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01-25-2010, 11:50 AM
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#1
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Scan next tuesday - anxiety is building
It's that time again and I'm scared already.
I haven't seen my IBC rash in nearly a year since Xeloda/Tykerb kick it to the curb. I have been considered NED for the last year and a don't want that to change. UGGGH! I wish this nightmare would end and I could get on with soley being a wife and mother again instead of dealing with cancer.
But, I am thankful to be here three years later and have been spending special time with the kids. My daughter and I went away for the weekend. She was so honest and open with me. It was wonderful.
Praying for status quo.
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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01-25-2010, 12:00 PM
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#2
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Senior Member
Join Date: Feb 2009
Posts: 1,526
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Re: Scan next tuesday - anxiety is building
Really glad to hear you're doing so well. Are you still taking tykerb and Xeloda? I hadn't realised you had IBC but am really encouraged that this combo is working so well.
Best wishes
Ellie
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01-25-2010, 12:11 PM
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#3
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Re: Scan next tuesday - anxiety is building
Hi Ellie,
I am still on the combo. My onc is not wanting to take me off it just yet.
I started with IDC and had a recurrence of IBC.
Thanks for your wishes,
Tonya
__________________
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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01-25-2010, 01:12 PM
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#4
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Senior Member
Join Date: Jun 2009
Location: Mississippi
Posts: 253
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Re: Scan next tuesday - anxiety is building
Hej Tonya,
Know how you feel! Adding you to my prayer as well. Great that you have had such a good time with your daughter, that's special and greatly to be treasured!
Anja
__________________
4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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01-25-2010, 02:04 PM
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#5
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Scan next tuesday - anxiety is building
Tonya,
Children are amazing creatures. They are not afraid of growing up in poverty or seeing lots of medicine bottles. What they need is the love we can give them 'here' and 'now'. And I'm sure your children have learned from you one of the most valuable lessons in life - how to deal with the challenges gracefully.
Hope and pray that you will have a good scan result. Take care.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 01-25-2010 at 07:19 PM..
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01-25-2010, 03:16 PM
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#6
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Scan next tuesday - anxiety is building
Tonya,
I will be praying for good results. You are a very strong woman.
Amelia
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01-25-2010, 04:07 PM
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#7
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Re: Scan next tuesday - anxiety is building
What is it about those girls???
Reared 2 boys and so never knew kids could tell you things!!!
My granddaughter (10) can't resist sharing her feelings with me and it's GREAT!
I'm believing for a wonderful outcome for ya!
luv, ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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01-25-2010, 06:11 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: Scan next tuesday - anxiety is building
It's hard not to think about it so remember that we are thinking about it with you. Breathe in and out alot. You have been doing great so far and the scanxiety will be over soon.
Love and peace
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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01-26-2010, 09:21 AM
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#9
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Senior Member
Join Date: Sep 2005
Posts: 208
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Re: Scan next tuesday - anxiety is building
Thinking of you and sending out a gentle hug. The anxiety is tough to deal with I know.
More hugs,
Diane
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01-26-2010, 09:35 AM
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#10
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Re: Scan next tuesday - anxiety is building
Sending lots of prayers and positive thoughts your way for a clean scan and continued NED status!
hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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01-26-2010, 01:03 PM
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#11
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Scan next tuesday - anxiety is building
Sending good wishes for benign results Tonya, I have a scan myself this week and know how the anxiety builds up!
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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01-26-2010, 02:18 PM
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#12
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Re: Scan next tuesday - anxiety is building
Tonya, How I feel for you girl. I'm going thur the same thing right now. PET/CT tomorrow & right now I really don't want to change the combo I'm on either. I'm stressed as I know you are! We both have a terrible case of scanxiety it looks like...so your not alone. I really feel for you!
It sounds like you had a terrific weekend with your daughter. I can tell you some of the BEST times I had with my Mother when I was younger...was just sitting and talking. We did alot of that. That had to of been so good for your daughter...I'm happy to hear you both had a good time.
I will be keeping you in my thoughts & prayers daily that your scans bring back good news.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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01-26-2010, 03:07 PM
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#13
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Senior Member
Join Date: Mar 2009
Posts: 508
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Re: Scan next tuesday - anxiety is building
Thinking of you as you do that scan. Hope we hear soon that all is well....I'm holding good thoughts!
Barb A.
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