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Old 12-07-2010, 09:56 AM   #1
ninb
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Urgent-I would like to ask you

Hello All, greetings!!!

Unfortunatelly, My wife got right breast cancer with positive nodes
and tripple positive kind(Her2+ etc)
After the chemotheraphy (AC, taxol+Hereceptin) the tumor in the breast was found very small but she has 15 of 20 positive nodes.
Please Please Please...
tell me do you know such cases of woman that live for LONG years?
I very very need your information.
You can give me a hope....i need your help now....i hope that i also can help you with something in future.
thank you a lot
and best regards
Boris
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Old 12-07-2010, 10:39 AM   #2
ElaineM
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Wink Re: Urgent-I would like to ask you

I am sorry to hear about your wife. I can tell you that there are many women who have lived for many years not only with positive lymph nodes, but with breast cancer mets in other parts of their bodies. The experience can be bumpy and stressful sometimes, but with positive thoughts, determination, good medical care, healthy food and some exercise it can be done.
Good luck to you and your wife. Many more years together for the two of you !! Take good care of your wife.
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ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
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14 Year Survivor
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Old 12-07-2010, 10:40 AM   #3
Mary L
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Re: Urgent-I would like to ask you

Boris, Hello. If your wife is Her2+ she can take Herceptin and Tykerb which take care of the cancer very well and quickly with no side effects like the other chemos she probably had. There are many women on this website that will give you alot of information and hope. Herceptin saved my life and millions of others. Her oncologist will give you all the information. I'm surprised he hasn't talked about Herceptin. Does she have an appointment with him soon? Best wishes. Mary L
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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Old 12-07-2010, 11:34 AM   #4
MJo
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Re: Urgent-I would like to ask you

Herceptin and/or Tykerb plus chemo plus radiation is a very good treatment. My friend had multiple tumors and many positive lymph nodes and she celebrated her 5th cancer free anniversary six months ago. Your wife will likely also take aromatase inhibitors (Arimidex or Femara) for five years after her chemo ends as an added precaution. The oncologists where I go consider Herceptin and Tykerb VERY effective against Her2 cancers. My oncologist also says that the aromatase inhibitors are as important as chemo. So your wife had excellent treatment choices for her disease. Treatment isn't easy, but it's easier than it was 5 years ago, and the body heals.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 12-07-2010, 06:23 PM   #5
tricia keegan
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Re: Urgent-I would like to ask you

Hi Boris,

I'm highly triple positive but "only" five years out but had a similar treatment to your wife.

However, I have a friend who was diagnosed twenty four years ago with an aggressive large tumour and twenty two positive nodes and is still doing great and has never had a recurrance.

She does'nt know if she was her2+ as testing was'nt done back then but suspects she was, her daughter was two and is now twenty six or thereabouts and she wondered if she'd live to see her grow up

No one knows how each of us will respond, but yes, there are many ladies here on this site that had many positive nodes and still doing well years later, so stay positive and I hope your wife will do well too
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 12-07-2010, 06:44 PM   #6
lkc Gumby
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Re: Urgent-I would like to ask you

Boris, I had 12 positive lymph nodes. You can see my tx below.
Thts was 5.5 yrs ago, and I am blessed to be healthy now.
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Linda

Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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Old 12-07-2010, 10:37 PM   #7
Sherryg683
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Re: Urgent-I would like to ask you

Im sorry about your wife, you have come to the right place for help and support. I am 5 years out with stage IV, mets to lung...every node they took out was positive. I am cancer free today and pray to remain that way for a long long time.
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Sherry

Diagnosed: December , 2005 at age 44
13+ positive lymph nodes
Stage IV , Her2+, 2 small mets to lungsChemo Started: Jan, 2006
4 months Taxotere, Xeloda, Hercepin
NED since April 2006!!
36 Rads to follow with weekly Herceptin indefinately
8 years NED now
Scans every year

Life is not about avoiding the thunderstorms, it's about learning to dance in the rain!
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Old 12-08-2010, 09:39 AM   #8
BonnieR
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Re: Urgent-I would like to ask you

Boris, you have come the right place for support and especially HOPE! You will find many people here who are thriving.
Your wife is fortunate to have you. Be sure when you attend doctor visits with her that you have a written list of questions and then write down the replies. It can be so confusing and overwhelming, all of the information we have to absorb.
Keep the faith.
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Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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