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Old 03-08-2010, 03:27 AM   #1
adrien
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Join Date: Oct 2007
Location: Balmain Sydney NSW
Posts: 53
pain during biopsy

Hi,
Have a new 4 cm tumour to right breast. When I had the biopsy it was excruciating (I sobbed, much to dismay of dr and radiologist). It is now 3 weeks since and still sore. They don't intend surgery 'unless it ulcerates' because of my history. The whole breast is sore and I hate being able to see it every day (the tumour). Help! Anyone else experience that sort of pain? I certainly didn't first time round.
Love,
Adrien
__________________
1999 IVDC oe+ grade 3
epirubicen, cysplatin, 5FU;
lumpectomy L breast, radiotherapy 6 wks, tamoxifen 3 mths, Examestane 5 yrs

2005 mastectomy (Left ) 10cm IDC in lymphatic system and blood vessels oe- HER2 ++;Taxotere, Herceptin 18 mths
2006 skin tumours below scarline Add Femera, 3 weeks radiotherapy twice daily (unsuccessful)
excision of tumours.
2007 jan skin tumour on L chest wall; positive Right axilla
Temerifen.
September Ca markers rise. Start Tykerb 3 wks radiotherapy
2008 skin tumours regrow. latissimus dorsal flap for excision of skin tumours March 08. HER2++++
Faslodex injections
CEA and Ca15.3 rising
2009
CT scan shows multiple mets in liver, lungs and inguinal glands. Stop Tykerb. Start Xeloda
CEA and Ca15.3 dropping like a stone. Skin tumours disappear.
Return 6 months later.
CT shows increase in size and number liver and lung mets.
Oct: Cyclophosphamide
Markers continue to rise. Change to Caelyx
2010
CEA marker in the 2000s Back to Herceptin
New tunour R Breast
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Old 03-08-2010, 03:37 AM   #2
Ellie F
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Re: pain during biopsy

Hi Adrien
I had exactly the same following my biopsy.It remained red and bruised looking till I had my mastectomy some 3 months later.The pain did subside but not for quite a few weeks and my onc said this was due to the tumour cells! Great!!
I also sobbed and cried out much to the dismay of the nurse who stopped the surgeon and made him give me local anaesthetic.
Sorry can't offer anything to improve it but wanted you to know you are not alone in this.
Ellie
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Old 03-08-2010, 01:10 PM   #3
schoolteacher
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Re: pain during biopsy

Adrien,

I had a really hard time with my biopsy too. I had to call doctor
to let them know. They told me I could put some ice on it, but don't keep it on there a really long time. I found some relief with a sports bra.

Hope you are feeling better.

Amelia
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Old 03-08-2010, 03:19 PM   #4
adrien
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Re: pain during biopsy

Thanks for your replies. I always find it supportive just to hear from the group.
Love
Adrien
__________________
1999 IVDC oe+ grade 3
epirubicen, cysplatin, 5FU;
lumpectomy L breast, radiotherapy 6 wks, tamoxifen 3 mths, Examestane 5 yrs

2005 mastectomy (Left ) 10cm IDC in lymphatic system and blood vessels oe- HER2 ++;Taxotere, Herceptin 18 mths
2006 skin tumours below scarline Add Femera, 3 weeks radiotherapy twice daily (unsuccessful)
excision of tumours.
2007 jan skin tumour on L chest wall; positive Right axilla
Temerifen.
September Ca markers rise. Start Tykerb 3 wks radiotherapy
2008 skin tumours regrow. latissimus dorsal flap for excision of skin tumours March 08. HER2++++
Faslodex injections
CEA and Ca15.3 rising
2009
CT scan shows multiple mets in liver, lungs and inguinal glands. Stop Tykerb. Start Xeloda
CEA and Ca15.3 dropping like a stone. Skin tumours disappear.
Return 6 months later.
CT shows increase in size and number liver and lung mets.
Oct: Cyclophosphamide
Markers continue to rise. Change to Caelyx
2010
CEA marker in the 2000s Back to Herceptin
New tunour R Breast
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Old 03-08-2010, 04:22 PM   #5
Lien
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Re: pain during biopsy

Hi Adrien,

That's awful! Not only do you have to deal with a new tumour in your breast, you have the pain on top of that. It's unfair, and I wonder why they can't give you something for the pain?

Also, I remember reading that there is a benefit to removing the tumour even though there are other tumours present. So perhaps you could look into that, because I gather from your words that this is what you would like to consider. Maybe a second opinion?

Hugs

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 03-08-2010, 07:59 PM   #6
ElaineM
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Wink Re: pain during biopsy

I read the same thing Lein read. I agree with that.
I am sorry you had so much pain and suffering during the biopsy.
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Old 03-08-2010, 08:56 PM   #7
adrien
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Re: pain during biopsy

When they finish comparing pathologies to see if it's a new primary or the same ca I'll broach the subject again (lumpectomy). I wish I'd had them both off ten years ago!
Adrien
__________________
1999 IVDC oe+ grade 3
epirubicen, cysplatin, 5FU;
lumpectomy L breast, radiotherapy 6 wks, tamoxifen 3 mths, Examestane 5 yrs

2005 mastectomy (Left ) 10cm IDC in lymphatic system and blood vessels oe- HER2 ++;Taxotere, Herceptin 18 mths
2006 skin tumours below scarline Add Femera, 3 weeks radiotherapy twice daily (unsuccessful)
excision of tumours.
2007 jan skin tumour on L chest wall; positive Right axilla
Temerifen.
September Ca markers rise. Start Tykerb 3 wks radiotherapy
2008 skin tumours regrow. latissimus dorsal flap for excision of skin tumours March 08. HER2++++
Faslodex injections
CEA and Ca15.3 rising
2009
CT scan shows multiple mets in liver, lungs and inguinal glands. Stop Tykerb. Start Xeloda
CEA and Ca15.3 dropping like a stone. Skin tumours disappear.
Return 6 months later.
CT shows increase in size and number liver and lung mets.
Oct: Cyclophosphamide
Markers continue to rise. Change to Caelyx
2010
CEA marker in the 2000s Back to Herceptin
New tunour R Breast
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Old 03-09-2010, 12:45 AM   #8
Lien
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Re: pain during biopsy

You made the best choice you could, based on the information you had at the time. If we could look ahead, we'd all live better & safer lives. But we can't. so we do the best we can. Perhaps having both breasts off would have made a difference, perhaps it would have come back in the scar tissue anyway. We just don't know, and that's one of the hard parts.

Hugs

Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 03-09-2010, 10:09 AM   #9
michka
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Post Re: pain during biopsy

Hi Adrien. This is a lot to go through again. I hope you feel a little better now. I had a lot of pain after my biopsy. I cried also. I had a 5 inch haematoma just after. It hurt me for 10 days. The doctor said "this never happens"... I did not believe him.I am sending you hugs. Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 03-09-2010, 12:44 PM   #10
Jackie07
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Re: pain during biopsy

Adrien,

What kind of pain medicine are you given? There's no reason for you to be suffering from the pain constantly. Please seek a second opinion from a reputable doctor.
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Old 03-09-2010, 01:28 PM   #11
schoolteacher
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Re: pain during biopsy

Adrien,

Hope you are feeling better. In 2008, my oncologist told me that if my tumor kept getting bigger, he would not have me do surgery. I told him that I wanted the tumors removed. I read articles that stated having the primary tumor removed could help with survival. I had to feel that tumor in my chest for six months. Kate the Great on this board told me not to touch the thing. It was very hard not to touch the thing. You are in my prayers and thoughts. Hope to hear from you today.

Amelia
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Old 03-10-2010, 04:48 AM   #12
adrien
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Re: pain during biopsy

Thanks Amelia,
I see you know how I feel. Why did kate say not to touch the tumour? Just curious.
Lien— I'm sure you're right . Life is too full of if onlys.
Michka and jackie 07, the pain (and haematoma) have subsided after 3 weeks.
Love,
Adrien
__________________
1999 IVDC oe+ grade 3
epirubicen, cysplatin, 5FU;
lumpectomy L breast, radiotherapy 6 wks, tamoxifen 3 mths, Examestane 5 yrs

2005 mastectomy (Left ) 10cm IDC in lymphatic system and blood vessels oe- HER2 ++;Taxotere, Herceptin 18 mths
2006 skin tumours below scarline Add Femera, 3 weeks radiotherapy twice daily (unsuccessful)
excision of tumours.
2007 jan skin tumour on L chest wall; positive Right axilla
Temerifen.
September Ca markers rise. Start Tykerb 3 wks radiotherapy
2008 skin tumours regrow. latissimus dorsal flap for excision of skin tumours March 08. HER2++++
Faslodex injections
CEA and Ca15.3 rising
2009
CT scan shows multiple mets in liver, lungs and inguinal glands. Stop Tykerb. Start Xeloda
CEA and Ca15.3 dropping like a stone. Skin tumours disappear.
Return 6 months later.
CT shows increase in size and number liver and lung mets.
Oct: Cyclophosphamide
Markers continue to rise. Change to Caelyx
2010
CEA marker in the 2000s Back to Herceptin
New tunour R Breast
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Old 03-10-2010, 11:05 AM   #13
schoolteacher
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Re: pain during biopsy

Adrien,

I kept wanting to touch them. I told her this. When I would take treatment, I was curious if the treatment was working. This was a very anxious time for me. I would walk around every night saying, by the stripes of Jesus I am healed. The exercise helped me to go to sleep. At times, I would still wake up at night. My thoughts and prayers are with you.

Amelia
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