our fears, I'm just not very good at that. Bravo for you to put it out there! Just breath in, breath out, one day at a time.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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05-09-2007, 05:50 PM
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#5
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Lolly,
Thank you for your kind words. I am glad I can come here and say how I really feel. You are such a dear. I too tend to keep stuff inside...but this is just too big. I must keep up a strong appearance for the rest of the world but I know that you folks understand.
Love, Hope and Peace,
Carolyn
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05-09-2007, 07:02 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Carolyn,
There is absolutely nothing wrong with saying you're scared and it is perfectly normal to feel that way. I too am scared but like you don't admit it to anyone. I keep up the brave front and try and remain positive. Hopefully, the tykerb is just what you need to control the mets. You're in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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