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12-23-2009, 03:17 PM
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#1
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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My Idea for a Game Show
We call it Chemo Brain Jeapordy
Contestants are challenged to answer questions like:
What is your name?
What is your birth date?
What is your address?
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-23-2009, 07:43 PM
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#2
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Re: My Idea for a Game Show
ROTFL, MJo...
LOL
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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12-23-2009, 07:58 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Re: My Idea for a Game Show
Add to the list:
How do you spell that?
Who are you?
Why are you sleeping in my bed with me?
Do I owe you money too?
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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12-23-2009, 09:50 PM
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#4
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Senior Member
Join Date: Aug 2006
Posts: 492
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Re: My Idea for a Game Show
OK I'll play...
Where did I park my car?
Why am I in this grocery store?
Whose kids are these?
Why is only one of my legs shaved?
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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12-23-2009, 09:59 PM
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#5
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Senior Member
Join Date: Aug 2006
Posts: 492
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Re: My Idea for a Game Show
Oooh thought of one more...
How does my gas tank keep moving to the other side no matter which side I pull up next to the pump?
LOL Mjo!
__________________
Are we there yet?
Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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12-23-2009, 11:34 PM
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#6
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: My Idea for a Game Show
UH - yeah! A "game " I play with myself every day ...
Why did I open this refrigerator door?
Didn't I turn on that oven?
(It is a good thing the tea kettle whistles ...)
What was I going to get in this room?
Why am I walking down the hall?
When did I set that sprinkler?
Didn't I already pay that one?
Wonder when I ran the washing machine??
How long have I been standing here wondering these things?
(This is just the beginning!)
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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12-23-2009, 11:49 PM
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#7
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: My Idea for a Game Show
More serious ones:
"Have I taken my Tamoxifen?" (It doesn't matter that I use a 7-day pill box - I'm challenged to know the correct day - finally solved the problem by wearing an 'Ironman' watch and double check with the date on the cell phone if still confused.)
"Are there wet clothes in the washer?" (During the real cold days when I refrained from going to the garage to use the washing machine, I was worried that there might be wet clothes inside of the washer and the cold temperature was going to turn them into 'ice...'.)
"What's buring on the stove/in the oven..."
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 12-23-2009 at 11:52 PM..
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12-24-2009, 07:45 AM
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#8
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Re: My Idea for a Game Show
Must be the chemo. Can't be Alzheimers:
Boston (DbTechNo) - Results of a new study show that people with Alzheimer’s disease maybe at reduced risk of developing cancer.
Ironically the study also found that those people with cancer were at a decreased risk of developing Alzheimer’s disease.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-24-2009, 08:23 AM
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#9
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: My Idea for a Game Show
Teehee, MJO great game....I'll play...
Get in the car begin to drive down the road and you say to yourself....ummmm, where am I going?
Shop early for Christmas gifts....then forgot where you put them!
In the middle of a conversation with someone and you draw a blank on their name! ouch
Merry Merry All.
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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12-24-2009, 09:04 AM
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#10
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Re: My Idea for a Game Show
For those of us on estrogen blockers, the chemo brain jeapordy questions is
Are you male or female? (No peeking allowed.)
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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12-24-2009, 02:37 PM
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#11
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Senior Member
Join Date: Sep 2007
Location: Near Chicago
Posts: 196
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Re: My Idea for a Game Show
Ok...
How many times did you tell your boss the same story?
How many days in a row did you have the same conversation with your father on the phone? [Works great if neither of you remember. Just as long as you are both happy!]
Why are my keys locked in the car? And WHY is it still running?
In the middle of a work staffing where everyone is going around introducing themselves to each other...you forget YOUR last name and the department where you work. Seriously. [What is your name and where do you work?]
What movie are you watching?
The rest of what all of you have written so far is great!
Melanie
__________________
Diagnosed: 7/13/07 (or 7/7/07)
Surgery: 8/15/07 Modified Radical One Side with Lymph Node Dissection
Pathology Report: ER/PR-, HER2+ with FISH at 8.4 copies, Grade 3, Stage IIIa, 3.2 cm tumor plus 4/19 positive lymph nodes
Portacath: 9/7/07
Chemo: 9/14/07 with AC (every three weeks) for four rounds
Physical Therapy for ROM Loss / "Cording" (but not Lymphodema)
Taxol + Herceptin weekly (started 12/2007 with 8 of 12 Taxol)
Radiation: (28 rads from 3/07 to 4/07)
Reconstruction (silicone implant)
Herceptin done (10/08)
Cognitive Remediation (11/08 - 12/08)
Lymphedema Diagnosed 5/10/10 (almost 3 years post cancer diagnosis)
Lymphedema Rehab 9/10/10 - 11/10/10
Six years NED...7/7/2013!
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12-24-2009, 03:46 PM
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#12
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: My Idea for a Game Show
Where are my car keys?
Who put the salt and pepper in the fridge?
Which drawer has the knives and forks?
Where are my glasses?
Was the oven on "warm" all night????
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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12-25-2009, 05:42 PM
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#13
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Re: My Idea for a Game Show
Great thread, MJo! So funny and yet a little sad too. Of course, in my case, I not only blame chemo brain, but after all, I just turned EIGHTY! When my husband and I had our psychological practice, it was common always to ask patients "name, date, time, and place" to see if they were grounded in reality. (We didn't know about chemo brain then!) So I guess as long as you know your name, what day/date it is and where you are, you are okay. I find that if you tell yourself calmly"I know it, and I can come up with the right answer in a minute" usually you really can come up with the right answer in about a minute. I tell my grandchildren that the brain is like a computer and mine is fine, just somewhat overloaded so it takes a little longer to search for the right answer. They seem to understand perfectly. I tell them I haven't found the "delete" button yet to get rid of all the spam and such but I'm working on it! Actually, I have found that many of my older friends are having a harder time remembering things than I am, and they haven't had chemo! So as long as you can take it in your stride and laugh you're just fine! I did mention "chemo brain" as an excuse for forgetting an appointment with my oncologist and his office girl said "When did you last have chemo?" When I told her she said "You can't have chemo brain for longer than a year". So if what she said is true, then I guess it could just be old age! Hugs, TriciaK
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12-26-2009, 08:11 AM
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#14
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: My Idea for a Game Show
Did I borrow something of yours recently?
Do I owe you any money?
Why can't I charge my cell phone with the camera cord?
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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12-26-2009, 10:38 AM
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#15
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Re: My Idea for a Game Show
This is hysterical! (so true and so sad)
Last edited by Soccermom; 12-27-2009 at 02:00 PM..
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12-26-2009, 12:08 PM
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#16
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: My Idea for a Game Show
Well, sometimes, I get almost hysterical!
Christmas eve: 8 miles from home - half way to the party. "Well, Sh**, I left the present on the table by the door!" Needless to say, we went back.
(At least I DID eventually remember.) I try to take a mental inventory of what I was supposed to bring on a given outing. See, I DO play this game each and every day ...
Like on the way to Farmer's Market, where they mostly take cash only. Do I have money?
Groggily this morning: "Sorry, darling, I forget to buy milk. We do have some Half & Half left!"
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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12-26-2009, 12:27 PM
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#17
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: My Idea for a Game Show
When I go to the store to buy tin foil why do I come home
with waxed paper????
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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12-26-2009, 08:41 PM
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#18
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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Re: My Idea for a Game Show
Why do I keep trying to heat up my cold coffee in the fridge instead of the microwave?
Why do I keep forgetting where I set that coffee down in the first place?
I love this game!!
xo Suzan
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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12-28-2009, 12:16 PM
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#19
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Senior Member
Join Date: Jun 2006
Location: Nebraska
Posts: 29
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Re: My Idea for a Game Show
I had a thought....now what was it???
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12-28-2009, 12:51 PM
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#20
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Re: My Idea for a Game Show
Pink,
I apologize. I was the one who put the salt and pepper in the fridge. It was just a spontaneous prank. Great party by the way. Don't act like you don't know what I'm talking about.
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