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Old 08-08-2014, 11:58 AM   #13
RedHen
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Join Date: Jan 2014
Posts: 109
Re: Update on lymphedema ?

I have a Juzo sleeve that causes distortion in my forearm and a lump on the back of my upper arm. I've never heard anyone else complain of this, but my arm definitely looks different when I wear that sleeve for a day. I also have a Solidea with double sleeves that doesn't do that weird thing. I ordered the Solidea online, but I bought the Juzo at a local shop that supposedly knew how to measure. I also ordered a gauntlet from them, also Juzo, that is so tight around the thumb that it cuts off circulation. Neither of these items is returnable, which makes me furious since they are so expensive.

I'd advise anyone shopping for sleeves to do so with care. Try on more than one, and by all means ask if you can return them.

Best to all,
Lynne
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Bilateral mastectomy w/sentinel node biopsies, December 20, 2013
12 nodes positive; stage IIIb
Began chemo January 21, 2014

Priors:
Partial colectomy, January 1996
Radical colectomy, March 1996
Crohn's & GERD
Gluten sensitivity
Chronic anemia from GI bleeding
Relapsing polychondritis w/tracheomalacia and neuropathy in feet
Vasculitis
Sjogren's syndrome
Rosacea and ocular rosacea
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