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06-09-2007, 08:57 PM
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#1
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Senior Member
Join Date: Dec 2005
Posts: 274
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Thank you and asking for prayers
Hi to my HER2 family,
First off I want to thank you for wishing me a Happy Birthday. This was what they call the "Big 50". And believe me no one let me forget that. I am very thankful for getting this far and for all the love and good wishes sent my way. And Chrisy that was my name in the chat room (good guess). I can't believe Becky remembered that. There was some confusion with my chat room name so I used that to get on. It was a nickname my dad had for me when I was a little girl (many moons ago). Anyhow, I have been biting at the bit to not say anything as I know this has not been the best of times for us, but I am just asking that you keep me in your prayers in the next few weeks. I found a lump in the left breast (the one thats left) about 3 weeks ago. I saw my surgeon and he also felt it. He sent me for a mammo/sono which came out ok. So I thought this was all good. I saw him Wednesday night and he scheduled me for a biopsy on 6/20. He is not an alarmist but said with the history it is necessary. My husband and I made plans to get away for this coming week for my birthday and his (which is 6/15) and we have not gone away for more than an overnighter in many years. Just one thing after another preventing a getaway. I am putting this on the back burner for now. I don't mean to bring anyone down. I am optomistic and if it doesn't turn out the way I am praying it will then I will deal with it. I know I have your support. If you don't see me on for the next week it is because I am disappearing for a bit. Please keep me in your prayers.
Thank you and God Bless,
Liz J.
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06-09-2007, 10:49 PM
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#2
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Senior Member
Join Date: Jun 2007
Posts: 37
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Liz,I will keep you in my prayers and hope that all comes out for the good. Your dr. is right. I would certainly want a biopsy to make sure. God will be with you through this and we'll be here for you when you come back.
Peace to you!!! Kacey
__________________
dx 9-13-05 MRM (lt)on 9-19-05
IDC stage llb grade 2 3/24 nodes+
ER/PR- Her2+++
Groshong placed 10-13-05 and chemo started
TCH x6 and continue Herceptin for one year every 3 wks
Rads x 33 (at the end of chemo) finished 4-01-06
20 months NED
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06-09-2007, 11:01 PM
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#3
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Senior Member
Join Date: Mar 2007
Location: Norco, Southern California
Posts: 53
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Have a great vacation! Forget about everything except you and your husband until you get back. It probably is a good idea to have the biopsy just so you and your doctor know you covered all the bases, but hopefully, it will come back negative. Take everything a day at a time as God gives us the strength for whatever we face each day. God bless.
Beckie
__________________
Diagnosed 4/06, age 55
1.1 cm tumor
Pre-op x-ray caught lung nodules
6/06 - Stage 4, Her2+++, er/pr-
Mets to lungs(largest 3 cm), liver (largest 5.5 cm), and bones
Began taxotere, herceptin, & aredia
7/06 - radiation to lower spine & left shoulder for pain
8/06 - everything smaller
12/06 - stopped taxotere (toe infections)
5/07 - bone mets advancing
6/07 - add navelbine to herceptin & aredia
6/07 - discovered brain mets (3 in cerebellum, largest 2 cm.)
7/07 - WBR, change to Tykerb/Xeloda
9/07 - targeted radiation
10/08 - started navelbine/herceptin
2/09 - brain mets - targeted radiation
5/09 - mets in liver progressing, changed to Ixempra
7/09 - mets in liver still going, to the brain again, on gemzar now
9/09 - gemzar failed, started Doxil today
I know Who holds the future, and I know He holds my hand.
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06-10-2007, 05:15 AM
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#4
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Dear Liz,
I can only imagine your fear over this as any of us would feel as you are feeling. However, the good news is that you are following through to find out what is going on.
I ask God to let it be nothing and for His peace to surround you as you wait.
Hugs,
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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06-10-2007, 08:31 AM
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#5
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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I am glad you shared your news. This is a fact of life that we all live with now. I hope this is a benign cyst. Whatever it is, you can treat it. You are in my prayers.
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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06-10-2007, 09:15 AM
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#6
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Liz! Of course I'll be praying for you and believing that it is just a benign cyst too! I know how much you must have been looking forward to a get away! Hope you'll get yours and have some good news to celebrate on it! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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06-10-2007, 11:57 AM
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#7
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Liz, don't ever feel bad about sharing news - good or bad. You are not a downer (although we all agree, bc can certainly be!). Tough decision on back burnering the vacation. On one hand, you've been planning and looking forward to this, and deserve it! But if you think you would not be able to enjoy it with the biopsy in the back of your mind, maybe you're right to postpone it. Your doctor is right to be extra cautious with your history, but hold on to the sono and mammo being ok. That is the only thing you KNOW.
You are most certainly in my prayers, and I'm holding thoughts that this will prove to be nothing and you can reschedule that trip as a celebration!
Much love,
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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06-10-2007, 06:32 PM
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#8
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Liz, I'm a bit late getting on the birthday wagon, but I hope you and your husband celebrated in style in spite of it all. I know the anxiety can really put a damper on these special days, but just try to keep the biopsy on the back burner.
I was diagnosed the friday before our silver wedding anniversary, and it made for an unforgettable weekend, let me tell you, but that was 8 years ago; We're coming up on 33 this August.
Hang tough kiddo, and keep us posted.
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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06-10-2007, 08:41 PM
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#9
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Happy 5 -o Liz. Hope Biopsy is clear. Your vacation will likely be better without clouds of doubt hanging over. Best wishes, BB
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06-10-2007, 08:49 PM
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#10
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Happy 50 and definitely keeping you in my prayers.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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06-11-2007, 08:21 AM
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#11
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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Liz
Honey, never worry that you are bringing anyone down, we are all here for support and prayers. There would never be anytime that would be bad to say your mind and ask for help. Yes, many things have happened this week, but above all, that is why we are here!! Sending a gy-normus hug and plenty of prayers your way and hubby and I will keep you close to heart at this time of need. As a matter of fact, we are in a hard spot ourselves right now, something stopped working for my husband and we will be going to Dana Farber Cancer Institute in the next week or so. Cancer stinks!!! >Waiting For A Miracle>>Believe51...(Marie G)
HAPPY 50TH BIRTHDAY, LIZ AND MY HOPES FOR MANY MORE!!!!!!!!!!!!
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
Last edited by Believe51; 06-11-2007 at 08:22 AM..
Reason: forgot the most important thing
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