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Old 02-19-2008, 09:27 PM   #1
Bill
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Wink Most Embarrassing Moments

I was 14 years old, and an active wrestler and roller-skater, and my cousins invited me to their roller-rink for an all-nite skate. (Sorry about all the hyphens, "A") That's where you lock a bunch of hormone-filled, nearly out of control teenagers in a roller rink from dusk to dawn and they skate around all night in a sleep-deprived frenzy while their parents get a night off. My cousins had explained to me the night before that the head floor guard, "Lori", was a "smokin' hot" 16 year old, drove herself to and from work, and the best part was, she didn't have a boyfriend. That meant anyone stood a chance! I showed up at the rink that night, with my cousins, decked out in my finest silk shirt and my puka-shell necklace, and put on my skates. I saw Lori rolling around the rink, blowing her whistle at kids acting up, then I jumped up and shot out into the rink. (Born without fear, many things are possbile) I flew around the rink, and I could tell she was impressed with my speed and the ease at which I achieved it. I knew she was a speedskating champion, and once or twice we locked eyes and smiled at each other. After a few hours, and the standard hokey-pokey dance was over, they brought out the limbo bar, and I did well, but then Lori joined in and shot under the bar in an inhuman twisting of limbs that to this day mystifies me. After she shot around the rink she called for a free skate, and I skated into the boy's restroom to check my "look", I threw some water on my face and dried off, then shot back onto the floor. After a half loop around the rink, I noticed Lori smiling at me and skating straight for me, and I got ready for the "hey, how you doin'?" moment, but she said,"it's girls skate, only, and you got about 5 feet of toilet paper trailing off your skates, you gotta get off the floor." I lowered my head and said OK and went to the snack bar and just ate hot dogs until dawn.
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Old 02-19-2008, 11:46 PM   #2
Joanne S
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The ole toilet paper trailing tail---I mean tale. - he he he - ha ha ha
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Old 02-22-2008, 09:09 AM   #3
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Bill,

Every time I read your posts I am crying, mostly from laughing so hard but also you are a very eloquent writer w/ great imagery surely you have considered a 2nd career as a writer or perhaps English prof.
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Diagnosed 11/04 @39yrs. young
Stage IIB
2.5 cm, ER/PR- Her+++, grade 3
Partial Mast., 1/3 pos. node
1/05 full node dissection
4 A/C 4 Taxol DD, Herceptin 1 yr.
30X rads.
BRCA Negative
NED

Hope is the thing with feathers
That perches in the soul,
And sings the tune without the words,
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Old 02-22-2008, 12:55 PM   #4
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Bill - you have truly become one of the girls. I hope that doesn't embarrass you too much!
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NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 02-22-2008, 05:28 PM   #5
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Hahahahaha! You guys got me crackin' up again. I never thought about being an English professor before, or somebody's sister, but thanks to you both. Not embarrassed at all, I'm proud to be an honorary sister. Embarrassment, to me, is a form of fear, and when I was 12 years old, I fell into a pit full of snakes, and after that day, I looked at things a little differently. Love, Professor Sister Bill
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Old 02-22-2008, 09:01 PM   #6
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You are awesome Bill! I loved the story and when I was 12 thats all I lived for was rollarskating you brought back a lot of good memories thanks.
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IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 02-23-2008, 10:36 PM   #7
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Ok, this thread's slippin' off the trail like a three-legged mule. The title was not "Bill's Most Embarrassing Moments", but "Most Embarrassing Moments", and you ladies and gentlemen were supposed to join in with your most embarrassing moments. I see that hasn't happened just yet, so I'll set another example for you to follow. Prom night, I picked up my date, Maria, and I escorted her to the passenger side of my '74 Vega, with Blue-Metallic Flake paint and "expensive" white letter tires, while her father gave me those "what if I just kill you right now" eyes. I walked around to my side, got in, and shut the door. As we drove through town, me in my badass white tux. and Maria in her awesome white prom dress, I noticed cars kept honking at us and waving and pointing down, and I just waved back, thinking, "yeah, that's right, I'm lookin' good and my girl is lookin' good and you wish you were us", and then we stopped at a red light. Maria says, "Billy, roll down your window, that guy is trying to say something to you." I did, and the guy says, "Man, I been trying to tell you, the tails of your tuxedo have been draggin' the street for 15 minutes, they're black as hell, you shut 'em in the car door."
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Old 02-24-2008, 09:14 AM   #8
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Okay Bill, I'll be next...

I too was 14 - this seems to be the age when everything is embarrassing! I was a freshman in high school and had worn a dress to school that day. I'll take you back to the 'pre pantyhose era', when garter belts were actually functional. (An aside here - I am convinced that a man invented the garter belt, and a woman invented pantyhose, but I am just basing that on how the two minds think.) So, I had on my dress with 'stockings' as they were called back then; holding up my stockings was my garter belt. (Boy, I'm blushing as I write this - or is this a hot flash??) Anyway, I am walking across the high school campus after school (THANK GOD, as it was pretty much deserted) with my bestfriend when PING I felt something give way at my waist. My garter belt had come undone and as I looked down in horror I saw the elastic and hooks that were previously holding up my stockings hanging down under my dress. A few feet away was a brick wall where all the gangs congregated so they could give threatening looks to everyone as they passed - fortunately no one was there. I made my way SLOWLY over to "The Wall" (as it was called), trying to keep everything up and above my hemline. When I got to the wall, I propped myself up against it and asked my friend (who by the way, was laughing hysterically and had practically stopped breathing) to go and get me the trash can that was across the way. She dragged the trashcan over and I asked her to stand in front of me while I whipped everything off in one fell swoop. I threw it all in the trashcan and put my shoes back on and walked away - pulling my hysterical friend behind me. A few years later, when panyhose came out, I was sure that every woman's prayer had been answered. Oh, and I am still good friends with my laughing, trash can dragging rescuer.
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Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
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Old 02-24-2008, 10:42 AM   #9
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LOL the days of our youth.

I wore a strapless taffeta concoction to the prom. It was even pink with a blue shimmer!! As I was standing in line for the restroom, I see in the mirror two half moons at my waist. It was my strapless bra!! I didn't have a purse, so I tossed it in the trash. Hoped my mother didn't ask me where it was!

At another dance in college, my best friend borrowed a pair of my black high-heeled pumps. We were the same size in everything, but when you wear someone else's shoes they feel a little different. She comes back from the dance and tells me my shoes were bugging her all night. When she was getting off of the boat (it was a boat dance) she looked down and noticed she had the shoes on the wrong feet........ blahahahahaha. How she danced for 4 hours with shoes on the wrong feet I will never know.

Anyway Bill- I agree your storytelling is too good a talent to waste. May I be so bold as to suggest you start a blog for the world (and us ) to enjoy?

I think I will start another post on blogging.

Thanks for the laughs everyone!!
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Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
NED
Univ. of WA, Seattle vaccine trial '07
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Old 02-24-2008, 10:48 AM   #10
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Oh where do I start. I had a few moments. Coming from Scotland we have different meanings for different things. I was a Navy wife and just moved to a new base. Our household goods were delivered and I could not find my alarm clock, sooooo I boldly asked the guy next door if he would Knock me up in the morning, he said he would if it was okay with my husband. I did not know what that meant at the time, so you know I have never lived that one down. Jeanette
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Old 02-24-2008, 10:57 AM   #11
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I am playing craps in Las Vegas when we lived there and the fellow who has the dice is doing a terrible job of throwing the dice to the satisfaction of all at the table. I comment to the woman next to me that he is really cold and doing a "crappy" job. I then look over to see that she is wearing a shirt identical to his. And she has obviously made them.
Oops!
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Old 02-24-2008, 03:32 PM   #12
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Hahahahaha! Those stories are all hilarious!!!
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Old 02-25-2008, 03:00 PM   #13
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Red face I can laugh now....

On our honeymoon we went on a Carribean cruise. We are not drinkers at all but made it a point to drink and be merry all the way through it. We were on the top deck dressed to kill and I had on a very expensive outfit that I finally got to wear. Like royalty we proceeded down the stairs with Ed making the way. I pointed out that inside on the bottom floor was an older gentleman playing the piano and we agreed it was quaint. The night was perfect as the ocean breeze took my skirt and pulled it over my head in a twisted knot. Of course I did not want to spill the drink on this skirt, yet one hand to staighten myself out was not enough to be efficient. The look on the old man's face was priceless as he stopped playing to stare at me in my tiny honeymoon panties with his mouth down to his deck shoes!! In fact no one knew why he stopped playing and all gathered around him thinking he needed help. No fellas, it was Marie that needed the help!! I wanted to jump ship!!>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 02-25-2008, 04:00 PM   #14
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Got to tell you this one. When I was pregnant with my oldest son, who is 42 now, so you can pretty much guess how old I am, I come from Scotland and the weather isn't very good at the best of times. One day walking up what we called the High street , I felt a very refreshing breeze go up my dress, and yes , you got it, no underwear, dress blowing in the breeze and my face as red as a beet. This was in the days when you wore smocks and skirts and dresses. Hugs to all, Jeanette
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Old 02-25-2008, 07:07 PM   #15
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Ok, I give up. The women's posts are all so much better than mine! (A familiar voice just went off in my head, "Oh, you behave, bad boy"
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Old 02-26-2008, 06:23 AM   #16
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Talking I love this thread

Jeanette, that is grrreat!! Glad we can laugh about it now. Ah the days. I have many more to go with that one, just thought I would start at some I never imagined getting over. The shirt above the head thing, the lack of garments.......the little old man!! This thread has nice potential to keep me laughing long after I log out!! Lots of giggling>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 02-26-2008, 02:47 PM   #17
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OH.....mine is just too embarassing@!
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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Old 02-26-2008, 03:01 PM   #18
Believe51
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Red face Yeah, well how 'bout this??

My son is about 2 and loved walking, each day we would walk to run errands, get ice cream or just to bond. I NEVER leave the house without a bra....NEVER. While walking up the street he was really tired and I decided to pick him up and hurry home. As I adjusted him on my hips he kept sliding down, I bumped him back up, slid, bump, slid. Cars were passing by and beeping but this is my hometown and I know everyone here. Until I did not recognize some of the cars.....oooooh, aren't the neighbors so friendly around here???

It was a while before I realized by bumping him up I was pulling my shirt up too. Well, that was the last time I went braless outside the house!!!>>Believe51

PS: My posts so far have to do with being half dressed, but I promise that I have many more where I AM dressed!!
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 02-26-2008, 03:02 PM   #19
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Talking Chrisy

Come on now Chrisy, you have teased us, now it's time to fess up. I have another one to tell after, Jeanette
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Old 02-26-2008, 05:56 PM   #20
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Cool

Come on, Chrisy! Tell, tell, tell!
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