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Old 10-29-2007, 08:39 AM   #1
madubois63
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Wink Halloween and cancer - a little cancer humour.


Halloween and cancer:
So, how do Halloween and cancer go together you ask? Cancer has given me some of the best/worst costumes over the years, but not always at the right time of the year…My first costume was the invisible woman. After being diagnosed, I sat in rooms with doctors and family members while they talked about me as if I wasn’t there. Some friends just disappeared from my life. I guess they couldn’t see me anymore! Then came chemo, and I became an alien. At least that’s what I saw in the mirror. Maybe that’s what my old friends saw too?? My bald head and big shocked eyes made me look like something out of a 50’s sci-fi movie. At first, after the modified radical mastectomy, I looked like a mummy all wrapped up in bandages. But then I looked in the mirror and realized I had become Frankenstein all sewn together. I was frightened at first, but the scars faded and my Mexican tattoo made things better (If you haven‘t heard that one yet, ask. It‘s another story for another day). I achieved remission and then became Wonder Woman. I went back to college and work (both full time), took care of my 2 kids on my own and tried to please everyone. After a while, that wasn’t working and the cancer came back again. I became one of those pod people carrying around invaders in my body. I felt like I didn’t have control and I was fighting for dear life. Then came the leukemia accompanied by anemia. Yes, you guest it…I became a vampire. Although the nurses took small bottles and needles worth of blood for tests, I needed pints and pints of blood to survive. I’ve always had a thing for horror stories and black clothes (slimming), but this was beyond ridiculous! During the transplant and isolation time, I wore masks and robes and looked like a freaky bald mad scientist. Then my liver went in to rejection, and I turned yellow then green. I could be Frankenstein again or the wicked witch depending on my mood - lol. I had to take the horse serum to get well again, so I tapped my hoof a few times and did a fairly good neigh. So here it is just a few days from Halloween, and I am not bandaged, yellow or green. My hair is almost shoulder length. I am no longer invisible (I learned to speak up - pretty loudly too). I’m not dependent on transfusions, and I am in total remission. Any ideas on what to be for Halloween?? I am fresh out of ideas!!!

Have a happy Halloween - Love to all, Maryann
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Old 10-29-2007, 09:28 AM   #2
Audrey
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Wow, MaryAnn, I loved your post--you've certainly been through so much and so many "costumes" (I recognized myself in a number of those, too, particularly invisible woman and alien). As for this year, I suggest Amazon warrior woman, superhero or rockstar!
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diagnosed July 2001, at age 36
large tumor, 11+ nodes
Stage IIIb, er/pr-, Her2+
treated with A/C, weekly Taxol
radiation, + year of Herceptin
on clinical trial. double mastectomy
followed by reconstruction
NED!!
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Old 10-29-2007, 09:32 AM   #3
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Maryann,
That is a heck of story, but oh so true, you should write a book. The only thing I can suggest is if you are plump from the steroids and chemo treatments ( I gained 30 lbs) you can throw a sheet over yourself and go as a queen mattress.
No, pun intended I just heard it on the radio and thought it was cute.
Verna
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Old 10-29-2007, 09:34 AM   #4
BonnieR
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Wonder Woman!!!!!
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 10-29-2007, 09:54 AM   #5
Carolyns
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Maryann,

That is an amazing post - so inspiring. Forget what you plan to be for halloween I think that we should all dress up like you (monkey and all, from your picture) and be you...our own personal super hero!!!

Carolyn
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Old 10-29-2007, 09:58 AM   #6
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Maryann,

Okay, I just looked at your picture again...what is that stuffed animal? I said monkey in my last email when I suggested that we all dress up like you. You are my hero!

Maybe you could be the Ever Ready bunny - keeps going and going!!!!

Carolyn
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Old 10-29-2007, 11:03 AM   #7
Patrice
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I hope you're going to write a book some day! You're more than inspiring!

And I vote for Wonder Woman!

Patrice
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Old 10-29-2007, 11:11 AM   #8
lilyecuadorian
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a cat (I hear cat's have 7 lives ) or wonder woman it be apropiatte too
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Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 10-29-2007, 12:30 PM   #9
madubois63
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Thanks for the praise - it makes me full of myself for a little while. I keep saying I'm going to write a book, but it just seems like everyone has a book about cancer these days...

Carolyn: The stuffed animal is actually a Bernese Mountain dog/ rocking horse. I have a "Berner." I saw this in a store at the Mohegan Sun Casino and had to have a picture with it.

Lily: I'm not sure how many lives I've used up so far...

Verna: I liked the mattress - very funny. My cheeks are still a little plump, but I lost nearly 60 lb this past year. Maybe I can be a twin mattress??
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Old 10-29-2007, 01:16 PM   #10
PinkGirl
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Smile Happy Hallowe'en

Madame Dubois,

I can't tell from the photo of you with the Bernese Mountain dog if you look
more like Chaka Khan or Whitney Houston. But........you could try dressing
up as one of them and go door to door singing "I'm Every Woman"........
Just a thought.....
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++

Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



" I yam what I yam." - Popeye

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Old 10-29-2007, 01:26 PM   #11
Verna
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Maryann,
I still think you should write a book! You really have a way of putting things down on paper, I on the other hand know what I feel, but cannot put it into words, (still have chemo brain, it's a great excuse). It's funny we can all relate to your story, but someone who is not been through what we have would not understand.
We've all been through alot! I think we should all be Wonder Women!
Verna
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Old 10-29-2007, 02:10 PM   #12
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MaryAnn, Much of what you said hit home for me. The invisible women, & your disappearing friends, etc. You seriously do have a way with words because I actually got a bit emotional reading your post. You've been through alot and your one strong women and certainly a major inspiration to me.
As to what to be for Halloween...you need to find a costume that projects one very amazing women....because your it!

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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Old 10-29-2007, 03:28 PM   #13
IRENE FROM TAMPA
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Smile Your post is so funny

Hi Maryanne

I had a good laugh while reading your post. You echo so much of what many of us have felt.

How about the many faces of Maryanne by incooperating a little bit of each of the phases you went through....but leaving your beautiful face to shine through which is who you really are.

Whatever you come up with, HAVE A BLAST..

Take care
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1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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Old 10-29-2007, 09:27 PM   #14
Bev
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An angel with horns or leather would work for me. Meant in a nice way. Kind of like one tough angel. BB
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Old 10-30-2007, 11:38 AM   #15
Sandy in Silicon Valley
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What to be for Hallowe'en...

Hi, Maryann -

Great post & thread. You've had an obstacle-filled journey with bc, mets & leukemia, and have kept bouncing back, with humor and ebullience. I like "Tigger" as a name, and a costume - you've definitely got the GA-BOING tail/tale thing going!

..."And the wonderful thing about Tigger, is that Tigger's a wonderful thing..."

(((hugs)))
Sandy in Silicon Valley
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1992 - age 44/ ER-/PR+ Stage II dx - mastectomy, CAF x 6 cycles; Tamoxifen
1997 - BRCA1 mutation dx'd
1998 - ovaries removed
1999 - off Tamoxifen, on Arimidex
2003 - dx'd Stage IV - lymph nodes & lungs. ER-/PR-/HER2neu+++.
Tx: Herceptin & Taxotere (6 cycles).
2005 - 2.9cm x 3.6cm brain tumor. Craniotomy, CyberKnife. 9 mo. staph aureus infection at incision site - 2nd craniotomy. Two small brain mets CyberKnife'd.
2006 - revisit Xeloda - dosage lowered to 2500mg/day, 5 cycles.
2007 - "spot" dx'd on qtrly brain MRI - same location as CyberKnife 7/05. > by 2-4mm per quarter - - radiation injury or re-growing cancer? Tykerb added to Herceptin - July, still "watching & waiting". Otherwise, fully functional...


"The majority of people are not only afraid of holding a wrong opinion, they are afraid of holding an opinion alone." Kierkegaard
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Old 10-30-2007, 09:03 PM   #16
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Sandy, when you talk about Tigger, it reminds me of my beloved oncologist (who died a couple years ago at 42) who was VERY MUCH like that - bouncing around the office spreading good humor. He used to dress up as tigger for events. He was such a joy, and I miss him so much. He was also a wonderful thing. BTW, he was also associated with Stanford - so you may have crossed paths with him, too.
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 10-31-2007, 03:08 PM   #17
dhealey
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Your story made me laugh and I needed that after a day at work with crazy patients (must be Halloween or the full moon we had earlier in the week.) I think you should be tiger as you keep bouncing back! Your an inspiration to all of us.
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Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 11-01-2007, 12:37 PM   #18
Andrea Barnett Budin
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Wink The Morning After...

My daughter just called to say the school called. Josie (11) -- who never misses a single day of school -- needed to be picked up. She had a horrible headache. She came home and threw up. ISN'T HALLOWEEN A FUN HOLIDAY? All the kids are coming off of a major sugar rush and every one is exhausted, out partying far in to the (school) night. They need to make November 1st a holiday of rest, as Josie's teacher just mentioned...

Loved your tale Marryann. Well done! I totally related to becoming invisible to friends, or more accurately having certain *friends* disappear off the radar screen... Their loss, I say. Yes, and the alien in the mirror (a greyish green, bleary-eyed, bloated face -- from Dexymethazone), bald, no eyebrows or lashes). Desperate Housewives portrays the chemo patient w/eyebrows and lashes, if you note. So not a true reflection (no pun intended). Mummy, check. Frankenstein, check. You and I could go as Wonder Woman, little walking miracles!!

Yesterday I found myself wearing my leopard shirt and red lipstick. I'm feeling very crazy sexy lately. Must be the 160 mg of Black Cohosh I'm taking for my hot flashes... I'm feeling hot in a whole new way...

Andi
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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