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11-12-2008, 03:16 PM
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#41
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Our sincerest sympathies to Lily's family.
Christine and Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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11-12-2008, 03:56 PM
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#42
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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my heart breaks hearing this news. sending hugs, thoughts and prayers to michael and the rest of her family.
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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11-12-2008, 04:25 PM
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#43
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Michael, may you and your family find peace and comfort. I hope and pray that as time passes, you will learn to appreciate the all-too-short time that you did have with your wonderful wife. We will all miss her. You take care of yourself, and let us know how we can help. Bill
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For Nicola
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11-12-2008, 07:25 PM
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#44
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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So sorry for your loss - our loss, too. Please take care of yourself and the children.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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11-12-2008, 07:33 PM
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#45
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Micheal,
I'm sorry for your loss. Lily contributed a lot to our board with her support of others. I will miss her very much.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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11-13-2008, 03:08 AM
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#46
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Senior Member
Join Date: May 2006
Posts: 157
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Michael,
I am so sorry and so sad with Lily's passing. She was a wonderful person, very strong, yet very sweet. She was a real fighter, and she fought until the very end. She is my hero and an inspiration to all of us. I loved talking with her, I will miss her very much.
My deepest sympathy to you and your family. May God be with all of you and give you peace and comfort in this difficult time.
KarlaV.
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11-13-2008, 07:13 AM
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#47
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Michael, I am so sorry to hear of this great loss. A loss to you and her family and a big loss to our Her2 family. I always looked forward to reading her posts. May God bless you and your family.
Hugs
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Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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11-13-2008, 04:58 PM
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#48
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Senior Member
Join Date: Jul 2006
Location: ontario, canada
Posts: 48
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Condolences
Dear Michael and family,
So very sad to hear of your loss. Lily fought so hard and courageously, and was a real inspiration to the group.
Deepest sympathies to you all, and praying you will find peace and comfort in the days ahead.
~Karen~
__________________
Karen
"The Good Lord gave us mountains, so we could learn how to climb!"
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11-15-2008, 07:31 PM
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#49
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Senior Member
Join Date: Dec 2006
Location: Oregon
Posts: 715
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Dear Michael and family,
I am so sorry to learn that your dear Lily is gone. This makes us all so very sad. She was a sweetie and I can only imagine how much you will miss her. We can only hope that the our combined strength and prayers will be heard by you and our Angel Lily.
Thinking of you and your family,
Catherine
__________________
Catherine
Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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11-23-2008, 10:58 AM
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#50
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Senior Member
Join Date: Apr 2007
Location: Mississippi
Posts: 600
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I so hated to hear this. Lily was always thoughtful and interested in others. I have been staying away to avoid hearing this. She was specila and I will miss her. I will keep you and your children in my thoughts. Breast cancer at any time is so difficult but I know that it would be much harder if I had small children at home. Lily was so brave.
Leslie
__________________
In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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