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Old 05-31-2006, 09:05 PM   #17
Christine
Founder - HER2 Support Group
 
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Join Date: Feb 2005
Location: Carlsbad, CA
Posts: 361
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Thank you All

Thank you all for your many responses. I have been asked by the Bayer/Dako to participate in a discussion at ASCO. I will do my best to get more information and answers for your questions. In my own case, I will continue to take this test every 2 – 3 months, even if I am presently diagnosed as NED (No Evidence of Disease). I feel it is essential by any means to get the earliest possible indications from all tests available that works for you! I have been tested five times over the past ten months. Results are always around 8. Slight changes are normal as long as it does not go up steadily over 15. To me, this would mean it is time to get CAT or MRI scans of my body to rule out any progression. This test could alert us to get scanned. I don't have any reason to think I have more tumors except my brain is always under surveillance. Thank God I can continue to be free of all tumors.

Hugs,
Christine
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