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Keeping Your Mind Off of BC Fun things and posts that do not apply to BC

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Old 07-21-2015, 09:41 AM   #1
Colleen
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Exercise

As a stage IV BC patient, er-, pr-, HER2+; I find exercise to be the best way for me to take out my frustrations of being a cancer patient for the rest of my life! I swim, do yoga, run, and cycle as my main distractions. My goal this year was to cycle to my chemo appointments, 12 miles each way, just did my first one and will continue from now on. It makes the dreaded drive an exercise adventure and lowers my blood pressure. I also enjoy paddle boarding, skiing, hiking, camping, and anything that takes me away from cancer emotionally, physically, and psychologically. Anyone else out there who uses physical activity to help their cancer woes?
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Old 07-21-2015, 09:54 AM   #2
thinkpositive
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Re: Exercise

Colleen,

Yep, exercise definitely does the trick for me. I enjoy many of the activities that you do. My goal is to get at least two hours of exercise a day. I also find that just being out in my garden and enjoying the sunshine is also very calming for me. It just makes me very happy.

I love that your are biking to treatment. You are awesome! Stay strong.

Take care,
Brenda
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8/2013 Diagnosed IDC Left Breast ER-/PR-/HER2+ Stage 3C, DCIS ER+/PR+/HER2- Right Breast (54 yr)
8/2013 PET/CT scan shows mass in uterues and suprclavicular nodes
8/20/13 Begin 6 rounds TCH chemo, Perjeta added for rounds 4-6
9/2013 After 1st round of chemo, mass in neck and breast no longer able to feel
11/2013 Hysterectomy, mass from PET/CT scan not cancer (adenomylosis)
12/2013 Finished chemo
1/2014 Double mastectomy with chest expanders
1/2014 Pathology report from surgery and SNB show complete pathological response!
3/2014 Finish IMRT radiation
8/2014 Fat transfer to radiated breast
8/2014 Completed 1 yr of Herceptin
10/2014 exchange surgery expanders removed implants placed
6/2015 3D nipple and areola tattoos
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Old 07-22-2015, 10:44 PM   #3
IrvineFriend
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Re: Exercise

Yep, exercise is a big one. I could never do that extensive of a program as I work 60-70+ hours/ week, but if it wasn't for work, I would be playing more. I know it helped my outcome. I was SO sick during chemo but put my running shoes on and even if I couldn't go more than 5-minutes, I stayed focused on it and the habit.

The problem was that after all my surgeries, chemo, radiation, construction, I felt obligated to return the favor by my job and work, work, work.

I live in a nice area and still am upset that centers and hospitals don't accept that breast cancer patients can still be in their prime, both socially and economically. Prostate cancer patients had support groups at 7 PM but breast cancer was 10 AM. I was in my 40's and moving up in my career.

We're still in the 1900's.
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Julie
Live in Orange County, CA

Diagnosed with DCIS Oct. 2012

Bilateral Dec. 19, 2012
IDC, ER/PR-, Her2+++, Grade 3
Stage IIIa
15.6 cm
4/14 nodes + macrometastases
First thing each morning, I try on my bathing suit. Then, nothing worse can happen the rest of the day.
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Old 07-23-2015, 12:59 AM   #4
Pamelamary
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Re: Exercise

Well done, Colleen! I too try to keep fit, despite the stage IV diagnosis. Doubt that I am in your league though! Depending on your treatment and available support, you might think of getting a lift home from chemo? Keep it up!
Best wishes..... Pam
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Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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Old 07-23-2015, 06:35 AM   #5
Colleen
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Re: Exercise

@irvine friend I live in Dana Point! Ther is a support group at the breast center in Laguna Hills the 2nd and 4th Tuesday of the month, I believe they start at 6:30 or 7:00. Or we can start our own support group with walks to the beach etc.
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Old 08-20-2015, 03:02 PM   #6
WayTooYoung
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Re: Exercise

Hi ladies,

I am naturally very active and currently take boxing and muay tai classes. The excercise drills can be intensive, so I am wondering if the intesity of the excercise can be harmful. I have been hearing people say the adrenaline or cortisol stress levels may increase which can fuel cancer...is this true?
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Feb/2010-Diagnosed with IDC ER+, PR+, Her2+++(age 28)
Mar 2010- 6 Rounds of FECT (made me sick as a dog)
Jun 2010- Finished chemo
Jul 2010- Mastectomy +12 lymphs (4+)
Oct 2010- Radiation/Begin Herceptin (Her2 was overlooked by my Onco!)
Sep 2011- End of Herceptin
Nov 2011- Recurrence-->Chest Wall, muscle, and possible lymph (ER+, PR-, Her2+++)...WTF!!!???!!!
Feb 2012-Randomized for Clinical Trial
Feb 2012- Begin blind study either TDM1 w/Pertuzumab or TDM1 w/Placebo Pertuzumab
Jan 2013-2nd Recurrence, off TDM1...what next?
Feb 2013-chest wall resection
Feb 2013-Begin Zoladex :(
Apr 2013-Begin Femara
Jul 2013-Oopherectomy + both tubes
Oct 2013-Chest wall recurrence same spot...Dr monitor
Nov 2013-New nodule on chest...restaging...bone/ct clear...continue to monitor
Mar 2014-Surgeon fr/dif hospital confirms lung metasis based on review of CT scan from Nov...Onc recommends Aromasin/Affinitor...
Apr 2014-Start Herceptin+Vinorelbine
Sep 2014-New pain in lower back, MRI confirms metastasis
Oct 2014-SBRT to lungs
Nov 2014-SBRT to lower back
Dec 2014-Restaging confirms two new nodules to lungs and lower spine :(
Jan 2015-Xeloda and Tykerb (good response)
Aug 2015-Xeloda/Tykerb not working...Dr wants to try Taxol/Herceptin combo...problem, Herceptin not covered by OHIP
Sep 2015-Begin Taxol continue Xgeva
Oct 2015-Add Herceptin
Nov 2015-CT stable but MRI shows new mets to spine :(
Jan/Feb 2016-Start Erubulin (Halavan)
May 2016-Progression...Stop Erubulin
June 2016-PMH to explore Clinical Trial options...consideration for Immunotherapy
July 2016-Screening for Trial...Still without treatment, experiencing low appetite, low energy, pain, and rapid wieght loss...cachexia???



You never know how STRONG you really are...until being strong is the only CHOICE you have...
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Old 08-20-2015, 04:36 PM   #7
Colleen
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Re: Exercise

@WayTooYoung after doing some research I could not find any valid studies link ing excercise with an increased risk for cancer or recurrence. Most of the articles, books, and studies indicate excercise is a healthy endeavor for cancer patients. If you are in doubt I would ask your oncologist. You have been through a challenging battle so far. Stay strong! I am currently receiving infusions every three weeks of herceptin and perjeta, it is working well for me and is a relatively "easy" regimen (I don't feel lousy). I hope theory find a regimen that gives you the same results; NED.
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Old 08-25-2016, 09:15 PM   #8
hopingmind
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Re: Exercise

I remember a friend ( with breast cancer) who's into yoga. I think a certain cancer team is urging patients to be as physically active as long as they only engage in moderate exercises.
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